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The Unreasonable Math of Type 1 Diabetes

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Re: The Unreasonable Math of Type 1 Diabetes

#291

Post by rthille »

liamwire wrote: post #247
paulcole wrote: post #144

Earlier quoted context omitted.

> What if there is an earthquake and you can't get to somewhere with snacks? I’m a Type 1 diabetic (diagnosed in my 30s) and have been living with it for about a decade now. This really isn’t a “what if” situation. I know what will happen. I will die or hopefully just become incredibly ill. It’s not really scary at all. It’s just something I live with and prepare for as best I can. The one thing that I’ve learned fro…

Please forgive my ignorance, how is it possible that you lived until your thirties without knowing you have T1D?

My nephew was 22 when diagnosed: https://www.healthline.com/diabetesmine/charlie-kimball-diab...

Re: The Unreasonable Math of Type 1 Diabetes

#292

Post by spanktheuser »

Trasmatta wrote: post #8

I'm a type 1 diabetic, and this was a helpful post at showing non diabetics why it is so. hard. Non diabetics typically think the difficult thing must be the shots and the finger pricks, right? Not really. The majority of diabetics get used to those things quickly (of course there are some of course that deal with a major major needle phobia that can make it even harder). The hard part is that it never ends. Almost e…

It’s just insane. I had no idea until Covid triggered the onset of type 1 diabetes in my niece. I was fortunate to spent time with her a year later. Her mother and father seemed to have aged a decade from the stress. I can only hope that the AI monitored artificial pancreas tech currently in testing is approved for general use soon. The cognitive load of monitoring and treatment is insane; the impact of any unanticipated variance so severe.

Re: The Unreasonable Math of Type 1 Diabetes

#293

Post by eldonaldo »

Hi, Nico here from SNAQ. We are a Swiss based startup that created an app which helps T1Ds to count carbs and to better manage their glucose around meals. You can download the app here:

https://www.snaq.io/

I hope it helps evey T1D to make their lifes a little bit easier.

DM me / reply to this thread if you want a voucher for the premium features.

Re: The Unreasonable Math of Type 1 Diabetes

#294

Post by mst »

Mezzie wrote: post #176
Trasmatta wrote: post #8

I'm a type 1 diabetic, and this was a helpful post at showing non diabetics why it is so. hard. Non diabetics typically think the difficult thing must be the shots and the finger pricks, right? Not really. The majority of diabetics get used to those things quickly (of course there are some of course that deal with a major major needle phobia that can make it even harder). The hard part is that it never ends. Almost e…

> I'm literally crying while writing this post, because it's so exhausting and it never ends. If it helps (?), I also broke down crying reading this, because I have MS and it is so true to my experience. I've never been able to communicate well how exhausting the constant mental load is, and I imagine it's even worse for people with T1 diabetes since blood glucose can get out of whack a lot more quickly than my immun…

Oof. Even without any physical issues if I get stressed about stuff in a way that makes it hard to concentrate I usually then manage to do the 'stress about my stress' thing on top of that and damn but that's no fun at all.

Re: The Unreasonable Math of Type 1 Diabetes

#295

Post by mst »

idealmedtech wrote: post #211
sweston4 wrote: post #206

Earlier quoted context omitted.

Hey Jeremy, I was hoping to send you an email based on the email in your profile (jeremy@ideal.com) and received an "address not found". Would there be a better way to reach you?

It's @idealmedtech.com! I did it that way to keep the bots away, but perhaps it was a little _too_ effective

The change you've already made seems pretty likely to work but maybe @ .com would be even clearer and still have the desired effect? (or since you have the URL in there some reference to that, YMMV, just the thought sprung to mind so figured I'd share in case it was useful)

Re: The Unreasonable Math of Type 1 Diabetes

#296

Post by ineedasername »

grahar64 wrote: post #222
ineedasername wrote: post #184

Rule #1 if T1D is never be out of reach of food. The author of this article is correct that too little insulin is bad, but the margin of error for acute distress in that direction is much more forgiving for high blood sugar than low blood sugar (at least in the short term dying-on-the-floor time frame) Target level is around 90. A little too much insulin can easily push that down to 25/35, which gets you into passing…

We already had nappies, wipes and bags hidden everywhere as emergency supplies. We just added the hypo packs of juice and shelf stable baby treats to them :)

Hah, yes-- since exiting your home with a young child is already an exercise in micro logistics, adding one more item to the list is pretty straightforward.

