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FDA clears first over-the-counter continuous glucose monitor

fda.gov

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Re: FDA clears first over-the-counter continuous glucose monitor

#251
For having participated in a study, they installed an Abott FreeStyle Libre 2 sensor on me for 14 days. I could get minute readings, which is not possible with either the hardware reader nor the official app, using the almost entirely FOSS android app Juggluco.

Another FOSS web tool is Nightscout -- it generates reports and live graphs from data gathered from your CGM via for example Juggluco. My instance is at http://sladkor.4a.si. My sensor expired, so there's no more live data.

glucometerutils is an interesting repo for downloading stored data from hardware readers etc. Abott encrypted the Libre 2 USB communication to force users to use their proprietary software, but hackers managed to extract keys.

http://juggluco.nl http://nightscout.github.io https://github.com/glucometers-tech/glucometerutils http://ni.4a.si./anonymous/freestyle-keys/tree/freestyle_key...

Re: FDA clears first over-the-counter continuous glucose monitor

#252

I recently had an unusual health event that resulted in me passing out. My wife, who is a physician, thought it might be hypoglycemia, since i'm at high risk for diabetes. She found a super friendly endocrinologist who put me on a CGM for two weeks. I never hit the hypoglycemia range during those two weeks, so it didn't really explain what my issue... but honestly the data was SUPER interesting. Just observing the va…

The ones on diabetic warehouse don't work well enough ( https://www.diabeticwarehouse.org/collections/continuous-glu... ? Or is that site sketch for you? I think you can just get one if you are willing to burn $500 (not cheap, but only in the price range of a higher-end smartwatch)

Keep in mind that a single sensor will work for only a week or two, depending on the type. So it's not exactly right to compare the price to a smartwatch.

Re: FDA clears first over-the-counter continuous glucose monitor

#254

I dove into CGMs a little bit about a year ago, mostly just for fun. Yes, I paid money to some online prescription mill for CGMs (Abbott Freestyle Libre 3, IIRC), and then put one in my arm (the applicator is a short syringe section that has the monitor tube threaded into it, so the tube stays in your arm and your skin under the monitor remains broken) for a couple weeks. Just to see how various foods would affect my…

Before I got cancer, I had one through Levels, and it was informative. Dessert is much worse than I'd thought. Rice, too, including brown rice. I remember eating some biryani and a small bit of naan at an Indian restaurant and thinking that I'd been pretty healthy, only to see a spike of like 80.

I saw an interview a while back between Tim Ferriss and someone who had tried CGM for fun/research. One thing he noticed was the huge impact a short walk after a meal brought down his blood sugar levels. Tim then mentioned he experienced the same thing and that there is a saying in China, something to the effect of, "take 100 steps after a meal, live 99 years." This also linked up with something I had looked up a few years ago when I noticed that I always saw families of Indian decent walking around neighborhoods, but never anyone else. I looked it up, and founds there is a word in Marathi of taking 100 steps after a meal. (https://en.wikipedia.org/wiki/Shatapawali)

It seems there has been this age old knowledge that taking a short walk after a meal is really good for you, which somehow got lost in some/many cultures. My parents would always say they had to sit after a meal to let their food digest... it never really made sense to me. My grandma, on the other hand, is 103 and gets pretty upset if people try to stop her from walking after a meal (or whenever she wants). We always just thought she liked walking, but maybe there is something else driving her, it seems to have worked out for her. It was very interesting to hear the CGM back up some of these practices that have likely been going on for hundreds or thousands of years.

I have been wanting to try one. This approval opens up the door. I think seeing something like this with my own eyes, with my own body, with actual numbers, would have a bunch bigger impact than some anecdotal stories from others and nice sayings which align.

It looks like there is some research being done in the area as well.

https://link.springer.com/article/10.1007/s40279-022-01649-4

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8912639/

Re: FDA clears first over-the-counter continuous glucose monitor

#255
I'm happy for those who have been helped by these devices.

The FDA approval is only a revelation to the extent that the hidden truth of the extant prescription CGM market is poor data veracity combined with high catastrophic failure of the devices under manufacturer warranty in some patients.

