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Don’t Fix Facebook, Replace It

nytimes.com

21–30 of 281 posts

Re: Don’t Fix Facebook, Replace It

#21
post #4

I think in the long run we will use a decentralised/federated system. Privacy concerns aside, it just doesn't make sense to rely on one service or expect one social network to meet everyone's needs/desires.

I think this is exactly how health/medical data should exist. My family should have their own health/medical network node and only my direct healthcare providers should be able to access the data from it and only after I authorize them with a digital signature. Whatever data they generate about my person (or persons in my family) should be owned by me, stored in my family network, and only available to others after I…

Incidentally, I'm working in healthtech right now and I have looked at this a million different ways, and the first and biggest problem is the quality of the data and trust of the data. You make a big deal about after I explicitly authorize access, but once you've granted access, that's it ... what's to stop the doc from copying some info from your chart?

More relevant, what happens if you lose access to your data? Or it becomes corrupted? Now, because you owned your data, it's only your responsibility. You know who's not going to put up with that? Anyone who can afford to hire someone else (like a doctor) to keep track of their chart for them so that stupid stuff doesn't happen.

Most people don't realize that many of the connected health record problems have already had high quality solutions provided in the form of VistA (https://www.wikiwand.com/en/VistA). It's interface would make a startup designer cry, but medical professionals find it highly effective. Especially the network effect of being able to hand charts off and coordinate care, which would be very difficult in a decentralized health record world.

Re: Don’t Fix Facebook, Replace It

#22
post #11
post #9

Earlier quoted context omitted.

Uhmmm...just thinking out loud here. How feasible do you think it would be to use Mastodon for this? If you have a "Medical Node" as you put it (which I find apt btw), you could share it with your doctor(s) and provide access (maybe using Keybase? Auth0?) for them to either add "their own posts" with the analysis results, their findings, etc, or just to read the relevant data (e.g. for a dentist). Again, just thinkin…

Does Mastodon have a fax interface? https://www.vox.com/health-care/2017/10/30/16228054/american...

nice article.

"It turns out there are strong economic incentives for doctors to keep patient information to themselves — and even stronger incentives for electronic medical records not to play nicely with each other."

"While patients might want one hospital to exchange information with another hospital, those institutions have little incentive to do so. A shared medical record, after all, makes it easier to see a different doctor. A walled garden — where records only get traded within one hospital system — can encourage patients to stick with those providers."

Re: Don’t Fix Facebook, Replace It

#24
post #3

I think we need alternatives to text only communication. If we could judge each other's tones maybe we would chill out a bit.

Text can work OK between people who know each other well and are familiar with each other's patterns of speech and sense of humor. Not perfect, but generally OK.

Much worse between people who aren't so well acquainted. I'm actually in the middle of trying to mediate a disagreement based mainly on two entirely different perceptions of intent in some stuff that was written in an email.

Re: Don’t Fix Facebook, Replace It

#25
post #16
post #4

I think in the long run we will use a decentralised/federated system. Privacy concerns aside, it just doesn't make sense to rely on one service or expect one social network to meet everyone's needs/desires.

So, email then? It's decentralized, federated, and only sends data to the people you address it to (gmail excepted, I guess, at least in the free tier). It's what has always worked for me.

it should be email. but you need to build a fabulous UX on top of it that is as simple and instant gratification as Facebook, and you need to do it essentially for free, or with a grant or something, because it will never make a dime.

Re: Don’t Fix Facebook, Replace It

#26
Prof. Wu makes a couple of assumptions when he gives suggestions for Facebook alternatives or successors. I dont see those suggestions as the most important point of his argument however. I believe the most important point is that there must be competition, that trying to "fix" Facebook will not suffice.

Nonetheless, these are the assumptions I see:

1. The software alternatives or successors must be commercial.

2. The software must attract a certain quantity of users to be viable.

3. The software must enable networks comprising large numbers of people, perhaps in the millions or billions.

This scale is far greater than the average size of any Facebook users group of friends.

Over the years Facebook may have morphed into a "public square" for exercising "Free Speech" but in the beginning as I recall it was not a means to broadcast to other users outside of ones social circle.

Its primary utility is arguably still in enabling communication within small groups, not enabling broadcasting to the general public.

Wu's assumptions point toward a Zuckerberg-like centrally-managed approach to what I see as historically a locally-managed activity: the human tendency to form small groups.

For many years, gamers and others have been writing software to enable small groups to communicate over peer-to-peer networking, without any funding from advertisers.

Wu writes, "So what stands in the way of a genuine Facebook alternative? It isn't the technology."

Thats exactly right. IMHO.

Re: Don’t Fix Facebook, Replace It

#27

Earlier quoted context omitted.

I think this is exactly how health/medical data should exist. My family should have their own health/medical network node and only my direct healthcare providers should be able to access the data from it and only after I authorize them with a digital signature. Whatever data they generate about my person (or persons in my family) should be owned by me, stored in my family network, and only available to others after I…

I love this and I want it to be real but it won’t work. Here’s why... As an individual, I won’t lose my medical records because I have three backups and offsite and whatever. You probably do too. But how do you remain really decentralized when the system has to work for a 76-year-old who can’t even remember what Google is, much less his password. Will this work in the golden hour after a stroke, when literally every…

> So we would make a medical record “bank”, which is federated sensibly, and require everyone to use it. And eventually we end up with a similar system that we have now.

Except accessing your encrypted records require the presentation a doctor's key and your key, which might be a standardized health card with a chip. So not entirely similar to what we have now, it could be considerably safer.

Re: Don’t Fix Facebook, Replace It

#28

Prof. Wu makes a couple of assumptions when he gives suggestions for Facebook alternatives or successors. I dont see those suggestions as the most important point of his argument however. I believe the most important point is that there must be competition, that trying to "fix" Facebook will not suffice. Nonetheless, these are the assumptions I see: 1. The software alternatives or successors must be commercial . 2. T…

The useful feature that's missing if the network isn't large is being able to easily friend a new person. The extra friction of convincing a new acquaintance to join your social network means that it doesn't happen in a lot of situations.

Re: Don’t Fix Facebook, Replace It

#30

Prof. Wu makes a couple of assumptions when he gives suggestions for Facebook alternatives or successors. I dont see those suggestions as the most important point of his argument however. I believe the most important point is that there must be competition, that trying to "fix" Facebook will not suffice. Nonetheless, these are the assumptions I see: 1. The software alternatives or successors must be commercial . 2. T…

> This scale is far greater than the average size of any Facebook users group of friends.

Yes, but only an individual Facebook user. The problem is that my friends' friends' friends' friends' friends' friends encompass the entire human race: at some point, as I invite people who invite people who invite people, the underlying technology has to be able to support all mankind.

Indeed, I suspect that this — not some momentary privacy-failure flash-in-the-pan will be what leads to Facebook's actual downfall. It's ultimately building a proprietary Internet (in the sense of a fabric which connects people), and that's extraordinarily expensive. At the end of the day, the actual Internet is able to do that far more cheaply.

I imagine that the replacement for Facebook will be something like email: something under the control of its users, something anyone will be able to add himself to and anyone will be able to block.

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