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Show HN: Get your health records from any doctor

stayinyourprime.com

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Re: Show HN: Get your health records from any doctor

#21

Post by mikestew »

thetylerhayes wrote: post #11
colinbartlett wrote: post #8

Don't have a Facebook account. Don't want a Facebook account. Even if I did, I wouldn't want it anywhere near anything related to my healthcare. Requiring a Facebook account to sign up was a huge mistake.

We don't get posting rights to your Facebook account. We can't nor will we ever share anything to Facebook. We use FB to verify identity and help make it easier for you to invite friends and family, the people with whom you're already sharing your health info. Everything stays private within Prime.

You can post all disclaimers you want, and for the moment I'll assume what you say is true, but it won't make me use FB to log in. Despite all of those disclaimers, the login mechanism to which you've tied your app has proven multiple times to be untrustworthy.

In other words, personally speaking, it's not you that I don't trust, it's FB. I'd go out on a limb to say that's probably what the grandparent poster meant, too. I know, I know, blah, blah, blah, but I don't want to do the mental exercise of walking through the scenarios. "Okay, Prime has convinced me it's trustworthy, but how could FB hose me? Well, they could...". It's easier to just not use the app. And I want to use the app.

Re: Show HN: Get your health records from any doctor

#22

Post by einehexe »

thetylerhayes wrote: post #11
colinbartlett wrote: post #8

Don't have a Facebook account. Don't want a Facebook account. Even if I did, I wouldn't want it anywhere near anything related to my healthcare. Requiring a Facebook account to sign up was a huge mistake.

We don't get posting rights to your Facebook account. We can't nor will we ever share anything to Facebook. We use FB to verify identity and help make it easier for you to invite friends and family, the people with whom you're already sharing your health info. Everything stays private within Prime.

I am sure you would prefer to have all their FB data but you will lose a lot of potential customers if you demand they use FB.

Re: Show HN: Get your health records from any doctor

#23

Post by thetylerhayes »

rpedela wrote: post #19
thetylerhayes wrote: post #11

Earlier quoted context omitted.

We don't get posting rights to your Facebook account. We can't nor will we ever share anything to Facebook. We use FB to verify identity and help make it easier for you to invite friends and family, the people with whom you're already sharing your health info. Everything stays private within Prime.

Yeah, but many people, especially in the developer community, have a knee-jerk reaction to sharing private data on FB even if that isn't what you are doing. You could easily alleviate the fear by supporting other OAuth providers and allowing people to use their email address to sign up. I really like the concept BTW!

Email is something we're currently considering.

Thanks!

Re: Show HN: Get your health records from any doctor

#24

Post by siculars »

I work in medical informatics, so my opinion may be biased.

Yes, people need access to their data. No, heath data is not inherently social. Sharing specific pieces of data with specific people does not mean health data is inherently social. I would seriously consider rebranding your efforts as a personal health data access mechanism that can also be specifically shared in the finest ways with specific people. And for the love of all that is holy, disassociate yourself from Facebook. Add your own sign up with email. Do not oauth with any other provider. As soon as you add FB/Google/Twitter/etc. you open the door to your customer having to ask the question about whether or not they want those companies having access to their data. Even if you say they will not, your customer will have to make a judgement call as to whether or not that is true.

Re: Show HN: Get your health records from any doctor

#25

Post by jtheory »

homepage error: link for "Not a member of a current Prime provider?" is http://stayinyourprime.com/%10#providers

Also, higher-level: how should potential customers check if their provider is already on Prime?

Finally, my first question when I see a service that will help me with sensitive, private data for free is: who is paying for this? Maybe the providers are paying; maybe the plan is to sell "non-personally-identifiable" data; maybe there will be ads and/or targeted 3rd party offers; but if the site is secretive about its business model, I assume the worst. In this case the privacy policy seems to suggest the latter two options, which are bad enough for email hosting, but really quite dangerous for medical data. The process of pseudonymizing medical data is difficult and necessarily imperfect; so the consumers of any pseudonymized data need to be responsible parties.

Re: Show HN: Get your health records from any doctor

#26

Post by Ricapar »

> "Get your health records from any doctor"

Awesome! Sign me up!

> Health is inherently social > Provide context for your friends and family by sharing real health information seamlessly. Focus on communicating about your health rather than communicating the technical details.

Yeah. No. Goodbye.

I would love to have all my records all in one place.

But why in the world would I want to share my high blood pressure/high cholesterol/chicken pox/herpes/aids etc. checkups with my friends and family?

Re: Show HN: Get your health records from any doctor

#27

Post by r00fus »

thetylerhayes wrote: post #11
colinbartlett wrote: post #8

Don't have a Facebook account. Don't want a Facebook account. Even if I did, I wouldn't want it anywhere near anything related to my healthcare. Requiring a Facebook account to sign up was a huge mistake.

We don't get posting rights to your Facebook account. We can't nor will we ever share anything to Facebook. We use FB to verify identity and help make it easier for you to invite friends and family, the people with whom you're already sharing your health info. Everything stays private within Prime.

Can't you get the same benefits by using, say Twitter, as an identity verification?

Re: Show HN: Get your health records from any doctor

#28

Post by thetylerhayes »

r00fus wrote: post #27
thetylerhayes wrote: post #11

Earlier quoted context omitted.

We don't get posting rights to your Facebook account. We can't nor will we ever share anything to Facebook. We use FB to verify identity and help make it easier for you to invite friends and family, the people with whom you're already sharing your health info. Everything stays private within Prime.

Can't you get the same benefits by using, say Twitter, as an identity verification?

Twitter doesn't provide email and Facebook has a firm real name policy. Twitter does provide benefits but Facebook is better for identity verification.

Re: Show HN: Get your health records from any doctor

#29

Post by owenfi »

jtheory wrote: post #25

homepage error: link for "Not a member of a current Prime provider?" is http://stayinyourprime.com/%10#providers Also, higher-level: how should potential customers check if their provider is already on Prime? Finally, my first question when I see a service that will help me with sensitive, private data for free is: who is paying for this? Maybe the providers are paying; maybe the plan is to sell "non-personally-ident…

Thanks for the note about the error, should be fixed soon.

Good point about letting people check the full list of providers!

To the question about business model, all three of us agree wholeheartedly that free services rightfully bring a certain level of skepticism. All things considered we don't think it would be possible to charge for the app, but do feel there are not enough truly consumer-focused offerings in the health space. So we are thinking hard about what the revenue model will be. We don't have any plans to sell info in any regard and are under the impression that would require a direct opt-in from consumers if that offers any solace.

Re: Show HN: Get your health records from any doctor

#30

Post by merlinsbrain »

siculars wrote: post #24

I work in medical informatics, so my opinion may be biased. Yes, people need access to their data. No, heath data is not inherently social. Sharing specific pieces of data with specific people does not mean health data is inherently social. I would seriously consider rebranding your efforts as a personal health data access mechanism that can also be specifically shared in the finest ways with specific people. And for…

As a developer, my opinion might be biased, but I agree with this.
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