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Our fridge just emailed us to say we opened its door too many times

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Re: Our fridge just emailed us to say we opened its door too many times

#241

Post by freedomben »

deelowe wrote: post #207
hellbannedguy wrote: post #189

Earlier quoted context omitted.

In this case I'm on the fence. Say you are not breathing, and the machine is working, but not up to manufacture's specs. They have the data. They should inform you of a malfunctioning machine? Since they have the data, it's incumbent on them to inform you of the state of the malfunctioning cpac machine? If they don't get back informing you of a faulty machine, a lawyer could subpoena those cell phone records/data? An…

You can make this argument about literally anything. Should your tires contain GPS trackers and share that info with their manufacturer on the off chance that you sped, drove on the wrong surface, or there was a manufacturing defect that could possibly lead to an accident? This shit needs to stop. It's getting out of hand fast. In just a few years, literally every powered device we own will be logging video, sound, l…

I mostly agree with you, but at the same time, we are far from a "free and unregulated market." There are mountains of regulations to comply with, and more than one startup idea I've had to disrupt this type of shit never got off the ground because I would have had to spend months of my time just reading rules or hiring extremely expensive consultants.

I think the problem is not necessarily lack of regulation (although there are consumer protection/privacy rules that we badly need), it's that the big companies are the ones writing the regulation and conveniently it makes it really hard for anyone to disrupt or challenge them.

Re: Our fridge just emailed us to say we opened its door too many times

#242

Post by Aerroon »

caymanjim wrote: post #203
PrivateButts wrote: post #186

Earlier quoted context omitted.

I was told about the cellular connection by my respiratory therapist. Mine even has an app that has achievements for proper and continuous usage. It also goes into pretty good detail about what you're screwing up if you aren't getting good mask seal. Even got a call from my therapist after two weeks following up with me about the data he received. AFAIK this is what home medical equipment seems to be moving too. My d…

I like data. I would like to review all the metrics my medical device collects. I'd welcome an app to make it even easier to view. That's all pro-consumer. That can be done by storing data on SD cards; via a USB connection; via built-in Bluetooth or WiFi. It's an easily-solved problem, and with modern wireless networking, something that the average consumer can navigate without much trouble. Even for the most tech-un…

>At least the thing doesn't have a microphone on it too...

How do you know? If they're doing tracking where tracking isn't necessary and don't disclose the full extent of tracking under some penalty for lying, then maybe the machine does have a microphone in it? How would you know without taking it apart? It's not like the doctor or device manufacturer are trustworthy on the privacy front.

Re: Our fridge just emailed us to say we opened its door too many times

#243

Post by srmarm »

caymanjim wrote: post #140

I have a semi-related anecdote about surprises from devices. I use a CPAP. After a year, I went back to the doctor for a followup, and was asked to bring the SD card so they could review the data it collects. The device records the times and duration of use, various settings, and some metrics on breathing (apnea events, etc). I knew it recorded this stuff on an SD card. I brought the card to the appointment, but the…

It's a shame how much great technology will go to waste because businesses work against our best interests and pull shit like this.

Re: Our fridge just emailed us to say we opened its door too many times

#244

Post by mook »

PrivateButts wrote: post #186
caymanjim wrote: post #140

I have a semi-related anecdote about surprises from devices. I use a CPAP. After a year, I went back to the doctor for a followup, and was asked to bring the SD card so they could review the data it collects. The device records the times and duration of use, various settings, and some metrics on breathing (apnea events, etc). I knew it recorded this stuff on an SD card. I brought the card to the appointment, but the…

I was told about the cellular connection by my respiratory therapist. Mine even has an app that has achievements for proper and continuous usage. It also goes into pretty good detail about what you're screwing up if you aren't getting good mask seal. Even got a call from my therapist after two weeks following up with me about the data he received. AFAIK this is what home medical equipment seems to be moving too. My d…

> I'd be very interested in learning what it's collecting, and maybe someone living in a area with laws allowing users to request their data should follow up with them.

Depending on the model, OSCAR might support your machine: https://www.sleepfiles.com/OSCAR/ — it's been on HN before I believe.

Re: Our fridge just emailed us to say we opened its door too many times

#245

Post by beervirus »

lom wrote: post #128
beervirus wrote: post #110

I set up a raspberry pi thermometer in our freezer that would email me once a day with a temperature log (hourly averages), and also email me immediately if the temperature ever got too high. But dammit, I opted in for those emails! (It was a freezer full of the most precious commodity, breast milk. And it actually did save us one time when the freezer thermostat failed, so it was absolutely worth the hassle.)

