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Couple pay >$800k for a gene-editing therapy for their daughter. She died.

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Re: Couple pay >$800k for a gene-editing therapy for their daughter. She died.

#241

Post by kazinator »

Danox wrote: post #213
kazinator wrote: post #184

Earlier quoted context omitted.

Is that even legal? Can a bunch of people decide to go ahead with performing some procedure that has a 1/3 chance of killing the person, whose life is not in danger if it is not performed? If that person dies, that's seems like murder.

Nonsense easy to say if you’re not in that position, there are many procedures that are done today that we take for granted, and almost every one of us if we live long enough, will face the doctor telling us that there is nothing to do, the only chance you have is a Hail Mary and even that will only prolong your life a short while but it won’t fix the problem. Penicillin, antibiotics, and many vaccines have only come…

It seems clear from the grandparent comment that this was not a life-saving procedure. Operating on someone for a non-life-threatening reason where they have a 1 in 3 chance of dying according to a documented prior reaction to anaesthetic, is akin to attempted murder.

You might as well tie them to a post and shoot an apple off their head with a rifle from 50 yards.

Re: Couple pay >$800k for a gene-editing therapy for their daughter. She died.

#242

Post by itishappy »

schainks wrote: post #188
itishappy wrote: post #107

Earlier quoted context omitted.

> The lesson for me is that you must advocate for yourself and your loved ones in the medical system, because doctors will not do it for you; they may not even perform the most basic risk assessments. And you have to try to quantify risk yourself, because doctors will refuse to give you the slightest hint of any number attached to risk (I know, I've tried many times). Doctors vary wildly, and that's part of the issue…

> If there are 10x and 0.1x engineers, you bet there are 10x and 0.1x doctors. This is a false equivalency, as the 10x engineer is measured differently than a great doctor. A 10x doctor in your analogy should mean "this doctor is least likely to kill you during surgery", or "is better at following checklists". The "best" doctors I've met have off the charts systems analysis skills, and they were in all kinds of speci…

This applies to engineers as well! The ability to connect specialties is what separates the outstanding from the great.

Re: Couple pay >$800k for a gene-editing therapy for their daughter. She died.

#244

Post by pvaldes »

kazinator wrote: post #184
senderista wrote: post #76

Many years ago I was attending pre-surgery for a hip replacement surgery for my sister, who had known severe reactions to anesthesia (actually required a tracheotomy for a previous reaction). The anesthesiologist asked to speak to us privately and informed us that in their opinion, my sister had maybe a 1/3 chance of not surviving the surgery. They also mentioned that this was a breach of protocol and they could get…

Is that even legal? Can a bunch of people decide to go ahead with performing some procedure that has a 1/3 chance of killing the person, whose life is not in danger if it is not performed? If that person dies, that's seems like murder.

All that we know is that the doctor carefully guided the patient out of the intervention, flashing a value that nobody had introduced before in the conversation. Is unclear WHY without more information.

The fair possibility is that it would be not the best choice for the patient,

But other possibility could be a schedule problem with the doctor holidays for example.

Or that it would be too expensive for the hospital

Or that they didn't have the materials or the experience

To go forward with this operations the interests of the patient, the doctor and the hospital must match. Sometimes only two parts benefit from it.

Re: Couple pay >$800k for a gene-editing therapy for their daughter. She died.

#246

Post by throw098422 »

drekipus wrote: post #245
Departed7405 wrote: post #218

Earlier quoted context omitted.

Source ?

Israel

There haven’t been “millions of deaths” in Israeli conflicts, even if you combine all sides since the start of its existence.

You are just looking to derail yet another unrelated conversation into a Middle-East flamewar.

This happens often on threads that are negative about China or Russia.

Re: Couple pay >$800k for a gene-editing therapy for their daughter. She died.

#248

Post by [deleted] »

gamblor956 wrote: post #240
a_e_k wrote: post #198

Earlier quoted context omitted.

"What do you call the person who graduated bottom of their class in medical school?" (At least that's how I've heard it phrased before.)

A passing grade in a U.S. medical school is a 70% and they don't grade on a curve.

[deleted]
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