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Tinnitus Neuromodulator

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Re: Tinnitus Neuromodulator

#231

Post by nswest23 »

tombert wrote: post #6

I've had tinnitus in my left ear for about six months now. I was hoping it was the result of an earwax impaction or something, but after having several specialists look at my ears, test my hearing, and getting an MRI to check for tumors, the overwhelming medical consensus of the cause appears to be "I dunno", and at this point I have given up on it being temporary. About 95% of the time, I can fairly easily just tune…

I am pretty sure I've had it my entire life and for a long time I just thought it was the background noise of the universe. Never bothered me till I figured out that wasn't the case.

Re: Tinnitus Neuromodulator

#232

Post by johnisgood »

posix_compliant wrote: post #229
johnisgood wrote: post #196

Earlier quoted context omitted.

So... what? Everything causes dependence one way or another. What is the point of a substitute to "use all the time". It even reads funny to me. I would like you to explain what you meant by that. And what would you recommend as a great substitute of benzodiazepines (that are effective AND safe to use at all times)?

Parent comment is right. I’ve used Lorazepam to treat tinnitus. It’s not worth it. In the long run it raises your base anxiety level. Currently I’m experimenting with Tizanidine.

That does not make parent right.

It might not be worth it to you, it might be worth it to someone else.

I would still like to hear about this substitute that is both effective and can be used "all the time".

Tizanidine causes "dependence", too, by the way.

Funny you mention Tizanidine, because that is what I want to try as well for my MS-related muscle spasticity.

Alprazolam works, but I have been using it for years and it would be great to finally get off of them. It does not last long either, and longer acting benzos don't work for me for some reason. I tried diazepam, which was supposed to be just perfect, but it did not work at all. :(

In any case, hoping tizanidine will work for me, we will see.

Let me know if tizanidine works for your tinnitus though, my mom has been "suffering" from it for a long time now.

Re: Tinnitus Neuromodulator

#233

Post by mjsabby »

tombert wrote: post #6

I've had tinnitus in my left ear for about six months now. I was hoping it was the result of an earwax impaction or something, but after having several specialists look at my ears, test my hearing, and getting an MRI to check for tumors, the overwhelming medical consensus of the cause appears to be "I dunno", and at this point I have given up on it being temporary. About 95% of the time, I can fairly easily just tune…

I got it at 39, still have it, you'll be fine.

Re: Tinnitus Neuromodulator

#234

Post by nozzlegear »

brianhama wrote: post #143

I suddenly lost the hearing in my left ear at the age of 24. One moment I was fine, eating a slice of pizza, the next moment I suddenly could sense something was wrong. I tried to stand up and walk, but my balance was gone. My ear felt full and there was a strange metallic echo. I waited about 24 hours and it hadn't gone away, so I went to the urgent care. By that time, just standing up was enough to cause me to vomi…

> One moment I was fine, eating a slice of pizza, the next moment I suddenly could sense something was wrong. I tried to stand up and walk, but my balance was gone. My ear felt full and there was a strange metallic echo. I waited about 24 hours and it hadn't gone away, so I went to the urgent care. By that time, just standing up was enough to cause me to vomit. I've had a pretty healthy life, so everything that was happening was rather disconcerting to me!

This mirrors what turned out to be the onset of my pulsatile tinnitus – especially the "strange metallic echo". I remember sitting at my desk listening to the radio when I noticed it sounded like the radio's speakers were slightly out of sync with each other. I took my headphones off and listened, and my coworker's voice sounded metallic and robotic, almost exactly like a dalek from Doctor Who.

By the time I got to the doctor (same day), the metallic echo had passed but I had that fullness feeling in my ear that you describe and my doctor couldn't diagnose. Long story short, I'm not completely deaf but I have reduced hearing and permanent pulsatile tinnitus in my right ear.

I've had regular tinnitus since I was a kid, and I've thankfully been able to adjust to hearing the sound of my own heartbeat in my ear at all hours of the day without too much trouble. But when I describe what it's like to friends and family, I like to joke that it's like the heartbeat in Edgar Allan Poe's The Tell-tale Heart.

> I am now 40 years old and have lived with being single sided deaf for half my life. Initially I didn't think much of it. I've slowly realized it has had a profound impact on my personality and sense of identity. I am much less social due to the difficulty I have hearing in group settings. Conversations are frustrating because it takes so much effort to hear the other person properly.

My reduced hearing has affected me more than I thought it did, and I've only come to realize it very recently. It's difficult for me to help my wife with her birding hobby because I'm always pointing in the wrong direction, for example. It also takes a lot of my patience not to get irritable when she's trying to talk to me while we're watching tv or listening to a book in the car, because I have a hard time tuning out things I can hear in my good ear and focusing on her with my bad ear.

