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The Unreasonable Math of Type 1 Diabetes

maori.geek.nz

261–270 of 315 posts

Re: The Unreasonable Math of Type 1 Diabetes

#261
post #107

Daughter got this - 100% funding for a CAMaps closed loop system + all the insulin etc. Ty UK NHS

Reply to dead comment: Suffolk Trust, I think because the system came out more or less as she got diagnosed they were keen to get her on it (after 6mths learning to do it by hand).

Re: The Unreasonable Math of Type 1 Diabetes

#263

> A hot bath or shower can raise (then lower) BGL. I suspect the author has come to this conclusion from CGM data, and therefore also that it is wrong (or at least not a very significant effect). I also have T1D, and CGMs like Freestyle Libre (and probably also Dexcom) includes a temperature sensor and adjusts its readings based on the external temperature to increase accuracy. I think the changes in blood sugar leve…

Another thing you have to be careful of: pressure on the sensor can drastically effect readings. This is particularly a problem if you sleep on your sensor.

Ah that terrifying middle of the night sudden dive from 100± to "LOW" that turns out to be compression...

Re: The Unreasonable Math of Type 1 Diabetes

#264

I'm a type 1 diabetic, and this was a helpful post at showing non diabetics why it is so. hard. Non diabetics typically think the difficult thing must be the shots and the finger pricks, right? Not really. The majority of diabetics get used to those things quickly (of course there are some of course that deal with a major major needle phobia that can make it even harder). The hard part is that it never ends. Almost e…

Would it not be better to eat only once a day so the potential for errors is minimised?

Skip carbs altogether?

Re: The Unreasonable Math of Type 1 Diabetes

#265

I'm a type 1 diabetic and data scientist. Estimating the causal effect of a unit of insulin or food on blood sugar is an absolute crap shoot. Consider that there's a +/-20% margin of error on the reported carbohydrates on nutrition facts. We might consider this irreducible error that just cannot be modelled (Maybe you could get a calorimeter, estimate the distribution of errors, and reduce that error somewhat). There…

> that would kill you if the resulting low blood sugar is not dealt with. My wife is type I, so I have a sense of what you live with. She bought a book, "The Insulin Murders", which looked at a number of cases where insulin was the weapon of choice. The good news is that it is actually really hard to die from low blood sugar, assuming good medical care is available. Coma to death is > 12 hours, more like 24 or 48. As…

> The good news is that it is actually really hard to die from low blood sugar, assuming good medical care is available.

And yet, have there not been a number of cases where medical professionals have been convicted of the murders of several patients by injecting them with insulin? I would expect that these patients should have had 'good medical care' available to them.

I have not read the book, but perhaps it is ignoring the fact that extreme hypos may trigger other problems such as heart attacks. When a condition becomes common enough to be given a non-medical name, as in the 'dead in bed' syndrome, then I you can't *assume* you will survive for 24 hours.

The risk of death might be lower than I think, but I'm not to be ignoring any alarms I get.

(Type 2 but insulin dependent)

Re: The Unreasonable Math of Type 1 Diabetes

#266
post #242
post #229

Earlier quoted context omitted.

I've had the "are you drunk" comments a few times while hypoglycemic. I once walked home from work and apperantly didn't notice it, walked a few busy intersections and finally sat down somewhere where someone noticed me and called an ambulance who game me a glucose iv and everything was back to normal in a few minutes. So everything was still somewhat working and the "go home" signal was set but everything else was b…

A CGM, app like xdrip and a smartwatch to display the current glucose value, trend graph and insulin on body has completely removed these situations from my life. As people normally check the time, you'll be checking the glucose value when walking outside

That's the glass half-full. If that works for you, then I'm happy that at least one of us has found a solution that works reliably.

The glass half-empty is...

