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I can’t imagine how hard it must be for the dozens of people out there suffering from this rare ailment knowing a perfect cure/treatment is possible but not worth it for the shareholders.
It seems to me that it’s not just the price of a single treatment that is too high, but also that the patients are fully recovered and don’t have to pay a recurring annual subscription fee to live normal lives. Or is that too cynical?
Doesn't it say 10 years? So you'd need a few more during your life
It seems to me that it’s not just the price of a single treatment that is too high, but also that the patients are fully recovered and don’t have to pay a recurring annual subscription fee to live normal lives. Or is that too cynical?
Or is that too cynical? My, you innocent child, that you have to ask this. (I have a genetic disorder commonly treated with one of those drugs that cost $300k annually.) Edit: I was going to delete this in short order but now that it's flagged, I'm leaving it. People with genetic disorders get all kinds of hatred from the world and medical system for just wanting to be healthy and how dare we say that online.
I don't think the voices of the few should be silenced.
Its uncomfortable maybe, but I think not a discussion to avoid.
Earlier quoted context omitted.
Or is that too cynical? My, you innocent child, that you have to ask this. (I have a genetic disorder commonly treated with one of those drugs that cost $300k annually.) Edit: I was going to delete this in short order but now that it's flagged, I'm leaving it. People with genetic disorders get all kinds of hatred from the world and medical system for just wanting to be healthy and how dare we say that online.
Discussing the value of a human life, and figuring out how much the many are willing to sacrifice in order to treat the needy few, isn't something that should be out of bounds. I don't think the voices of the few should be silenced. Its uncomfortable maybe, but I think not a discussion to avoid.
How long does the patent last? It should be made available as a generic drug when the exclusivity period elapses, right?
By the way, that's one of the reasons drugs are so expensive: pharma co. needs to recoup the costs before the patents expire.
I can’t imagine how hard it must be for the dozens of people out there suffering from this rare ailment knowing a perfect cure/treatment is possible but not worth it for the shareholders.
In a world with nothing to loose I am surprised one of those people doesn't go John Q.
Earlier quoted context omitted.
In a world with nothing to loose I am surprised one of those people doesn't go John Q.
Or alternatively, try to hire some chemistry grad students to make some.
https://www.resetera.com/threads/guy-cures-himself-of-lactos...
Never mind non-practicing entities for software patents, but surely for patents on medicine keeping them valid when no one is making any is entirely bogus and not deserving of legal protection?
"Use it or lose it" / compulsory licensing doesn't seem like a terribly bad idea sometimes.