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Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

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Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#221

Post by tootie »

garganzol wrote: post #171

We already had deeply insightful discussions on this topic here, but I will repeat for new HN people. Covid-19 tends to cause post-viral complications, which manifest themselves as chronic fatigue, body temperature dysregulation, air hunger / shortness of breath with SpO2 of 99%, various neurological symptoms: pain/tingling/numbing sensations in the extremities, parosmia (a distorted sense of smell), parageusia (a di…

I've read about long COVID and the hallmarks but it seems like Dianna is experiencing something far worse than average. Chronic fatigue is one thing but unable to stand for two years is horrendous. Are there any other recorded cases this severe?

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#222

Post by throwforfeds »

penjelly wrote: post #86
tunn3l wrote: post #52

I'm 22 years old and suffer from Long COVID for 3 years now. I've written a bout my experience on my blog: https://tunn3l.pro . although not bedridden, my life got totally flipped upside down. I just want to live a normal live again. To all ME/CFS and LC sufferers: Don't give up!

Hi, I couldn't glean from the articles. But it sounds like you have breathing issues from long covid? it may sound ridiculous, but I developed gluten/lactose sensitivity during covid times. If I avoid gluten, lactose, canola oil I get far fewer symptoms. I know this likely isn't your issue but I do experience positive airway pressure, coughing, burping, chronic fatigue, exessive yawning. If that sounds like you maybe…

My wife and I got Covid during the first major wave (March/April 2020). I had no symptoms at all, but my wife ended up getting long Covid. GI issues, extreme tiredness, shortness of breath, brain fog, sleep disruption, etc etc. She lost maybe 10-12% of her body weight.

After maybe 8 months of this we somehow decided to do a low-Fodmap diet (I participated for support). That included cutting out gluten and dairy (except butter). She healed right up. When we were re-introducing foods, for whatever reason, mushrooms and garlic both had negative effects, and we ended up keeping both out of our diets for a couple years.

Anyway, that's all to say I'd recommend people seriously look at their diet and try to spend a month or two doing low-fodmap if they're chronically suffering from long Covid. Worst case it doesn't help.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#223

Post by throw38489595 »

garganzol wrote: post #213
throw38489595 wrote: post #194

Earlier quoted context omitted.

Sadly long-covid research is very underfunded. Doing a few thousand DNA tests is not that expensive.

Covid-19 is not a retrovirus. Otherwise, the people would not be able to reliably overcome it again and again. The same applies to post-covid - once you tame it by finding methods of correcting it, it goes away. I agree with you on necessity of further researches, but they require not only money, but also plenty of time, decades perhaps.

> reliably overcome it again and again

I would disagree with that. We are only a few years in, many people did not recover yet. And taking severe medication is not exactly "correction".

There is a research that suggest some unusual COVID-19 variants are able to penetrate cell nucleus. That is why we need DNA sequencing studies! And not just on patients, but their microbiome as well!

And I do not think it will take decades, but couple of years maybe months!

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#224

Post by garganzol »

laweijfmvo wrote: post #217
garganzol wrote: post #171

We already had deeply insightful discussions on this topic here, but I will repeat for new HN people. Covid-19 tends to cause post-viral complications, which manifest themselves as chronic fatigue, body temperature dysregulation, air hunger / shortness of breath with SpO2 of 99%, various neurological symptoms: pain/tingling/numbing sensations in the extremities, parosmia (a distorted sense of smell), parageusia (a di…

I’m going to ask, not because I have an agenda but because I’m genuinely ignorant but curious: I see a lot of people mentioning things like mitochondria and spike proteins; can any of this be caused by the virus OR the vaccine? or just the whole virus? Thanks!

Any virus and any vaccine can extremely rarely cause a post-viral malaise with similar symptoms. But Covid-19 (as a virus) stands out in terms of frequency of these occurrences moving the needle from "extremely rarely (~never)" to "occasionally (~it happens with my friends and family)".

In terms of outcomes and probabilities, having a vaccine is 10000x better than facing a virus directly. Note that in some rare cases, the burden of certain chronical health conditions may overweight the benefits of a vaccine, so it is always better to consult to a doctor who knows you well.

Personal anecdotes: I do not know anyone who developed a post-covid condition after being vaccinated, but I know plenty of people who developed a post-covid after covid. I knew people who died from covid not being vaccinated.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#225

Post by margalabargala »

laweijfmvo wrote: post #217
garganzol wrote: post #171

We already had deeply insightful discussions on this topic here, but I will repeat for new HN people. Covid-19 tends to cause post-viral complications, which manifest themselves as chronic fatigue, body temperature dysregulation, air hunger / shortness of breath with SpO2 of 99%, various neurological symptoms: pain/tingling/numbing sensations in the extremities, parosmia (a distorted sense of smell), parageusia (a di…

I’m going to ask, not because I have an agenda but because I’m genuinely ignorant but curious: I see a lot of people mentioning things like mitochondria and spike proteins; can any of this be caused by the virus OR the vaccine? or just the whole virus? Thanks!

Just the whole virus.

Let's imagine for a moment that the antigen produced by the vaccine was the exact one that does cause all of these symptoms. Even in this hypothetical world, only the whole virus can cause long term symptoms, because only it can replicate itself and persist.

The vaccine expresses itself once, and is gone. All that's left after a few days is the immune system's memory, no different than any other antigen.

There is no mechanism for the body to chronically begin to create vaccine spike proteins after receiving the vaccine.

There is however a mechanism for the body to attribute any random real or imagined symptom to something they heard about and think sounds right.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#226

Post by Sesse__ »

anonzzzies wrote: post #166
Sesse__ wrote: post #157

Earlier quoted context omitted.

