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The year I didn't survive

bessstillman.substack.com

241–250 of 276 posts

Re: The year I didn't survive

#241
post #19

Earlier quoted context omitted.

I was reflecting just yesterday how, as we get older, gradually more and more of those who have been part of our sphere for significant portions of our lives (whether direct acquaintances, or just people who we know because of their public actions) begin to leave us, and how everyone who passes, whoever they are and however well we knew them, leaves a space that can't be filled. I'm truly sorry for all that you've be…

> I'm truly sorry for all that you've been through and I hope you find comfort. Reading through your other post it seems likely to me that nothing you said or did could have made any difference. Yeah I know, that's not really why I feel guilty, at least not exactly. I feel guilty because I noticed signs of someone who was suicidal, and explicitly chose to not do anything. Even if nothing would have changed, I still t…

> "I mean, I realize that no good comes from feeling bad about myself over it"

I have listened to a lot of Dr David Burns' podcasts[1] (and recommend them) and there is a relevant part here which I will try to explain enough to tempt you to look at it more, in the hope it helps[2]. He observed that patients came asking him to make their bad feelings go away but the more he tried, the more they held onto the bad feelings ever tighter. After years of this, he came to understand that there is good which comes from feeling bad and helping the patient see it makes them realise they don't want to get rid of the bad feelings after all, only tone down the intensity.

The crux is: what kind of person would notice someone feeling suicidal and do nothing and learn the person suicided and then not feel bad or even feel good? Someone with no compassion who doesn't care about other people's suffering, someone with no moral compass, someone who takes no responsibility, someone who doesn't value living over dying, someone who thinks their actions in the world are meaningless, someone with no agency who needs other people to solve everything for them, someone who holds themselves to very low standards, someone selfish who doesn't want to help other people, someone cruel, etc. etc. Some of these things may resonate with you and those reveal things you value and like about yourself:

- feeling guilty shows I care about other people suffering. ("is that important to you?")

- regretting my choice to do nothing shows I am introspective, reflective, striving to do better. ("is that something you value?")

- wishing I had tried shows I value being helpful instead of selfish. ("and do you value that?")

- feeling that it's a bit my fault shows I want to take responsibility for my behaviour and don't shirk it and seek to blame everyone else. ("is that a trait you respect in others and want in yourself?")

- etc. for each of those things (and more).

OK if you can magically stop feeling bad at the push of a button, but the monkeypaw cost is that you become the uncaring, nihilistic, selfish, lazy, ignorer-of-suffering, who never reflects, lives on autopilot, never wants to do better... do you push the button? After finding some positive sides of your specific feelings which are things you specifically care about, you stop wanting to get rid of the feelings and grok that the good which comes from negative feelings is them protecting traits you value and want to keep[3]. Having negative feelings is not the problem, having them dialled up to 11 is the problem. You want to keep the feelings around as the guiding angel on your shoulder, just less intense. More of Dr Burns' work is on the therapy methods to make that change and dial the intensity down to a level you think would be a reminder, a guide, not a tormentor, but the insight in seeing principles you really do value hiding in the silver lining is sometimes enough to relax the feelings by itself.

> "It feels like the universe was giving me a character test, and it feels like I failed it. I would like to think that when push comes to shove, I'd do the right thing, at least in regards to someone's life being on the line, but I guess at some fundamental level that's simply not true, or at least it wasn't in 2021."

We aren't born perfect, and then fail the tests so the universe can laugh at us failing. We are born sinners and the test-driven-development helps us develop. It wasn't true in 2021 and the bad feeling is trying to be an adjustement which makes it more likely to be true from then on, but stuck on hard-lock. You're wishing to get rid of the bad feeling, the more you push it away the more it gets louder to try and make you hear it. Be guided by it, agree with it, then it's job is done and it can quieten down.

[1] https://feelinggood.com/list-of-feeling-good-podcasts/

[2] (Please excuse me being lecturing; it's all I know how to write. It has a nice 'understanding and debugging a system' feel which I like and keep hoping will resonate on HN)

[3] """During this phase, the therapist, paradoxically, does NOT try to “help” the patient, but instead assumes the voice of the patient’s subconscious resistance, helping the patient suddenly “see” why she or he actually should NOT change. Paradoxically, the moment the patient “gets it,” there will be an illumination, and the patient will suddenly lose his or her resistance and become way more open and collaborative. This what makes the rapid recovery in TEAM-CBT possible. The patient also discovers, paradoxically, that his or her symptoms, like depression, hopelessness, and feelings of worthlessness, anxiety, or rage, are NOT the expression of what is wrong with him or her, like a “mental disorder” or “chemical imbalance in the brain--but the manifestation of what is right with him or her."""

Re: The year I didn't survive

#242
Love = loss. If you think that equation requires less from either side, you have not felt. To love, you have to lose. Lose yourself, and all that currently holds you. What are you waiting for?