Ha! Last time I tried putting a rpi into a fridge… for cooling - it broke because of the humidity :) Should’ve used the freezer.

Oh I only put the actual temperature sensor inside. Ran some thin wires out to the pi under the door gasket.

Re: Our fridge just emailed us to say we opened its door too many times

#246

Post by bavell »

horsawlarway wrote: post #181
caymanjim wrote: post #140

I have a semi-related anecdote about surprises from devices. I use a CPAP. After a year, I went back to the doctor for a followup, and was asked to bring the SD card so they could review the data it collects. The device records the times and duration of use, various settings, and some metrics on breathing (apnea events, etc). I knew it recorded this stuff on an SD card. I brought the card to the appointment, but the…

I agree that this is both invasive and a huge violation. My wife had pretty severe sleep apnea in the third trimester of her pregnancy, two experiences that make me think this practice needs to be nuked from orbit. 1. We properly read the manual for the device and adjusted the pressure so that it didn't cause problems with burping/ingesting air during sleep. Tissue gets softer in women as they near birth and the body…

This is really disturbing and it's disgusting how some companies out there act. We desperately need our leaders to address issues like this but they're all too busy pandering to and being lobbied by the very companies who are doing the abusing...

Re: Our fridge just emailed us to say we opened its door too many times

#247

Post by freedomben »

corobo wrote: post #236
MarkusWandel wrote: post #134

I recently bought a 32" 4K monitor. Two different models were at at that point inexpensive enough to tempt me. A smart one, and different brand, dumb one for $50 more. I bought the latter. I'm happy. The market decides, right? What is actually happening here? 1. Most people actually like this overdone gimmickry? 2. Most people think they will like it, buy it and then get sick of it? Thus people like me, who seek out…

I think it's more that people outside of HN don't really care about their privacy if it's not visibly being violated. From there it's cheapest and biggest wins

I talk to a lot of them about privacy, and nearly all of them do care. They just have no idea what's happening, and after I tell them, they have no idea how to stop it and give up. Happens every time.

Re: Our fridge just emailed us to say we opened its door too many times

#248

Post by interestica »

PrivateButts wrote: post #186
caymanjim wrote: post #140

I have a semi-related anecdote about surprises from devices. I use a CPAP. After a year, I went back to the doctor for a followup, and was asked to bring the SD card so they could review the data it collects. The device records the times and duration of use, various settings, and some metrics on breathing (apnea events, etc). I knew it recorded this stuff on an SD card. I brought the card to the appointment, but the…

I was told about the cellular connection by my respiratory therapist. Mine even has an app that has achievements for proper and continuous usage. It also goes into pretty good detail about what you're screwing up if you aren't getting good mask seal. Even got a call from my therapist after two weeks following up with me about the data he received. AFAIK this is what home medical equipment seems to be moving too. My d…

You should be worried, PrivateButts, about the inevitability of smart toilets.

Re: Our fridge just emailed us to say we opened its door too many times

#249

Post by deelowe »

freedomben wrote: post #241
deelowe wrote: post #207

Earlier quoted context omitted.

You can make this argument about literally anything. Should your tires contain GPS trackers and share that info with their manufacturer on the off chance that you sped, drove on the wrong surface, or there was a manufacturing defect that could possibly lead to an accident? This shit needs to stop. It's getting out of hand fast. In just a few years, literally every powered device we own will be logging video, sound, l…

I mostly agree with you, but at the same time, we are far from a "free and unregulated market." There are mountains of regulations to comply with, and more than one startup idea I've had to disrupt this type of shit never got off the ground because I would have had to spend months of my time just reading rules or hiring extremely expensive consultants. I think the problem is not necessarily lack of regulation (althou…

Are we still talking about tracking and sharing of user data? Because from I can tell, outside of very specific pii situations, it is largely unregulated today.

Re: Our fridge just emailed us to say we opened its door too many times

#250

Post by lotsofpulp »

dylan604 wrote: post #221
ggsp wrote: post #164

Earlier quoted context omitted.

> no one is monitoring diet, exercise, drug use, cigarette consumption, or other risky behaviors, and threatening to withhold treatment for non-compliance ... yet.

That you know of. All of this data is collected and made available if you are paying for things with a card. Hypothetically, insurance carriers could be seeing exactly what you buy, from where, and how often. If you have a gym membership (as shady as gyms are, it would not surprise me to learn they not only provide membership but attendance records as well), they can glean if you are active. blah blah, metadata is in…

Most people will gladly hand over this information to insurance companies in exchange for lower premiums.
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