It's difficult to know for sure the size of the patient cohort impacted here since these numbers are not made public. If the market functioned transparently, this knowledge would be of great benefit to consumers.

Given the proprietary nature of these organizations, and the fact that they spend lots of money on lobbyists and lawyers to maintain the status quo, I'm not expecting this to get better, at least in the United States. This leaves the hope that the EU or elsewhere may be more aggressive in regulation, as they have demonstrated recently around Apple and Google.

LSS: there's a ton of room for competition, cooperation, and innovation in CGM's and their slowly evolving ecosystem of software, smart phones, and smart watches, particularly in open source where hacks frequently work around the proprietary limitations in software, i.e. information devices that have little to do with telling time save for putting a date/time stamp on their event stream which is nowhere near the 5 V's of big data in volume, velocity, or veracity.

The two leaders in the space, Dexcom and Abbott both fail at a high rate with some individuals, such as me. Turns out that at the edges, adipose tissue and its interstitial fluid are a poor proxy to plasma blood glucose in some individuals. This is likely due to fluctuations in the composition of that tissue during times of fasting: exercise and sleep.

Sadly, the price of admission for my family has been high given that no one has slept normally for five years with the screeching alarms nightly at 3 AM, which are not adequately configurable. The design failure here is clearly driven by liability.

It's worth considering that the brain's default mode network (DMN) is impacted by glycemia. This has been demonstrated via an fMRI lab at Harvard via Nicolas Bolo, et al using a small cohort of diabetics.

The leap from there to what families of diabetics have known intuitively for decades may be phenomenological, but it isn't difficult.

Put simply: diabetic mood swings may not give rise to psychosis, but the mood dynamics of glycemia have been clear for almost as long: a spectrum from hypomania or nightmares induced by hypoglycemia to hyper compulsivity or depression induced by hyperglycemia.

I'm not certain that a researcher or clinician like Bolo exists to put data behind these glycemic mood associations, but speculatively, the relationship is clear to me from a subjective metacognition perspective, as someone who's been T1D for ~50 years and also has an HbA1c below the diagnostic threshold for T1D and routinely stays functional with accurate plasma BG It's worth noting that hypoglycemia itself is a dynamic range, not a constant, and is frequently lower for people who have eaten or trained on the ketogenic spectrum, i.e. ultra marathon runners like Zach Bitter.

My experience has been that the feelings associated with hypoglycemia can be paradoxically awful at BG=80 and no problem at BG=40. If you've never eaten a half gallon of ice cream yourself with no signs of obesity, then you may not understand the zen state it takes to overcome this "beyond hunger" that's immediately familiar to any experienced diabetic on earth, while recognizing that that problem does not occur naturally with the disease. It's the result of insulin overdose, carbohydrate under-supply, or both.

FWIW, Microdosing carbohydrate may be key.

I believe the first use of the term in science was actually in glucagon, IIRC, i.e. the need for yet another syringe of glucagon in emergent insulin pumps that would go beyond the current crop of devices that are near autonomy, but may inadvertently overdose or underdose the patient due to the poor veracity of CGM sensors across the board and the hybrid closed loop devices which dose based on CGM which may be demonstrably inaccurate on occasion to the tune of several hundred points off high and low.

I have n-of-1 empirical evidence of this given the fact that I wore several insulin pumps for twenty five years and used multiple CGMs over that time, some concurrently. All were what we call, "shipping the prototype". Fortunately, beyond Therac 25, that was not an option in other medical device markets; certainly not those under FDA oversight.

Re: FDA clears first over-the-counter continuous glucose monitor

#256

It's worth mentioning that in Canada, you do not require a prescription to get a CGM. However only the Abbot Freestyle Libre series is available here. It cost ~$100 and last 2 weeks. I've found it to be mostly accurate. Placing it on the back of the arm was always a problem for me, it was constantly getting knocked/pulled, and otherwise disturbed. I had to buy adhesive patches that covered the entire unit. I later di…

Can you give the elevator pitch on why someone should get one?

With a CGM you always can know what your instantaneous, average and trending blood glucose readings are. With a test-strip you know your instantaneous reading are. With a test strip, a pad of paper, a calculator, a calendar, a watch, and a good enough memory to take reading 100+ times a day you can get the same results.

