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Tinnitus Neuromodulator

mynoise.net

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Re: Tinnitus Neuromodulator

#211

Post by ay »

semitones wrote: post #137
tombert wrote: post #6

I've had tinnitus in my left ear for about six months now. I was hoping it was the result of an earwax impaction or something, but after having several specialists look at my ears, test my hearing, and getting an MRI to check for tumors, the overwhelming medical consensus of the cause appears to be "I dunno", and at this point I have given up on it being temporary. About 95% of the time, I can fairly easily just tune…

Remarkably, our experiences are _incredibly_ similar. Left ear, about a year, got all those tests done, specialists don't know other than "that's tinnitus for you - if I had a cure I'd be rich", 98% of the time I tune it out, I live in NYC, early thirties. If you ever find something that works for you, please reply here @tombert, I'll do the same :)

Back at some point on HN, I saw https://generalfuzz.net/acrn/ - and it seems to be useful at least temporarily - in my and others' anecdata. FWIW.

Re: Tinnitus Neuromodulator

#212

Post by mopenstein »

manoDev wrote: post #57
tombert wrote: post #6

I've had tinnitus in my left ear for about six months now. I was hoping it was the result of an earwax impaction or something, but after having several specialists look at my ears, test my hearing, and getting an MRI to check for tumors, the overwhelming medical consensus of the cause appears to be "I dunno", and at this point I have given up on it being temporary. About 95% of the time, I can fairly easily just tune…

I feel you. Here’s things you can try (in this order): - Cut stimulant use (coffee, energy drinks) and alcohol - Drink plenty of water - Check blood pressure - Talk to a dentist and check if you grind teeth or suffer from jaw stiffness - Supplement Magnesium (chelated/glycinate, 300mg/day) I’m ignoring issues of the ear canal (wax, secretions) since you mentioned it. Studies point to tinnitus being either caused by c…

Mine came on when I was about 12 years old and I'm convinced it was brought on by severe anxiety.

At the time my life had changed dramatically. My parents split. Moved to an area adjacent to government housing projects, through which I had to travel everyday to school, and I was, by virtue of unfortunately being wrong color, beaten daily by gangs of hooligans. I ended up sneaking through a slightly wooded area like a South American guerilla until they caught me there.

I couldn't handle it as I was already a sensitive kid and, the parent I ended up with, the other having gone to jail, was compassionless due to their own horrific upbringing. So I had no way of coping which led to total breakdowns and anxiety attacks.

Tinnitus reared it's ugly head soon after which further exacerbated the anxiety.

But the correlation is all speculation on my part because my parent only took me to the doctor a year or so later after much complaining. And only for the tinnitus, not the crippling anxiety.

Re: Tinnitus Neuromodulator

#213

Post by thfuran »

pasc1878 wrote: post #210
glimshe wrote: post #36

Earlier quoted context omitted.

It's very much like eye floaters. They are always there, but you can tune them out most of the time.

I have both, No you can't tune them out. They are always there, sometimes if you are very lucky you can get engrossed enough not to have them as the first or second thing on your mind But it is always in the top five you never can tune them out you have always be aware as not to to certainn things.

I have tinnitus, and this thread is probably the first time I've thought about it this week.

Re: Tinnitus Neuromodulator

#214

Post by nobleach »

tombert wrote: post #6

I've had tinnitus in my left ear for about six months now. I was hoping it was the result of an earwax impaction or something, but after having several specialists look at my ears, test my hearing, and getting an MRI to check for tumors, the overwhelming medical consensus of the cause appears to be "I dunno", and at this point I have given up on it being temporary. About 95% of the time, I can fairly easily just tune…

I'm on that same journey. 8 months ago, I was sitting at my desk and all of a sudden my left ear just went out. The ringing was there. I figured the same that it was wax. I've always had wax issues with that ear that require a doctor's office visit. (trying the home kits has only made it worse!) But this time the doctor came in, looked in the ear and said, "there's no wax at all in that ear". What followed sounds much like your journey. Visits to ENT, CT Scans - waiting on an MRI to ensure there's no tumor... All the while I went from having great hearing to having to say, "say that again" all the time.

Re: Tinnitus Neuromodulator

#215

Post by bartwe »

kiddico wrote: post #198
DrSiemer wrote: post #197

Earlier quoted context omitted.

