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Biomarker for chronic fatigue syndrome identified

med.stanford.edu

211–220 of 228 posts

Re: Biomarker for chronic fatigue syndrome identified

#211
post #55

Earlier quoted context omitted.

Keep in mind that CFS is a currently a diagnosis of exclusion - many people labelled with CFS may in fact have another, undiagnosed illness. For example, it's been found that a lot of CFS (and fibromyalgia) patients turn out to have small fiber neuropathy (damage to he nerve fibers that signal pain), and neurotoxins have been shown to cause general fatigue (I'm in mobile, so no references for now I'm afraid). The ski…

I found out last year the root cause of my CFS is life-long mercury toxicity (a well understood neurotoxin). I am responding very positively to treatment. I rarely talk about it because people get very upset when I tell them about the evidence of where the mercury came from.

wavepruner, what exactly are you using for chealation? Please mention things like where you are getting your treatment, and how many sessions did it take to show positive results.

Re: Biomarker for chronic fatigue syndrome identified

#212

Journalists, this is quite the story. Here you have a bunch of really sick patients with docs around the world saying it's in there head. Then a UK study comes out (PACE) saying patients should engage in activity to help themselves. This only makes the patients worse and eventually so bad that the study was pulled. In comes dr ron davis. His son acquired me cfs while traveling in india. Completely unsatisfied with th…

>Then a UK study comes out (PACE) saying patients should engage in activity to help themselves. This only makes the patients worse and eventually so bad that the study was pulled.

For those unaware, the PACE study is a famous for exposing the worst aspects of modern medicine. It twisted statistics and definitions to the point that patients whose conditioned worsened were declared cured, they fabricated death threats against themselves to discredit their critics, and are generally notable for the harm they inflicted upon patients and future research into CFS.

Re: Biomarker for chronic fatigue syndrome identified

#213

Earlier quoted context omitted.

I found out last year the root cause of my CFS is life-long mercury toxicity (a well understood neurotoxin). I am responding very positively to treatment. I rarely talk about it because people get very upset when I tell them about the evidence of where the mercury came from.

Do you eat 20 cans of tuna a day? When I was much younger I ate 1-2 cans of tuna pretty much every day for few years and I didn’t have any ill effect at all.

TIL that HN people like tuna less than no-vax. Probably you should taste a proper one, not that awful mess that sell in 90% of the world.

Re: Biomarker for chronic fatigue syndrome identified

#214

Earlier quoted context omitted.

Do you eat 20 cans of tuna a day? When I was much younger I ate 1-2 cans of tuna pretty much every day for few years and I didn’t have any ill effect at all.

TIL that HN people like tuna less than no-vax. Probably you should taste a proper one, not that awful mess that sell in 90% of the world.

[deleted]

Re: Biomarker for chronic fatigue syndrome identified

#215

Earlier quoted context omitted.

Do tell please, it would be educating for all of us. Hopefully you’ll find a less negative reception in this thread.

I'm already being down voted and I've said nothing but what has been rigorously verified as the root cause of my illness. It's impossible to discuss this intelligently on public forums.

You're being down voted because you're being unnecessarily vague. I dug through your comment history and you haven't mentioned it before, so it's not this community that you've had a bad response from before. (Unless you made a new account?).

Re: Biomarker for chronic fatigue syndrome identified

#216
post #91

Medicine is a must for any empathetic society. However I wonder if the dawn of modern medicine was the end of natural human evolution. Now that people with diseases such as CFS and diabetes can receive help, we are no longer breeding these diseases out of the gene pool. As a result, we are actually spreading them epigenetically over time. We will be forced to turn to science, such as vaccines and pre- and post-birth…

I was diagnosed with CFS after being prescribed an immunosuppressant. I reacted badly to it, developing chronic pain and fatigue, so it's possible that's a vector (I say possible as CFS is a diagnosis of exclusion, and it's highly likely thatany people diagnosed with CFS have some other, undiagnosed condition of which fatigue and pain are a symptom).

Makes sense. CFS, like schizophrenia, is essentially a symptom of some unknown collection of ailments.

Re: Biomarker for chronic fatigue syndrome identified

#217
post #91

Earlier quoted context omitted.

I was diagnosed with CFS after being prescribed an immunosuppressant. I reacted badly to it, developing chronic pain and fatigue, so it's possible that's a vector (I say possible as CFS is a diagnosis of exclusion, and it's highly likely thatany people diagnosed with CFS have some other, undiagnosed condition of which fatigue and pain are a symptom).

Makes sense. CFS, like schizophrenia, is essentially a symptom of some unknown collection of ailments.

[deleted]

Re: Biomarker for chronic fatigue syndrome identified

#218

Earlier quoted context omitted.

>Some evidence sure, not "the" evidence. At least 4 studies that looked at it all found that it was triggered by stress or viral infection. If you're aware of any other contrary evidence, I'm interested. >Unfortunately I don't know any CFS patients that have recovered, or even gone into remission; for everyone I know, it's been a chronic condition. Here on HN there is myself and tomhoward for starters, and I know lot…

How did you recover? (Not an academic question. My wife has CFS.)

You can email me at cpncrunchhn at gmail dot com

Re: Biomarker for chronic fatigue syndrome identified

#219
post #55

Earlier quoted context omitted.

Keep in mind that CFS is a currently a diagnosis of exclusion - many people labelled with CFS may in fact have another, undiagnosed illness. For example, it's been found that a lot of CFS (and fibromyalgia) patients turn out to have small fiber neuropathy (damage to he nerve fibers that signal pain), and neurotoxins have been shown to cause general fatigue (I'm in mobile, so no references for now I'm afraid). The ski…

I found out last year the root cause of my CFS is life-long mercury toxicity (a well understood neurotoxin). I am responding very positively to treatment. I rarely talk about it because people get very upset when I tell them about the evidence of where the mercury came from.

Belatedly, FWIW, I guessed dental fillings.

I had mine replaced ages ago. Haven't considered testing my mercury levels. Maybe I should.

I had aplastic anemia as a kid, cause unknown, treated with a bone marrow transplant (before they had means to isolate stem cells).

Re: Biomarker for chronic fatigue syndrome identified

#220

Earlier quoted context omitted.

I'm already being down voted and I've said nothing but what has been rigorously verified as the root cause of my illness. It's impossible to discuss this intelligently on public forums.

You're being down voted because you're being unnecessarily vague. I dug through your comment history and you haven't mentioned it before, so it's not this community that you've had a bad response from before. (Unless you made a new account?).

I made a new account and I am trying to avoid absolutely destroying the karma on this one.
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