False hope for autism in the stem-cell underground

That's a nice, negative outlook and seeing as this is based on personal observation (ie anecdotes) and you made a grand sweeping statement: It's not hard to see that you are wrong if you've spent any time interacting with someone on the spectrum that has found a spot in society they fit into.

I'd say that this is no different for neurotypical people. If you find a good place where you can work and someone can pay you for it, and you can furnish your life in such a way that it doesn't clash with you, then you will be happy. Your premise that it compares at all to something that gives someone constant low-key pain is spurious and does a disservice to the fine human beings it refers to.

I honestly can't believe this is the top voted comment. There's a world of difference between HNers who've self-diagnosed themselves as autistic because they're a bit socially awkward and people like my severely autistic friend who needs specialist care and for whom life is a constant struggle.

It's incredibly insulting, actually.

I can understand why they changed the definitions, because both conditions have the same root cause (an issue with sensory processing) but I think it was a mistake. You've got a completely different presentation, and completely different treatments. So now any research into developing new therapies for autism will have to specify which subset of Autism spectrum disorder they are targeting, subsets which may not be well defined or consistent. I think eventually they will carve out sub-categories of autism based on which therapies they best respond to.

Sorry for delay in responding - is difficult at times to have the motivation and focus to respond to specific things.

First thing to understand is that 99.99% of doctors everywhere are just as naive and lack knowledge or any understanding of stem cells as well consumers, and more and more they are being indoctrinated by traveling sales people selling different tissue product like amniotic tissues, or sell conferences for training for offering more common (relative) like PRP (Platelet Rich Plasma: concentrated healing factors from your blood using a centrifuge to separate it - then injecting the PRP into areas to help support healing - usually along with bone marrow stem cell concentrate), or adult stem cells from adipose derived stem cells (from your tummy fat) or adult bone marrow (the bone marrow aspirate product, most commonly taken from the Iliac crests from either or both sides of the pelvis). Adult stem cells are the only stem cells currently legal to use in the US, and they're not allowed to culture them outside of the body to have more available for re-injection - say 500 million compared to 100 billion. There is a massive difference between adult stem cells and fetal tissue stem cells as well - they aren't as multi-potent, they can't turn into any cell. There is a lot of research necessary in simply identifying stem cell differentiations and what they are most potent for, whether they can be injected through IV or perhaps needing to be injected to a specific area, and so on.

Because there's so few places in the world where fetal stem cells are being used, perhaps only one that has been doing it for decades and in a clinical/research setting, there's little distribution of first-hand experience of doctors seeing benefits - and so of course they will be skeptical. Even for using adult stem cells the population of doctors who have seen any patients who went for treatment is still low.

Many doctors are skeptical even when hearing of results first-hand. My previous family physician, even though I had successful stem cell injections - both from adipose fat derived and bone marrow, with varying levels of potency on their healing over a two year period - him being an older man, he still didn't believe and was skeptical and disbelieving the healing that happened would last. Stem cells treatments aren't cheap, and I'm not wasteful - if they didn't work and I couldn't feel the healing, the significant and permanent reduction in pain each time then I wouldn't have continued. I live in Canada and have run into a number of problems with the healthcare system. Many seem to be systemic. One main conclusion I've come to is that doctors/professionals are primarily selected for their memorization skills vs. their critical thinking skills - so them integrating new information is difficult for them.

Re: Crohn's -

I'll assume you've done the dietary changes for Crohn's - and I'll ask if you've tried purely a carnivore diet (with no plants etc in the diet)? If you haven't tried carnivore diet (without seasoning except Himalayan salt for electrolytes) then I would recommend starting it immediately; the main thing to understand with carnivore diet is you need to eat a high fat diet, don't eat only or mostly lean meat - the more fat the better, otherwise people end up with different digestive issues.

Here's the link to the free documentary of the clinic I went to - https://stemcellsmovie.com/watch-the-god-cells/ - and a recent lecture/talk he gave at a conference January 25/2019 - https://stemcellsmovie.com/2019/02/january-25-2019-exclusive...

Here's their page on Crohn's - https://www.emcell.com/en/list_of_diseases/ulcerative-coliti... - they list their research numbers (before transplant, 1 month after, 6 months after), as well as have some video testimonials of clients/patients specific for Crohn's.

I was surprised at how well done and real the documentary felt. I believe the film maker spent 5 years filming to compile film and it. He follows people around who've done treatment including even going to where they live to interview their friends.

Here's the clinics main testimonials page - https://www.emcell.com/en/testimonials.htm

To note, I have a level of skepticism too - and I prefer to not refer people to places that I haven't had a solid positive experience from myself. However with my previous positive experiences of healing with my own stem cells being used (albeit adult) and the logic relating to the biology, this is my best chance for initiating holistic healing throughout my body. It's frustrating and will be difficult to wait the 3 months they said it would take for the healing relating to my symptoms to heal, however it makes sense with the speed of the growth of fetal tissue - it does take time for all of these processes to unfold, for stem cells to duplicate and differentiate.

The fact that all that the previous doctors were doing before removing adult stem cells and the supportive bone marrow fluid from my body, and then just relocating it directly into areas of injury meant that the healing abilities were already in my body - they were just locked where they were, the healing processes not activated. It seems like fetal stem cells most activate healing processes, and have the highest multi-potent ability. There are other promising treatments like MSC (mesenchymal stem cells) that through IV will initiate the body's healing potential, the MSC being taken from medical waste product from births (Wharton's Jelly of the umbilical cord) - which are called "Zero Day MSC" - however note that MSC cells are already 9 months old - the age of a newborn baby, and so they likely aren't as multi-potent as the stem cells from 7 to 12 week old fetal tissue. MSC however are young and potent in their duplication process and signalling for healing compared to the adult stem cells of whatever age and health your own body's currently are, so they would have an improvement over your own stem cells capabilities. In the future I envision a protocol for cascading through various treatments, and with proactive/preventative medicine and practices we'll be able to avoid many of these holistic dis-ease states.

matt@engn.com is my email if you have any questions, I would be interested to know if you go to the clinic as well and followup with you.