Live data from Hacker News

U.S. autism data project sparks uproar over ethics, privacy and intent

washingtonpost.com

281–290 of 377 posts

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#281

Earlier quoted context omitted.

About a fourth of kids diagnosed with autism have IQ at 75 or below.

How well would your IQ score reflect your actual intelligence if you were to take an IQ test in a language you have trouble understanding and expressing yourself with?

It's well agreed that multiple factors contribute to IQ score. What I'm trying to convey is how much burden is predicted by the autism diagnosis.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#282

Earlier quoted context omitted.

There isn’t a definitive test for autism. High functioning autists would have been considered quirky or odd in the past. We label everything now though

> We label everything now though Are "quirky" and "odd" not labels? How about "weirdo" and "creep", are those not labels? These romanticized ideas of what autism is (or used to be) hit a brick wall when you consider that 2/3 of people with autism have contemplated suicide and 1/3 of people with autism have attempted it. Most of it could probably be attributed to social rejection, exclusion, and isolation perpetuated…

The amount of condescension in this thread is astounding. People who have zero experience with autism have decided to split the autistic community into 'high-functioning' and 'low-functioning' groups and declare that the former is perfectly fine. I don't even understand what their problem is.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#283

Earlier quoted context omitted.

“I told you once that I was searching for the nature of evil. I think I’ve come close to defining it: a lack of empathy. It’s the one characteristic that connects all the defendants. A genuine incapacity to feel with their fellow man. Evil, I think, is the absence of empathy.” ― G. M. Gilbert, American psychologist who worked on the Nuremberg trials

Didn't someone recently mention that "The fundamental weakness of Western civilization is empathy"? Sounds familiar...

There I had my money on infinite navel gazing while being completely unaware of the rest of the world

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#284

Earlier quoted context omitted.

“I told you once that I was searching for the nature of evil. I think I’ve come close to defining it: a lack of empathy. It’s the one characteristic that connects all the defendants. A genuine incapacity to feel with their fellow man. Evil, I think, is the absence of empathy.” ― G. M. Gilbert, American psychologist who worked on the Nuremberg trials

It's crazy we got all those lessons figured out, clear as can be and right in the history books, that every kid is supposed to learn. And yet, here we are, back to square one.

Really ,did we ? The marching morons havw nukes now..

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#285

“Health and Human Services Secretary Robert F. Kennedy Jr., the nation’s top health official, repeatedly said before taking office that vaccines cause autism, despite overwhelming scientific evidence that they do not. He has declined to disavow his statements and has continued to promote a possible link.” Having worked directly with autism researchers, I can confidently tell you that RFK is making a wild guess not ba…

> Health and Human Services Secretary Robert F. Kennedy Jr., the nation’s top health official

I just loooove that our "top health official" has absolutely zero medical or public heathcare education, openly believes and advocates for discredited and fraudulent medical perspectives and more.

> RFK is genuinely a danger to health care in the United States.

I could not agree with you more.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#286
post #255

Earlier quoted context omitted.

I didn’t realise until other people replied to you that you weren’t using dehumanising sarcastically. There is nothing dehumanising about acknowledging the existence of the profoundly autistic.

He's not "acknowledging their existence" though, he listed a series of very typically human activities and experiences, and then said autistic people don't get to experience them due to their innate differences. First of all that is false, because even profoundly autistic people do the things he said they don't do. Secondly, it's dehumanizing because the reason he lied (yes what he said was a lie) was so that the lis…

Most profoundly autistic people don’t go the bathroom unassisted, or pay their own taxes. That’s true.

> Kennedy to do whatever he wants to them to restore their humanity, whether that be a registry, concentration camps (or as he calls them, "wellness farms") or whatever else he has planned.

Wild conspiracy theories help nobody, and also harm autistic people.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#287
post #254

Earlier quoted context omitted.

He’s being incredibly clear that when he talks about people that have trouble participating in society, he is talking about the 26% of people with profound autism. Online autism conspiracy theory channels turn this into some kind of eugenics purge.

He's not being "incredibly clear" because he speaks about autistic people with one broad brush. And in calling this "a conspiracy theory" and "some kind of eugenics purge", you seem to be intentionally downplaying the very real and very legitimate worries of autistic people, a group who has historically been subjected to eugenics purges in the past, which started using the language and rationale Kennedy espouses. If…

> He's not being "incredibly clear" because he speaks about autistic people with one broad brush.

You’re watching edited videos.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#288
post #254

Earlier quoted context omitted.

He’s being incredibly clear that when he talks about people that have trouble participating in society, he is talking about the 26% of people with profound autism. Online autism conspiracy theory channels turn this into some kind of eugenics purge.

> He’s being incredibly clear that when he talks about people that have trouble participating in society Is that supposed to make it better? This distinction between autistic individuals who are productive and those who have trouble participating in society goes back to Nazi Germany where they sent the latter group to "reform camps" and "hospitals" to be murdered and eradicated. That's where the distinction of "Asper…

[flagged]

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#289
post #262

Earlier quoted context omitted.

The problem with being on the public stage, is that Every. Single. Word. They. Utter. has the ability to be reframed. With Deepfakes, they can now have words put in their mouths, in a realistic manner. That's why so many politicians and C-suite execs are "weasely." They learn to choose their words carefully. The Fed Chair can crash the markets, by wincing at the wrong time. I empathize with him (see what I did, there…

That is not what happened here. The quote is completely consistent with who Musk is. And is exactly the same in the context. This is not Musk misspoking and experiencing unfair consequences. It is Musk saying something that is perfectly consistent with everything he does.

"I believe in empathy, like, I think you should care about other people [...] empathy is good" - Elon Musk

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#290

Earlier quoted context omitted.

"Do not commit the sin of empathy"

“The fundamental weakness of Western civilization is empathy” — Elon on Joe Rogan It’s a core tenant of this Curtis Yarvin / neo reactionary ideology that seems to be shared by a lot of VCs

"I believe in empathy, like, I think you should care about other people [...] empathy is good" — Elon on Joe Rogan
Post reply on HN