That's actually not tinnitus but (from what I've been told) cochloreal hyperacusis, another form of hearing damage. I always have that, but I only hear a random high pitched tinnitus noise in one ear, rising and falling in volume for max 10 seconds, about once every few months. I can still hear old CRTs in my forties, although it's less maddening now. They had those mosquito devices, that are intended to repel kids,…

> I always have that, but I only hear a random high pitched tinnitus noise in one ear, rising and falling in volume for max 10 seconds, about once every few months. Holy crap! I'm not alone! And now I have a name for it. They've always freaked me out and I don't even know how to describe it to people.

I assumed everyone has that.. and that its the last output of a receptor dying.

Re: Tinnitus Neuromodulator

#216

Post by mkp0 »

tombert wrote: post #7
scragz wrote: post #3

I still want to try one of the ones with the cyberpunk pacifier that shocks your tongue to stimulate neuroplasticity.

Is there any evidence that those things actually work? I haven't done a lot of research on it, but I asked my ENT about it and she said that they don't have a great success rate and they're pretty expensive so I don't want to pay for it. Maybe I could apply for a clinical trial.

If I recall correctly, the better form of bimodal stimulation was found by Susan Shore et al.[1][2][3]. Lenire created a quick and dirty version and got it approved, while Shore's device is still stuck in limbo.

If it ever gets approved, it should be considerably better than Lenire, but it's sure taking its time.

A HN user said they'd provide specs to reproduce such a device, here: https://news.ycombinator.com/item?id=43920360

[1] https://deepblue.lib.umich.edu/bitstream/handle/2027.42/7229... [2] https://www.science.org/doi/pdf/10.1126/scitranslmed.aal3175 [3] https://jamanetwork.com/journals/jamanetworkopen/fullarticle...

Re: Tinnitus Neuromodulator

#217

Post by megadopechos »

lexx wrote: post #139

Have tinnitus 20 years now. Very loud. Can hear it in cinema while watching action movies. First year was depressing. I couldn't believe I will never enjoy silence again. Now I don't care. It's my little friend. Really. Life can be amazing even with extreme tinnitus

Same. I got it when I was 19 from recording music and the audiologist said, "This is something only old people get, and even then very gradually. You will either go crazy or depressed." But I've gotten used to it and I wouldn't say it's been a huge detriment.

Re: Tinnitus Neuromodulator

#218

Post by dahart »

netule wrote: post #35
Nux wrote: post #30

White noise is key here. Luckily I do not have tinnitus, but I have small children and they sleep great with this on. And so do their parents, especially handy when going on holiday in noisy hotels etc. I can't go on holiday without it now! :) I've just downloaded this audio track with yt-dlp, placed it on an sdcard and I play it in a loop on a small speaker. https://www.youtube.com/watch?v=nMfPqeZjc2c

This appears to be brown noise, not white noise. I have no affiliation with this macOS app, but I use it for the same reasons you do. It's paid, but worth it IMHO. It generates the noise on your own machine, and you can pick what kind of noise you want to hear: https://apps.apple.com/us/app/brown-noise-ambient-noise/id15... .

Note that the site that hosts Neuromodulator also has free client-side color noise generators, white, brown, pick, etc. https://mynoise.net/NoiseMachines/whiteNoiseGenerator.php

Re: Tinnitus Neuromodulator

#219

Post by dahart »

ay wrote: post #211
semitones wrote: post #137

Earlier quoted context omitted.

Remarkably, our experiences are _incredibly_ similar. Left ear, about a year, got all those tests done, specialists don't know other than "that's tinnitus for you - if I had a cure I'd be rich", 98% of the time I tune it out, I live in NYC, early thirties. If you ever find something that works for you, please reply here @tombert, I'll do the same :)

Back at some point on HN, I saw https://generalfuzz.net/acrn/ - and it seems to be useful at least temporarily - in my and others' anecdata. FWIW.

Was going to post this too, I bookmarked it after seeing it on HN and I use it often. Yeah it seems to help me a bit. It seems handy just to identify tinnitus tones, when you have clear tones (I not not everyone with tinnitus does). I’d be interested to hear from anyone who’s had more than moderate success with ACRN.

I already posted another comment, but will mention here for GP that the ‘White Bursts’ noise generator on mynoise.net is where I’ve experience the strongest tinnitus reaction. I can audibly hear the tinnitus drop with every cycle, and after listening to it for a few minutes, my tinnitus is quieter for maybe a half hour, then it comes back later.

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