Re: Tinnitus Neuromodulator

#235

Post by noefingway »

bsimpson wrote: post #80
guilamu wrote: post #23

Earlier quoted context omitted.

A message of hope. I got mine in my 30's too. The first week I thought I was going crazy, and this was the end of my life. I was shocked, I couldn't go to work for a whole week. I then saw a doctor who said to me: "Man, I've got tinnitus since 20 years and I barely hear it anymore. The more you accept it, the more it'll fade." A decade later, my own experience is exactly this. I accepted it as one of the body malfunc…

I've always been someone who hears high pitched noises that "normal" people don't. I'm also in my 30s, and I'm sure those "teenage alarms" in Japan would work on me. I was the one who would walk up to a CRT and turn it off when everyone else thought it already was. What helped me accept (and ignore) tinnitus was realizing that I had already grown accustomed to tolerating that sound indoors. When's it's something you…

I'm 73, had tinnitus all my life, I am used to it. Some days it seems louder than others. When I was 17-18 I worked as a stock boy at a JC Penney store. I used to hear this high pitched squeal near the front entrance. I mentioned it to my compatriots who responded "What squeal?" I always found a way to avoid the front entrance on my rounds. So yeah, I get the alarms

Re: Tinnitus Neuromodulator

#236

Post by xtiansimon »

tombert wrote: post #6

I've had tinnitus in my left ear for about six months now. I was hoping it was the result of an earwax impaction or something, but after having several specialists look at my ears, test my hearing, and getting an MRI to check for tumors, the overwhelming medical consensus of the cause appears to be "I dunno", and at this point I have given up on it being temporary. About 95% of the time, I can fairly easily just tune…

Have you had dental work recently? Do you have a stiff neck? I’ve heard from other here that inflammation from dental work caused their tinnitus.

Re: Tinnitus Neuromodulator

#237

Post by jamiek88 »

r2ob wrote: post #147

I've had tinnitus since 2018. I got used to it. it's not the worst thing for me. I'm 5'2" bald guy LoL If you're suffering from tinnitus, remember, at least you're not bald and 5'2" tall.

Well shorter guys live ~5 years longer it appears so you've got that going for you!

Re: Tinnitus Neuromodulator

#238

Post by OutOfHere »

mrblah wrote: post #140
OutOfHere wrote: post #101

Earlier quoted context omitted.

Even 80 mg of benfotiamine a day is too potent for me, giving me anxiety. 40 mg is more tolerable. I do take plenty of magnesium, zinc, and P5P. Be careful taking the basic non-P5P form of B6 because it risks causing serious neuropathy in the long term. Benfotiamine is more for managing damage from high glucose. I acknowledge your experience, but if your nerve damage is not from metabolic concerns, I am skeptical. Wh…

the older i get, and more in tune with my body i become, the more i'm thinking everything is connected to metabolism... it is, after all, the primary thing life does as it relates to energy. the b vitamins, and specifically b1 is a precursor/cofactor in almost every metabolic pathway. i only high dosed it for a couple months, just taking 150mg with ala daily now, but my tinnitus that i've had for 20 years is gone unl…

You seem like a good candidate to try lipothiamine.

As for ALA, I take the r- fraction form.

Re: Tinnitus Neuromodulator

#239

Post by manoDev »

mopenstein wrote: post #212
manoDev wrote: post #57

Earlier quoted context omitted.

I feel you. Here’s things you can try (in this order): - Cut stimulant use (coffee, energy drinks) and alcohol - Drink plenty of water - Check blood pressure - Talk to a dentist and check if you grind teeth or suffer from jaw stiffness - Supplement Magnesium (chelated/glycinate, 300mg/day) I’m ignoring issues of the ear canal (wax, secretions) since you mentioned it. Studies point to tinnitus being either caused by c…

Mine came on when I was about 12 years old and I'm convinced it was brought on by severe anxiety. At the time my life had changed dramatically. My parents split. Moved to an area adjacent to government housing projects, through which I had to travel everyday to school, and I was, by virtue of unfortunately being wrong color, beaten daily by gangs of hooligans. I ended up sneaking through a slightly wooded area like a…

Stress -> jaw clenching -> tinnitus.

Re: Tinnitus Neuromodulator

#240

Post by skopje »

My first reaction to this was, "this is dumb and annoying", and then I played with it for a few minutes and found a set of levels that were causing my symptoms to briefly go away. It still isn't perfect, but a combination of Steve Seq and Pulses High creates "gaps" in my tinnitus, where my brain seems to "forget" about it briefly and I don't hear it. But then it comes back a millisecond or so later. I don't think I could get work done with this on all day, but it has more effect on my symptoms than other websites I've tried. It's really interesting, like there are brief (millisecond) periods of no tinnitus. [I've had it in my left ear for probably 35 years (I played in a punk band in the early 80's with no hearing protection but it didn't show up until a decade later).]

Keep at it, I think you're on to something!

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