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How to deal with extreme physical pain

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Re: How to deal with extreme physical pain

#231

Post by rlonn »

kortilla wrote: post #122
darkerside wrote: post #108

Earlier quoted context omitted.

Just so you know, you're effectively complaining that people care about you too much. People can't put themselves in your shoes, but they try, and when they see you having a beer, knowing it could be bad for you, they try to support you in keeping away from it. I can see how it would get annoying. If you view it as love, instead of nagging, it might get a little less annoying.

That’s not “caring about you too much”. It’s not knowing what’s appropriate. As someone who had to follow a strict diet for a while, I know for a fact that the people who stuck their nose into my allowed indulgences did not care about me nearly as much as the people who actually cared and knew I was capable of managing my own diet.

If you meet an overweight person, do you begin conversation by telling them to eat less? If not, why don't you? They obviously get too much calories and may benefit from your advice. And they can always tell you to stop giving them advice if they don't like it.

Seriously, some people have no common sense and/or are just arrogant. Jumping into a situation where you have minimal information and assuming to know best is the hallmark of a fool.

Re: How to deal with extreme physical pain

#232

Post by PaulKeeble »

DoreenMichele wrote: post #158
ky3 wrote: post #83

Earlier quoted context omitted.

Sorry to hear this. Mind if I offer a meta-woo remedy? There are communities out there who value deep and non-judgmental listening. They recognize that it can be an act of aggression to offer unwanted advice. They have a healthy interest in others and know when to yield when it's really not their business to know. If you could find such a community, you might feel better. You might feel understood.

Most online support groups for medical conditions are terrible. I know a few principles that are constructive, but I don't know how to get traction with starting a community where people genuinely talk about useful information in a genuinely supportive fashion that's not invasive. I'm agreeing with you, if that isn't apparent. This is a topic near and dear to my heart and I keep trying to figure it out and ...failing…

I think /r/cfs is a relatively good model and works fairly well and its counterpart forum phoenixrising also has similar qualities. They both have both been going through some growing pains of late with all the covid patients developing the condition but the rules and moderation is working well so far.

/r/covidlonghaulers on the other hand is busy working out how to exclude various people and becoming pretty hostile and I think shows one of the ways definitely not to do this.

Re: How to deal with extreme physical pain

#234

Post by nignog101010 »

It's the 4G/5G/wifi. Turn off your cell phone, wifi router at night and consider Faraday caging the room. The EMF signals disrupt the bodies healing processes and lead to autoimmune disorder type responses.

I had an RSI injury that seemed to be at its worst every morning and wasn't getting much better with time. After disabling my cell phone at night the severity of the pain decreased significantly and quite rapidly. It didn't seem like a coincidence. Maybe it's psychological, but I seriously think EMF radiation is not as benign as we are being led to believe.

Re: How to deal with extreme physical pain

#235

Post by xyzzy_plugh »

bane wrote: post #156

I don't have extreme physical pain, but I do have chronic pain in the form of a constant, low-to-medium grade headache that sometimes turns into a crippling migraine-like pain for a few days. It flares with weather changes and stress, but on a 1-10 pain scale it's a 3-4 every day of the week 24/7. At times it surges to a 7-10. There is nothing modern medicine can do for me but turn my consciousness off -- which I ref…

I recently moved from the Bay Area to the East Coast and I'm experiencing some pretty bad headaches that seem to fluctuate with the weather, and sometimes turn into migraines.

I knew a guy with awful, awful seasonal allergies. He moved to Arizona for a year and a half, then moved back -- totally cured, no allergies at all.

Re: How to deal with extreme physical pain

#236

Post by nignog101010 »

CobaltFire wrote: post #3

I’m dealing with chronic pain that’s bringing my current career to its end. I’m still unsure how active I’ll be able to be in the future due to it. In my case it’s autoimmune; my body has decided it’s going to destroy itself from the inside out. Arthritis, psoriasis, GI issues. It’s getting worse fast enough that I’m being transferred to a hospital for care (Military, stationed overseas) and preparation for retiremen…

Try removing EMF radiation from your home. Turn off cell phones and wifi when you go to sleep. It impacts the immune system response contrary to what ZOG tells you: "Oh, it just passes through your body like magic with no side effects!" Forget the fact that military crowd control weapons are just amplified versions of the same tech.

