This is going to be disagreeable, but as someone who was blocked from starting a COVID surveillance program at my uni due to the IRB constraints on "human subjects" - would need to buy special, expensive software in order to prevent test results from being 'deanonymized' - I think this space is too regulated already. In some cases, people with apparently legitimate ethical issues should have been told to shove it, in my opinion. Innovation is being destroyed to protect people's feelings.
I was part of a human subject research study without my consent
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Re: I was part of a human subject research study without my consent
#22Earlier quoted context omitted.
Fully agreed. I'm shocked she gave a random unsolicited emailer the time of day. Most problems are ones we create for ourselves. Responding to spam and then feeling like you've been the victim of some injustice that the spam didn't say "hey, I'm not really spam, I'm grad-student flavored spam" is quite a take. Here's a tip for anyone not running a business: If your response is legally required, it'll come in the phys…
But these privacy laws do require a response when you collect data, no?
Not until you're collecting data at the scale where you'd have a legal@yourdomain team to forward anything that vaguely smells like a legal inquiry. Which is why my tip applied for "non-business" cases.
Re: I was part of a human subject research study without my consent
#23How did anybody think it was appropriate to distress random human subjects by sending what appears at first glance to be a thinly veiled legal threat?
How did anybody think it was appropriate to create a law that could create such distress?
Re: I was part of a human subject research study without my consent
#24> My name is Maya Mishina, and I am a resident of Novosibirsk, Russia. If i received such an email, I would mark it as spam and move on with my life. Why did this blogger take it seriously? Does she take other forms of spam so seriously? I do feel for her stress and anxiety, but I also have to question her mental ability to filter noise. Life must be quite stressful for her overall.
I'm sorry but how can you make the assumption that "life must be quite stressful for her overall."? We know almost nothing about her life or what kind of situation she is in... It seems a little weird to make such large assumptions about anyone who you don't personally know!
Re: I was part of a human subject research study without my consent
#25Lmao I periodically troll my friends by sending them GDPR and CCPA notices.
If you did this to my blog, I’d let you take me to small claims or whatever. The probability of you making it all the way to prosecution and the total harm is so low that I’m not going to CCPA or GDPR enforce on my blog.
Bite me.
Re: I was part of a human subject research study without my consent
#26I have a not at all popular and rarely used blog. I still get dozens of stupid spam emails and comments a day and often some phone calls too. This would not have caught my attention for more than 10 seconds, if I even read it at all and it did not get filtered out by various spam tools.
I am quite perplexed at the people who panicked over this. It would probably rank 4th in the scariest things I have received today and seems on par with a call from the tax man claiming you owe them money and need to send them iTunes gift cards.
Re: I was part of a human subject research study without my consent
#27Put a PO Box mailing address on your website and mark any email that you don't want to read as spam.
If someone is serious about getting a hold of you, they can buy a stamp.
Re: I was part of a human subject research study without my consent
#28> My name is Maya Mishina, and I am a resident of Novosibirsk, Russia. If i received such an email, I would mark it as spam and move on with my life. Why did this blogger take it seriously? Does she take other forms of spam so seriously? I do feel for her stress and anxiety, but I also have to question her mental ability to filter noise. Life must be quite stressful for her overall.
This is unlike traditional spam in the sense that it feels more legitimate.
I think that’s relative to your experience. To me it is spam and I would not even finish reading it, let alone grace it with a reply.
Re: I was part of a human subject research study without my consent
#29> My name is Maya Mishina, and I am a resident of Novosibirsk, Russia. If i received such an email, I would mark it as spam and move on with my life. Why did this blogger take it seriously? Does she take other forms of spam so seriously? I do feel for her stress and anxiety, but I also have to question her mental ability to filter noise. Life must be quite stressful for her overall.
Fully agreed. I'm shocked she gave a random unsolicited emailer the time of day. Most problems are ones we create for ourselves. Responding to spam and then feeling like you've been the victim of some injustice that the spam didn't say "hey, I'm not really spam, I'm grad-student flavored spam" is quite a take. Here's a tip for anyone not running a business: If your response is legally required, it'll come in the phys…
Certified mail or trash, there's no way to even know if an email was really delivered to a recipient anyway. I'm aware of read receipts but they aren't reliable.
Re: I was part of a human subject research study without my consent
#30> My name is Maya Mishina, and I am a resident of Novosibirsk, Russia. If i received such an email, I would mark it as spam and move on with my life. Why did this blogger take it seriously? Does she take other forms of spam so seriously? I do feel for her stress and anxiety, but I also have to question her mental ability to filter noise. Life must be quite stressful for her overall.
I'm sorry but how can you make the assumption that "life must be quite stressful for her overall."? We know almost nothing about her life or what kind of situation she is in... It seems a little weird to make such large assumptions about anyone who you don't personally know!
Because she is extremely easily stressed out