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Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

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Re: Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

#251

Earlier quoted context omitted.

> Evaporation of nondistilled water will leave mineral deposits behind This is true, but it will take weeks or months, depending on your water quality, and is easily cleaned if you know how.

Days in seattle

OK. I realize tap water composition vary.

I normally use distilled water, but if I'm traveling and don't have it handy, I'm not losing sleep over using tap water 1-2 nights.

Re: Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

#252

Earlier quoted context omitted.

Ever fallen asleep on the shitter? Or just suddenly out of nowhere an extremely strong urge to sleep?

I fell asleep in the middle of conversations a couple of times...

This could be sleep apnea. Do you snore a lot or have people noticed not breathing for periods during your sleep, causing you to wake up? Ask an SO or something to keep an eye out if you can and tell you if they notice it.

Re: Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

#253
post #141

I was using a CPAP machine that I couldn't see the data nor extract it to use with SleppyHead. It was awful because the appointments with the doctor were 6 months apart and they were basically about a lot of leak detected by the machine and let's try to adjust it and see in 6 months if it was fixed. Awful. Almost 3 years later I requested another sleep study because I was done with no progress. The study found out th…

yeah, I was wondering whether this article applied to only the older manual adjusted CPAP machines vs. AutoPAP machines.

Re: Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

#254
post #65
post #23

I have to adjust my own pressure as well, since I can't afford to do another sleep study (American Healthcare rocks!). The biggest difference in my sleep came from when I purchased a machine that auto adjusts based on what you need, so no one could lock me out from getting the best healthcare possible.

I know I suffer from sleep apnea (poor sleep quality, relatives have noticed me stop breathing for brief periods while asleep, loud snoring) but I literally cannot bring myself to get a sleep study done because I know it's not going to be cheap, and to top it off I don't even know how expensive it's going to be in the first place. It's not like I can't afford to pay either, I do have some money stashed in my HSA but…

You can get a used CPAP from Second Wind:

https://www.secondwindcpap.com/

Or you can sell it if it doesn't help you.

If it's an auto-adjusting machine, then you don't need the sleep technician either. You can just start at a lower pressure and look at your data and then see if you need more.

Re: Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

#255

Is there any cheap way to get a CPAP evaluation and device? I’m in startup grind mode and just don’t have the extra funds right now but I’m curious if this is why I feel lethargic all the time.

It's pretty hard to do a startup with sleep apnea (I know from personal experience). Take care of your health first.

Re: Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

#256
post #240

Earlier quoted context omitted.

I don't know what the statistics are, but they definitely tried this with me. Aside from the usual sleepiness and confusion, sleep apnea can also cause anxiety. (No wonder, you're basically running on cortisol by the time it gets bad enough to notice.) I don't fit the standard profile for someone with sleep apnea, so they pushed anxiety meds pretty hard on me. Had to insist on a sleep apnea test.

Yeah, that's what Im scared of. I personally have a lot of the symptoms. I have extremely low attention span, awful memory, I wake up 5 times a night, weird dreams, can't focus at work, can't keep track of anything for more than a few minutes... Talking to my doctor and going through my health history, he immediately ruled out sleep apnea and started suspecting ADHD and such. While it definitely could be that, for th…

That sounds a LOT like sleep apnea. I'm not sure how your doctor could _possibly_ rule it out without a sleep study (it's pretty much impossible -- he would have to confirm any potential normalcy by watching you sleep and breathe).

Re: Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

#257

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I've slept long into a power outage and woken up with a headache and significant disorientation and my mask still on. Really upsetting. And with an AHI off the charts, I may very well die without one.

Might be worth investing in an Uninterruptible Power Supply for it if you haven't already.

There are CPAP batteries.

Re: Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

#258
post #149

Earlier quoted context omitted.

Have gone through 3 sleep studies. No drugs were offered and I never got to sleep. You would be fully within your rights to decline any such offer and they wouldn’t give a shit anyway. Given your sleep routine I promise the study would be pure hell. They are for me. But I need that APAP.

See! You get it! If I felt I had an urgent problem I'd just deal with the study, but "feeling tired during the day" is very, very low on my list of complaints. I sort of feel like I get away with murder, biologically; I go to sleep at 1AM and get up at 7AM and do just fine. On the other hand, my wife tells me I snore and randomly stop breathing, so I have reason to believe there's something going on.

It's a PITA, that's for sure. There were no drugs in mine. But I reasoned that it's only 1 night. I chose a time where I didn't have work the next day. No big deal, it's not like you have to do it for a month straight. Do you not get any time off work at your job?

Re: Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

#259

Earlier quoted context omitted.

there is just no way I'm doing a sleep study As others have already explained, you can now do an in-home study. Not nearly as good as when you're all wired up in the sleep center. But still good enough to get a general indication of how you are doing. Okay, you still resist that, so ... How about going to bed, for one night, with a small, inexpensive, device on your finger? Viz. a pulse oximeter. Surely you can handl…

Could I take results from a pulse ox to a random urgent care clinic doctor and get an RX for an APAP? I would totally do that. I'm actually totally fine with paying out of pocket. (I'm not really that resistant to doing an in-home sleep study, for what it's worth.)

No.

For the sleep study, you need a chest band, a nasal cannula, and a pulse ox.

They need to know how much/how deeply you are breathing, and correlate that with your oximetry. The main thing they are looking for is central apnea, where your body stops trying to breathe. PAP doesn’t fix central apnea, because it’s not obstructive, and in fact it can CAUSE it, especially in people who have had obstructive apnea or pulmonary disease for a long time.

You almost certainly need to see a sleep doctor to get a prescription.

Re: Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

#260
post #132

Earlier quoted context omitted.

I did my sleep study when I was 24. There were no drugs involved. It's just a bunch of sensors taped to you while you sleep with a camera watching you. Bit odd of an experience, but nothing that should concern you much.

My understanding is that if you're not going to fall asleep in the setting of the sleep study, they'll Ambien you out.

They don’t really need all that much data. An hour or so of solid sleep will give them what they need.

The full Monty study is pretty bad, with ECG wires all over your body and EEG electrodes all over your scalp. Nobody gets much sleep, but again, they only need a little data, and most people manage to fall asleep eventually,

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