And when your love dies and leaves you an empty husk, you can look back and embrace that loss that emptied you. Don't hide from love/loss. Life won't leave you alone, life has infinite love and loss.

Re: The year I didn't survive

#243

This is ageing, for most people, unless you're one of the few lucky ones. Death and destruction is the outcome of age, on a molecular, cellular and mental level. The foundational issue addressed by religion, because how else to deal with the unfathomable dread of "nothing gets really better, ever". Take solace in the fact that this is true for most of your fellow creatures. The concept of a happy ending, living happi…

Very well said.

Re: The year I didn't survive

#244
post #167

My son had cancer during COVID, though he was fortunate enough to beat it into remission (with the help of a huge care team). I was active duty military, and he is also non-verbal and autistic. The things she talks about, how focused she was and how hard it is to do any of that now, I've been experiencing exactly the same things. I find it hard to do anything, put anything together, etc. after 3 years of managing his…

My wife died of ovarian cancer in February of 2020, right as covid started. It felt like I was running on adrenaline and cortisol for two years. Scrambling to find anything to help, steadily applying the steel tip of my proverbial boot to the backside of the healthcare industry, doing home IVs, changing ostomy bags, making sure meds were straight, trying to gently urge her to eat something at all, deep diving into th…

It's impossible though. Accepting something like that. If it's your own death I think that maybe you can eventually accept its coming. But if it's your wife? Christ, I'd be searching the earth non stop too.

My sister died of ovarian cancer right at the start of COVID. My big sis, 1 year older. Even though the oncologists said early on that it was extremely aggressive and wasn't responding to treatment, nobody in the family could process it. Oddly, except myself. I live an hour away from them and I think that separation allowed me space to process the inevitable. I tried to be that person who took care of the emotional needs of the family, and my brother in law. But I didn't have a single person to "confide in" because nobody accepted that she was going to die, including her. She had just had a baby a few months before (IVF, and tbh I'm wondering if that process kicked the cancer off). She had to look at her tiny baby and imagine him growing up not knowing her. You could see it in her eyes when she looked at him. Yet she couldn't bring herself to make little recordings, write emails or notes to him for when he's 12 or whatever. That's how much denial she was in - she denied him that sense of what it would be like to have her talk to him.

The first to give up hope was her husband actually. I suppose because he was closest to the front lines, and saw the toll it took on her, the constant downhill. And the dozens of other things that aren't cancer but are part of the depressing array of events like pleural effusion, blood clots, and the digestive system eventually getting blocked off with tumors. When he finally admitted to me that it was terminal, she had less than two months left.

My lovely wife is sitting across the table from me now wondering what "heavy stuff" I'm typing. I couldn't imagine being able to accept losing her.

I hope your life is recovering.

My brother in law met a lovely woman just over a year ago. She has two kids and he had his one. They make a great family unit and she's good for him. Even in practical ways like taking turns bringing the kids to school or sports, covering for him when he had to work late. My family get along with her too. I know it still hurts him to think about what he lost but he's very much a "get on with life" person, so he gets on.

Re: The year I didn't survive

#245
post #168

Earlier quoted context omitted.

I’m so sorry for your loss. Something did change, and i think it’s good you feel that. Someone I used to work with, their wife was a professor at Rochester university and her research was around happiness. She would tell me that our baseline happiness in life is virtually constant (on large timescales, we all have good/bad days etc), there’s not much we can do to alter it in adulthood to shift it. There were a few ex…

>Someone I used to work with, their wife was a professor at Rochester university and her research was around happiness. She would tell me that our baseline happiness in life is virtually constant (on large timescales, we all have good/bad days etc), there’s not much we can do to alter it in adulthood to shift it. If you're someone who struggles with chronic depression this statement is extremely demoralizing. But it'…

My wife has had anxiety and depression her whole life. I have been carefree and happy all of mine. I've been bullied at school, broke to the point of hunger after college in the 90s, and lost my sister to ovarian cancer 5 years ago. And aside from dealing with "in the moment" problems, my brain is always in freewheeling happy mode. Whereas my wife, no matter how "right" her day went, tens to be negative and beat herself up. It's how we're wired. She did therapy and she thinks that 90% of it is bullshit.

However, in the last few years she said that her "negative voices" (not actually schizophrenia, but her own nagging, disrespectful, negative narration) have gotten under control through CBT. She says it's something she needs to work at daily, though, because her brain seems to be wired that way. And she's controlling it and staying healthy without any meds.

So while I think there's something in that anecdote I don't think it means that you can't have a good life.

Re: The year I didn't survive

#246

Earlier quoted context omitted.