I'd be much happier if I actually had an information device that I wore on my wrist that gave me all the data I need to manage T1D at a glance without igniting arguably the worst alert fatigue ever seen in healthcare when I have a smartphone, a pump, a CGM, and a watch which all go off in a discordant concert with one another with no clue that the other is alerting or any mechanism for stopping the noise save for turning off the device. In short, my wish is that the companies making these devices would give more care to the _design_ of the ecosystem around them, not just their individual device. I know, this is an emergent problem, but one that I've dealt with nightly at 3 AM when the devices go awry, not my diabetes, which is actually quite stable. The vast majority of my disease control and management issues arise from technology. Like insulin, it's the exogenous nature of the device that indicates there will be side effects, whether we design for them and manage them, or not. Unfortunately, patients pay with their user experience, all day, every day. There is no greater use case for the design of a killer app for the smart watch, i.e. wrist-worn information device, because I don't actually care what time it is. Rather, I'd be happy if the device actually made BG and related information the primary data currency of the device, not time. Time is actually secondary to the primacy of BG in this particular use case. I wear two watches to account for the fact that I need BG at a glance and the sensors for tracking exercise and metabolic impact. I've not seen a single device or interface that gives me what I want on one device at a glance without a byzantine UI.

Re: The Unreasonable Math of Type 1 Diabetes

#267

Earlier quoted context omitted.

> that would kill you if the resulting low blood sugar is not dealt with. My wife is type I, so I have a sense of what you live with. She bought a book, "The Insulin Murders", which looked at a number of cases where insulin was the weapon of choice. The good news is that it is actually really hard to die from low blood sugar, assuming good medical care is available. Coma to death is > 12 hours, more like 24 or 48. As…

> The good news is that it is actually really hard to die from low blood sugar, assuming good medical care is available. Except it's extremely hard to get medical care when your mind and body shuts down because of a severe case of hypoglycemia. There isn't always somebody around to call an ambulance. If you haven't experienced a severe episode of hypoglycemia yourself, you really don't understand fully how it can eff…

> You can experience hypoglycemia without any insulin overdose.

One of the worst hypos that I have had (Fingerprick said 1.9mmol/l which is about 34 mg/dl) was a 'Lantus low' which is not really an overdose.

Re: The Unreasonable Math of Type 1 Diabetes

#268

Earlier quoted context omitted.

> What if there is an earthquake and you can't get to somewhere with snacks? I’m a Type 1 diabetic (diagnosed in my 30s) and have been living with it for about a decade now. This really isn’t a “what if” situation. I know what will happen. I will die or hopefully just become incredibly ill. It’s not really scary at all. It’s just something I live with and prepare for as best I can. The one thing that I’ve learned fro…

Please forgive my ignorance, how is it possible that you lived until your thirties without knowing you have T1D?

T1D can be triggered at any time in a person’s life. It’s autoimmune. Thinking of it as a childhood disease is outdated and (fortunately) most doctors are becoming aware of that.

Re: The Unreasonable Math of Type 1 Diabetes

#269
post #255

In the inline chart "42 factors that affect blood glucose", how do I interpret the two different arrows corresponding to each entry?

If you mean an up arrow as well as a down arrow, this means it can increase *or* decrease the blood sugar levels. Usually this means it will affect different people in different ways, but sometimes it can mean that it will affect the same person in different ways at different times.

For example, most people find that exercise will decrease their blood sugars, but some people have reported that intense exercise causes their levels to rise.

When I go for a walk, usually my blood sugar immediately jumps up slightly and then after 10 or 15 minutes it starts to fall. After 30 minutes I am back to where I started and then my levels continue to fall after that.

https://diatribe.org/42factorsexplained gives more details about each of the 42 factors.

Re: The Unreasonable Math of Type 1 Diabetes

#270
post #242

Earlier quoted context omitted.

A CGM, app like xdrip and a smartwatch to display the current glucose value, trend graph and insulin on body has completely removed these situations from my life. As people normally check the time, you'll be checking the glucose value when walking outside

That's the glass half-full. If that works for you, then I'm happy that at least one of us has found a solution that works reliably. The glass half-empty is... I'd be much happier if I actually had an information device that I wore on my wrist that gave me all the data I need to manage T1D at a glance without igniting arguably the worst alert fatigue ever seen in healthcare when I have a smartphone, a pump, a CGM, and…

Here is what I have in my watch:

https://i.imgur.com/Iv6V3ap.jpg

Date, time, glucose graph, steps, pulse, time from last value, last glucose value, delta from previous value, current pump basal rate and units of insulin from the base.

More than enough to understand your current situation. Battery life after few years of use about three days.

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