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Breach exposed more than one million DNA profiles on a major genealogy database

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Re: Breach exposed more than one million DNA profiles on a major genealogy database

#261

Earlier quoted context omitted.

Even discounting the procedural difficulties, which would make such a baptism invalid to the church, it doesn't count without knowledge and consent.

How do the dead ancestors give consent in the current scheme?

Asking them in the afterlife, apparently.

Re: Breach exposed more than one million DNA profiles on a major genealogy database

#263
post #248

Earlier quoted context omitted.

There is a world of difference between 1. Having your DNA already in the database 2. Your DNA being out somewhere on the street where it could only be linked to you by name through a targeted reconnaissance effort

I think this is somewhat analogous to the privacy issues around Google Street View. Almost nobody thought the image of the front of their house was really private, but the idea of it being catalogued and searchable bothered more than a few. Removing the barrier of someone having to physically do the work to get that information at least made them feel more vulnerable. Has Street View been a problem for the world in t…

Your street view doesn’t contain your entire genetic record (including propensities towards disease, mental and physical, which could very easily be used to discriminate against you). So they’re not really comparable whatsoever.

And what is with this “this terrible thing X will happen eventually, so why not have it happen now?” argument I keep seeing nowadays? Your argument was quite literally: “Eventually someone will collect all your DNA”, so who cares if it’s now or later?

Re: Breach exposed more than one million DNA profiles on a major genealogy database

#264

Earlier quoted context omitted.

Do you also think I should consult my identical twin for permission before uploading photos of myself to the internet? Why / why not?

I'd argue not, since a single photography contains much, much less information than a full DNA fingerprint.

That's a fair point. However, I'm not entirely sure I buy the premise. With the advent of deepfakes and internet scraping facial recognition, I think a public photo collection of your entire likeness could be considered least somewhat at risk for abuse, when compared to the risk that a confidential fingerprint with ~25% of your genes is leaked and then used against you.

Re: Breach exposed more than one million DNA profiles on a major genealogy database

#265

Earlier quoted context omitted.

Nothing. Absolutely nothing. The DNA records aren't the type that can be used to clone you, or frame you with some kind of non-existent DNA copying machine. They are autosomal records. (or similar genealogical, or non-medical, types) The people spinning fantastic fairytales about how the jackbooted thug of big brother is going to crush your throat probably don't even know what autosomal means and no amount of eductio…

> there is no risk to you. There is always risk. You probably don't see it yet just like only privacy-forward folks thought Facebook's encouragement to "share everything" publicly (circa 2007) foresaw the problems that would commit 10+ years later. The small benefit of closure to a stranger who has already dealt with the grief of loss is not worth it for me. It depends on your personal value system. > It has been ill…

If you seriously worry that much about far-fetched hypothetical scenarios it simply means you're privileged enough not to have immediate problems that affect you today.

Re: Breach exposed more than one million DNA profiles on a major genealogy database

#266

And half the DNA of all of the siblings and parents of the people that submitted their DNA, a quarter of their grandparents and grandchildren and so on. That's what I really hate about these companies, they get people to submit their DNA and the customers do not realize it isn't a decision that affects just them.

Do they not realize? It's just served as a convenience for family trees and cure together services. Same mechanism with any "social app" that asks access to all your phone contacts to "easy friends discovery": you may have never used Tiktok or Facebook but they already know quite a few things about you thanks to an acquaintance. I know DNA stuff seems scarier in the long run but data from an address book are more easily exploitable.

Re: Breach exposed more than one million DNA profiles on a major genealogy database

#267

And half the DNA of all of the siblings and parents of the people that submitted their DNA, a quarter of their grandparents and grandchildren and so on. That's what I really hate about these companies, they get people to submit their DNA and the customers do not realize it isn't a decision that affects just them.

Ignorant question here. How is this not regulated through HIPAA? Shouldn't these board members of this company face prison? DNA, a prosecutor could argue is a unique health identifier.

"Access to equipment containing health information should be carefully controlled and monitored."

https://en.wikipedia.org/wiki/Health_Insurance_Portability_a...

Re: Breach exposed more than one million DNA profiles on a major genealogy database

#268
post #18

Earlier quoted context omitted.

What does the GED stand for? Genetic ??? Database? To someone who grew up in the U.S., GEDmatch sounds like a dating site for people who took a test in lue of completing secondary education.

I upvoted you and FYI the word you’re looking for is “lieu”.

Much appreciated.

Re: Breach exposed more than one million DNA profiles on a major genealogy database

#269

Earlier quoted context omitted.

Do you also think I should consult my identical twin for permission before uploading photos of myself to the internet? Why / why not?

Hardly a fair comparison. However the few identical twins I know have been very mindful of how their individual behavior affects the other.

Of course I realised the comparison would be somewhat controversial, it was actually the point of bringing it up. However, if you have the time I would appreciate it if you tried to articulate why you think the comparison is unfair, instead of just a general dismissal.

Re: Breach exposed more than one million DNA profiles on a major genealogy database

#270
post #263

Earlier quoted context omitted.

I think this is somewhat analogous to the privacy issues around Google Street View. Almost nobody thought the image of the front of their house was really private, but the idea of it being catalogued and searchable bothered more than a few. Removing the barrier of someone having to physically do the work to get that information at least made them feel more vulnerable. Has Street View been a problem for the world in t…

Your street view doesn’t contain your entire genetic record (including propensities towards disease, mental and physical, which could very easily be used to discriminate against you). So they’re not really comparable whatsoever. And what is with this “this terrible thing X will happen eventually, so why not have it happen now?” argument I keep seeing nowadays? Your argument was quite literally: “Eventually someone wi…

I'm a little confused about what exactly the point of debate is here.

* Is your DNA a secret? I think the fact that you leave it everywhere means no.

* Should people be allowed to aggregate that information? It literally cannot be stopped so I think the point is moot.

I guess what I'm missing is any addressing of the reality of the situation. I'm guessing from the content of your reply that you think that the practice of cataloging DNA should be banned. Great. What happens when they do it anyway?

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