I'm sure you're already aware of the advantages of pumps, so I'll just chime in with a complete endorsement of them: Switching to a pump for my wife certainly made things easier-- less planning, more freedom. It was also a significant health benefit: Not needing to make educated guesses with long/short acting insulin means things stay in range on a much more regular basis, which keeps your A1C significantly more in control, limiting the long term consequences of lifelong diabetes.

Re: The Unreasonable Math of Type 1 Diabetes

#297

Post by ineedasername »

sweston4 wrote: post #19

I'm a type 1 diabetic and data scientist. Estimating the causal effect of a unit of insulin or food on blood sugar is an absolute crap shoot. Consider that there's a +/-20% margin of error on the reported carbohydrates on nutrition facts. We might consider this irreducible error that just cannot be modelled (Maybe you could get a calorimeter, estimate the distribution of errors, and reduce that error somewhat). There…

In addition to the margin of error on food labels, there's also the margin of error on blood tests, which IIRC from the spec's on the one my wife uses it too is about +/- 20%.

If you have the misfortune of having those errors match up (and they will at times) they you eat something that overestimates carbs by 20% and a blood test that overestimates your current glucose level by 20%. Give yourself a corresponding dose of insulin and drive your levels through the floor.

Re: The Unreasonable Math of Type 1 Diabetes

#298

Post by jfengel »

quickthrower2 wrote: post #248
cleancoder0 wrote: post #105

Earlier quoted context omitted.

I once took a 5 hour bike trip on an empty stomach. At some point I couldn’t even turn the pedals. I had to lay on the ground, not feeling better even after half hour. I can still remember the feeling of eating some sweets. Felt like I was reborn. Can’t imagine what it’s like for T1

is this like “the wall” marathon runners are said to experience?

Yeah. Runners call it the wall; cyclists call it "bonking".

I've been told that it can come on more suddenly and acutely for cyclists. As a marathoner I find that I feel it coming for several miles, which is tens of minutes. The activities are somewhat different so it's not impossible that they manifest differently.

But the basic idea is similar. You've got so much readily available glycogen in the body, and when it runs out, you have to shift to a different metabolic pathway -- and your body starts sending up warnings that you are rapidly running out of reserves and must stop now.

It's as much mental as physical at that point.

Re: The Unreasonable Math of Type 1 Diabetes

#299

Post by jacquesm »

chrisdotcode wrote: post #290
jacquesm wrote: post #289

Earlier quoted context omitted.

And I spent the better part of a month deeply embedded in safety materials regarding diabetes type 1. It's simple: if you start experimenting like that without guidance from your doctor then that's asking for trouble. Giving medical advice with such a high chance of risks materializing for the takers of such advice is irresponsible to put it mildly. You can't just dump blanket statements like that in a forum and expe…

That's true- I even stated that I thought KetoType1 should have put a disclaimer. At the same time, I do encourage people to take charge of their own health, and to make calculated and appropriate risks. My primary concern was people only reading your name, the word "dangerous", and being put off from further research about keto in general because of that. Some physicians used to recommend rice- and grain-heavy diets…

> some healthy skepticism (EDIT: in the "trust, but verify" sense) is warranted, even towards one's doctor.

That's fair, but for all you know OP is making stuff up, has been misdiagnosed and 50 other things that could be true that would make their well intentioned unqualified advice utterly irrelevant and dangerous to boot.

Just like you shouldn't take legal advice from ACs on the internet you shouldn't take medical advice from them either, especially when they're novelty accounts promoting diets that have been used to 'cure' everything from cancer to epilepsy, Alzheimers and TBC. Extreme skepticism is warranted there. As for your doctor: assuming they're a diabetes specialist: you should put your faith in them, and if you don't trust them then you should go find yourself another doctor, not start taking randos advice.

Re: The Unreasonable Math of Type 1 Diabetes

#300

Post by Mezzie »

mst wrote: post #294
Mezzie wrote: post #176

Earlier quoted context omitted.

> I'm literally crying while writing this post, because it's so exhausting and it never ends. If it helps (?), I also broke down crying reading this, because I have MS and it is so true to my experience. I've never been able to communicate well how exhausting the constant mental load is, and I imagine it's even worse for people with T1 diabetes since blood glucose can get out of whack a lot more quickly than my immun…

Oof. Even without any physical issues if I get stressed about stuff in a way that makes it hard to concentrate I usually then manage to do the 'stress about my stress' thing on top of that and damn but that's no fun at all.

Are you tired of boring, old stress?

Try new and improved META-stress: all the worrying and none of those pesky resolutions or good things!

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