COVID coincided with my daughter being born, my parents dying unexpectedly and my partner having complete mental breakdown all while I was working a very stressful job with long hours and high stakes. Years have passed and I still feel like the battered husk of the person I was. I have good days and bad days but I'm slowly coming to accept I won't ever feel the confidence, the capability or the boundless reserves of…

Something you're never told when you're young is that life WILL take things from you, will never return them, and you'll never be the same. You don't know how much, when, how or why, but it will happen. I consider someone blessed if they make it to middle-age largely "intact." When you're young and unencumbered and largely undamaged you need to use that time in any way you can; inevitably you'll end up "walking wound…

I don't want to invalidate your feelings but I've had the opposite experience. I've been chronically depressed and have had multiple stays in psych wards but I'm finally starting to heal. I'm able to experience this pure joy that I haven't felt since I was a little kid. My life is still very difficult but I haven't felt this alive since elementary school.

Re: The year I didn't survive

#247
post #58

Sisyphean is the word I’ve come back to a lot myself since my wife took her life on November 6, 2024. Feeling like I’m now trying to live for both of us, grasping at ways of honouring her memory despite the incredible love we had being unable to “save” her, and somehow not at all myself anymore, but having to keep moving forward feels hopeless beyond belief. I lost my dad suddenly just two months prior, and my grandm…

I sympathize. I won't offer platitudes. I find those don't lessen grief. My son took his own life on February 1st, 2023. I feel like someone took a huge melon baller and scooped out the middle of my chest. My wife and I had been trying to get him back on his feet for two years at that point. He died quietly about 10 feet from me. The family cat kept trying to get me to open his bedroom door. I kept trying to respect…

I can only imagine such a loss based on my own, and from the many conversations I’ve had with my wife’s mum as well, trying to be the best supports we can for each other.

I would describe my wife similarly, it sounds like. Kind, value-driven, cared too much, was the biggest personality in the room but somehow always made people feel seen and heard. But also deeply troubled and hid a lot of it, even from me I’m discovering.

Sending love your way as well. I agree, platitudes or things like “they’re in a better place now” or “looking down on us” make me only feel worse, but genuine compassion does help feel like the weight isn’t on our shoulders alone, even for a little rest.

Re: The year I didn't survive

#248
post #58

Sisyphean is the word I’ve come back to a lot myself since my wife took her life on November 6, 2024. Feeling like I’m now trying to live for both of us, grasping at ways of honouring her memory despite the incredible love we had being unable to “save” her, and somehow not at all myself anymore, but having to keep moving forward feels hopeless beyond belief. I lost my dad suddenly just two months prior, and my grandm…

You're still in the valley. It does seem Sisyphean and it will for ahwile. I went through this in 2021 and it took a few years to get to the point where it doesn't feel hopeless. You won't be the same person after, but in some ways that's good. Highly recommend grief counseling. Feel free to reach out if you need help from someone who has been through it.

Thank you. I’m definitely still very “in the valley” since it’s only been a few months, but I am in counselling which helps. And I’ve lost close friends to suicide and addiction in the past, so going through those before has helped me not feel quite so lost, at least knowing how to be gentler with myself this time.

Re: The year I didn't survive

#249

My son had cancer during COVID, though he was fortunate enough to beat it into remission (with the help of a huge care team). I was active duty military, and he is also non-verbal and autistic. The things she talks about, how focused she was and how hard it is to do any of that now, I've been experiencing exactly the same things. I find it hard to do anything, put anything together, etc. after 3 years of managing his…

Throwaway: when my daughter was 4, she took a bath. My wife was in the living room doing laundry, literally 5 steps away. At that point, my daughter had just finished swimming class 3 months before. I was at work. When she called "mum!", my wife said: "Coming" and folded one final shirt. When she then entered the bathroom, my daughter floated in the tub, face down. No breathing, no sign of life anymore. My wife reviv…

As a child aged five, I broke through the ice and fell into a pond that had frozen over. The Kindergarten teacher was both alert and quick thinking enough to get me out fast. I never remembered more of the event that a) I wore a velvety-black-colored coat made from corduroy and b) that I woke up in the ambulance soggy wet as was the teacher next to me.

The rest of that event - why I walked away from the group, whether I was called back or just lucky, or even what I thought or felt when I went into the water - all gone. Can't remember. Only that afterwards, it felt odd how panicy mum was, and that she immediately insisted on swimming lessons.

So when I was five, this was an experience like "any" - How was I supposed to understand that I had a close brush with death, or what that even meant ?

(I wish your daughter a long and happy life, and may neither her nor anyone have to experience the feelings that you did, or my mum)

Re: The year I didn't survive

#250

not intending to be rude but this probably doesnt belong on hacker news. I come here to read about tech.

I couldn't disagree more strongly. Her husband was a frequent HN user, and their story was known here. This is a continuation. I love seeing the human side of HN. This is an extremely unique perspective, a beautifully written but horrific snapshot of a woman's life when her husband - a man like many of us - dies prematurely while she's pregnant. It's relevant in ways that another LLM article can't be.

whatever dude ive got like three major deaths in my family and more coming. this is just poetic literature. this is HACKER news not lit girl orange reddit.
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