Re: How to deal with extreme physical pain

#237

Post by nicklaf »

chime wrote: post #165

Only posting this in case it helps anyone else. I am aware it is a single point of data in my case but it is backed by research and accepted medical advice ( https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3412202/ ). I had severe chronic pain from herniated disc that was not a perfect candidate for immediate surgery. My GP prescribed Cymbalta ( https://www.cochrane.org/CD007115/NEUROMUSC_duloxetine-treat... ) and I was…

Very interesting! I was recently prescribed Cymbalta as well for chronic pain in my first rib area [0], but until reading your post had some remaining skepticism about going through with it.

In my case, chronic pain seems to be affecting my sympathetic nervous system and causing dysautonomia, manifesting as delayed orthostatic hypotension (blood pressure drops after a few minutes of standing) and compensatory orthostatic tachycardia (heart rate increases to compensate), similar to POTS (postural orthostatic tachycardia syndrom, which, strictly speaking, is just the heart rate symptom and not the blood pressure one).

My doctor who prescribed the Cymbalta described the approach as "multi-modal", since I'll be getting a treatment of pulsed radiofrequency neuromodulation to the painful area (the first rib area) to numb the pain up. But I already have widespread chronic pain, which seems to relate to my POTS (the spine has nerves close enough to the first rib that pain signals could be spilling over and affecting the sympathetic fibers regulating the autonomic nervous system, i.e., things like heart rate and blood pressure). This gives me hope that if my doctor is right, something like Cymbalta could work in tandem with numbing up the pain locally to turn these pain signals down a notch, and hopefully do something to ease up the POTS over time.

[0] https://news.ycombinator.com/item?id=24949553

Re: How to deal with extreme physical pain

#239

Post by hliyan »

scaladev wrote: post #188
newbie789 wrote: post #59

A few years ago, my partner ran out of critical insulin pump supplies and I appealed to the internet for help. Eventually, Scott drove quite a way to our apartment to give her (a complete stranger) what she needed (and more!) He's a stand-up grade A really nice guy, and I genuinely wish him the best. I wish that I had more expertise to help with this issue, as the only thing that comes to mind is I've had good result…

Is is normal in the US? I live in what one might consider a third world country, know quite a few insulin-dependent diabetics, and this story is appalling to me. I've never heard of any diabetic running out of their medication and having to ask the internet for help. Just call the local equivalent of 911 and they'll sort it out. Jesus.

I'm living in what is definitely a third world country. This does not happen here. Those who want the best quality care go to private hospitals while a good majority seeks free treatment in state run hospitals. On top of this, most employment contracts come with medical insurance.

Re: How to deal with extreme physical pain

#240

Post by nicklaf »

xyzzy_plugh wrote: post #229
chime wrote: post #165

Only posting this in case it helps anyone else. I am aware it is a single point of data in my case but it is backed by research and accepted medical advice ( https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3412202/ ). I had severe chronic pain from herniated disc that was not a perfect candidate for immediate surgery. My GP prescribed Cymbalta ( https://www.cochrane.org/CD007115/NEUROMUSC_duloxetine-treat... ) and I was…

Funny, my wife was put on Cymbalta for a bit and the side effects were absolutely the worst. Then, she started tapering off and things got so much worse -- brain zaps, nausea, starry vision. We even got the drug compounded to a comically small dose to taper with even smaller steps, and it didn't really help. So, while your advice isn't wrong, drugs work differently for people. Great for some people, terrible for othe…

Hmm. I was prescribed Cymbalta and wrote about the reasons for that in a sister reply to yours, and your post reminds me why I have been hesitant to take it. If I may ask, did your wife's post-withdrawal symptoms eventually subside?
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