I am in the process of recovering from CFS (currently back to working 100%, though still not being where I want to be with everything else) and at no point my doctor has done anything but take it seriously. Of course, a doctor can only do so much with a disease as nebulous as this, but he (as well as work, family and other people around me) giving me breathing space and adapting to my situation has been crucial for m…

Good to hear, several people around me did not have that experience with covid, but sure there must be good doctors.

It is, in general, a poorly understood disease (as lots of others in the thread are pointing out). And everybody's case is different.

I will point out that I've never gotten so much unsolicited low-quality advice before, though; people who barely know me will make a very confident diagnosis on-the-spot once they hear I've got a long-term illness. E.g., “you're vitamin D deficient” (no, I'm not, and anyways, I've been taking vitamin D supplements for three months just in case, with no effect). I'm sure they mean well, but it becomes tiring really fast when everyone does it. (There's a select few people who seem to be much more careful about throwing our random crap like that, including, unsurprisingly, all the doctors I know.)

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#227

Post by SigmundA »

laweijfmvo wrote: post #217
garganzol wrote: post #171

We already had deeply insightful discussions on this topic here, but I will repeat for new HN people. Covid-19 tends to cause post-viral complications, which manifest themselves as chronic fatigue, body temperature dysregulation, air hunger / shortness of breath with SpO2 of 99%, various neurological symptoms: pain/tingling/numbing sensations in the extremities, parosmia (a distorted sense of smell), parageusia (a di…

I’m going to ask, not because I have an agenda but because I’m genuinely ignorant but curious: I see a lot of people mentioning things like mitochondria and spike proteins; can any of this be caused by the virus OR the vaccine? or just the whole virus? Thanks!

The mRNA vaccine tells your cells to create the spike protein that was isolated from the original virus for about 48 hours at levels much lower than the virus itself. mRNA is used up by this process which is why your cells stop producing the spike protein and go back to their previous functions. Your immune system then attacks the spike protein and is better adapted to do this next time giving you better protection.

The virus takes over your cells completely turning them into covid virus factories destroying them in the process the new viruses then continues until your immune system can stop this. During this time the amount of spike protein from the viruses are much higher by order of magnitude than with the mRNA vaccine along with the damage cause by the virus replicating itself.

The spike protein is thought to have some adverse effects around heart issues, it is not well understood. However the risk is thought to be much higher from the virus than the vaccine due to shear volume of spike protein and the data seems to confirm this.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#228

Post by burnte »

lolinder wrote: post #151
thesuitonym wrote: post #144

Earlier quoted context omitted.

[flagged]

The entire problem with victim blaming is that "do it to yourself" is a sliding scale and it's hard to know where to properly draw the line. I think most of us would probably agree that getting covid while doing nothing to protect yourself makes one less sympathetic than many other victims, but I firmly disagree with this sweeping statement about victim blaming in general.

There are people literally claiming masks and vaccines are against their religion. That's not victim blaming, it's stating a fact. It's the same as saying Joe got hurt in a car crash and wasn't wearing a seatbelt.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#229

Post by garganzol »

tootie wrote: post #221
garganzol wrote: post #171

We already had deeply insightful discussions on this topic here, but I will repeat for new HN people. Covid-19 tends to cause post-viral complications, which manifest themselves as chronic fatigue, body temperature dysregulation, air hunger / shortness of breath with SpO2 of 99%, various neurological symptoms: pain/tingling/numbing sensations in the extremities, parosmia (a distorted sense of smell), parageusia (a di…

I've read about long COVID and the hallmarks but it seems like Dianna is experiencing something far worse than average. Chronic fatigue is one thing but unable to stand for two years is horrendous. Are there any other recorded cases this severe?

I am not aware about anyone being hit harder than Dianna by post-covid. Her case is extreme.

While she is gaining her power back, there is still a considerable probability of acquiring dementia for her, she is in the grey zone now.

And note, we read only what meets the eye. Below that line, there were extreme panic attacks (crashes) with a sense of imminent death. I think that in many cases, the death by itself is more peaceful than 100x repetitions of the associated experiences.

Panic attacks are usually treated as a psychological phenomenon, but in case of post-covid they have metabolic nature. Tiny parts of body tissues literally die out of energy starvation. It applies to energy-hungry organs first, brain, nervous system, heart, liver, muscles. The heavy cases of post covid is like being a zombie who is still alive, but with tissue hypoxia and consequential tiny necrotic spots hidden inside under a healthy rosy skin.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#230

Post by rafram »

mwpmaybe wrote: post #212
penjelly wrote: post #86

Earlier quoted context omitted.

Hi, I couldn't glean from the articles. But it sounds like you have breathing issues from long covid? it may sound ridiculous, but I developed gluten/lactose sensitivity during covid times. If I avoid gluten, lactose, canola oil I get far fewer symptoms. I know this likely isn't your issue but I do experience positive airway pressure, coughing, burping, chronic fatigue, exessive yawning. If that sounds like you maybe…

Anecdotally I went through a severe bout of IBS-C in my early 20s and the "cure" was to cut out wheat and dairy for an extended period of time (about a year and a half), at which point I was able to reintroduce them into my diet and I've been ~fine for about 20 years now. I've hypothesized that the lining of my intestine(s) had been damaged by the proteins and/or starches/sugars in those foods and needed a break and…

I had a similar experience with dairy. (Wheat is still out.) It used to give me severe digestive symptoms and inflammation, but after cutting it out for a year or so, I've been able to reintroduce it without any noticeable symptoms. No GI I've seen has really had answers for me, and I'm not really interested in seeing an "alternative medicine" doctor, although I'm sure they would claim to know what's going on. But I'd recommend trying an elimination diet to anyone who has unexplainable symptoms in that vein. The limitations are annoying at first, but you get used to it.
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