With the test strips, I measured myself AT MOST, 7 times a day. Often just once or twice.

THAT is what makes them worthwhile. It keeps measuring so you don't have to.

One helpful thing that I don't worry about: Low blood sugar alarms. Hypoglycemia is a real concern, and just as serious as hyperglycemia. A CGM will alter you when your sugar gets too high OR too low.

I'm poor. I can't afford a CGM anymore. So I have been going months now without measuring. Because I keep forgetting. A CGM doesn't have that limitation.

I was really hoping that Apple was going to announce a CGM. I avoid the Apple ecosystem, but I would have invested in that.

Re: FDA clears first over-the-counter continuous glucose monitor

#257

Earlier quoted context omitted.

Can you share a little about the "additional labs" you did? I wore a CGM for about a month. Also found that my glucose numbers were not nearly as good as I would have expected, especially considering that I'm quite active and not overweight. But it's the "what next" that I'm stuck on.

Check out Peter Attila's book. He has a couple chapters on metabolic syndrome that should be helpful.

I've read Outlive (and am a big fan of Peter Attia in general), but there's really not much there besides "exercise more, eat better".

I was on strict keto for a year, with daily blood tests to monitor ketone levels. My fasting glucose would still be above 100 often enough. Even a moderately sized carb-heavy meal can send my BG above 200 (even after being off of keto for a few months).

Maybe if I paid the $2500 for his "Early" program that details all the labs he does I might get some insight, but that is clearly priced for someone outside my tax bracket.

Re: FDA clears first over-the-counter continuous glucose monitor

#258

Earlier quoted context omitted.

Before I got cancer, I had one through Levels, and it was informative. Dessert is much worse than I'd thought. Rice, too, including brown rice. I remember eating some biryani and a small bit of naan at an Indian restaurant and thinking that I'd been pretty healthy, only to see a spike of like 80.

I saw an interview a while back between Tim Ferriss and someone who had tried CGM for fun/research. One thing he noticed was the huge impact a short walk after a meal brought down his blood sugar levels. Tim then mentioned he experienced the same thing and that there is a saying in China, something to the effect of, "take 100 steps after a meal, live 99 years." This also linked up with something I had looked up a few…

That's fascinating -- you know how your body sometimes manifests a craving for a food when it "knows" that you're deficient in some nutrient that food will provide?

I get the same feeling (of my body directing me to take some action) but it's not after meals, for me it's after having more than one beer. After 2-3 beers I want to go walk around the neighborhood for half an hour (and it's a bummer when the neighborhood is not pedestrian-friendly).

Re: FDA clears first over-the-counter continuous glucose monitor

#259
I've been wearing one for 6 years straight and wrote a post back in 2018 when I first got one. As someone who lives with Type 1 diabetes its been one of the absolute biggest game changers for my health

https://blog.steady.health/the-wearable-that-changed-my-life...

I also started a company focused on CGMs which was too early and didn't work. Maybe its time to try again? :)

Re: FDA clears first over-the-counter continuous glucose monitor

#260
post #3

I'm T1D (insulin-dependent). I used a Dexcom for a couple years a while ago, back around the G3 through G5 era or so. I ended up stopping using it because my diabetes is very well managed, and I found it didn't make a huge difference to my management. With my insurance, each new sensor every week cost about $50, and would fail in various annoying ways: sometimes it would just stop working in the middle of the week, o…

The plastic waste issue is one of the first things that usually comes up around this topic regardless of who you ask. It's such a shame because it's not like you have many options unless you're comfortable going without sensors.

All my diabetes stuff is free, in my country. But it must be shipped to my house in Quarterly deliveries.

Shipped in several boxes, each filled and wrapped. then the GCMs, strips, refills, pump connectors come in their own boxes. Some per ten, some single. Each sub-box has several booklets with instructions and safety guidelines. Each unit is individually wrapped in plastic, paper. All of them are single use. Even connectors and rods.

Our combined household has less waste than my insulin therapy produces. One single insulin therapy produces more plastic, paper and wrapping weight than what my wife and I produce together on everything else.

It's utterly insane.

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