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23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

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21–30 of 155 posts

Re: 23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

#23

The pros of using 23andMe has vastly outweighed any cons, real or hypothetical. Here is a pro: I was able to print out a 3 page report to give to my new doctor that described what medications I had a low / high tolerance for and what medical conditions to look out for as I grow older. My doctor was floored-- and as a result we do a few extra tests every year to keep track of a potential eye condition I am at a higher…

23andme doesn't provide this data. I'm assuming you exported your data to a 3rd party service. Could you share which one?

Re: 23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

#24
post #14

The data is anonymized, who cares? Good for 23andMe. We could learn very important things from that data in aggregate. We need more aggregated data in healthcare.

Anonymization of data is not a simple task. Even with the noblest of intentions things can go wrong. See the problems with the sharing of medical data in the UK and examples from the US [1].

[1] http://arstechnica.com/tech-policy/2009/09/your-secrets-live...

Re: 23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

#25

The pros of using 23andMe has vastly outweighed any cons, real or hypothetical. Here is a pro: I was able to print out a 3 page report to give to my new doctor that described what medications I had a low / high tolerance for and what medical conditions to look out for as I grow older. My doctor was floored-- and as a result we do a few extra tests every year to keep track of a potential eye condition I am at a higher…

23andme doesn't provide this data. I'm assuming you exported your data to a 3rd party service. Could you share which one?

+1 from a 23andme customer who still thinks this was a questionable "funvestment"

Re: 23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

#26

The pros of using 23andMe has vastly outweighed any cons, real or hypothetical. Here is a pro: I was able to print out a 3 page report to give to my new doctor that described what medications I had a low / high tolerance for and what medical conditions to look out for as I grow older. My doctor was floored-- and as a result we do a few extra tests every year to keep track of a potential eye condition I am at a higher…

Except you're not supposed to clinically interpret those results. That's why they got in trouble from the FDA sometime ago. And now you're putting extra stress on the health care system and opening yourself up to false positives, which may lead to some really bad outcomes.

Re: 23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

#27

The pros of using 23andMe has vastly outweighed any cons, real or hypothetical. Here is a pro: I was able to print out a 3 page report to give to my new doctor that described what medications I had a low / high tolerance for and what medical conditions to look out for as I grow older. My doctor was floored-- and as a result we do a few extra tests every year to keep track of a potential eye condition I am at a higher…

23andme doesn't provide this data. I'm assuming you exported your data to a 3rd party service. Could you share which one?

They used to

Re: 23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

#28

The pros of using 23andMe has vastly outweighed any cons, real or hypothetical. Here is a pro: I was able to print out a 3 page report to give to my new doctor that described what medications I had a low / high tolerance for and what medical conditions to look out for as I grow older. My doctor was floored-- and as a result we do a few extra tests every year to keep track of a potential eye condition I am at a higher…

23andme doesn't provide this data. I'm assuming you exported your data to a 3rd party service. Could you share which one?

23andme does provide health data in other countries like Canada.

Re: 23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

#29

The pros of using 23andMe has vastly outweighed any cons, real or hypothetical. Here is a pro: I was able to print out a 3 page report to give to my new doctor that described what medications I had a low / high tolerance for and what medical conditions to look out for as I grow older. My doctor was floored-- and as a result we do a few extra tests every year to keep track of a potential eye condition I am at a higher…

23andme doesn't provide this data. I'm assuming you exported your data to a 3rd party service. Could you share which one?

If you signed up for 23andMe when it was considered a medical testing lab rather than a medical device you can get a lot of extra information. I've heard you can use Genotation[1] to get something similar but I'm not sure how good a job they do on explaining things or telling you which parts come from multiple large studies and which are more speculative.

http://genotation.stanford.edu/#start

Re: 23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

#30
post #6

So on one side journalists lament lack of new drug development & just the shoddy state of healthcare tech, while as soon as any new data that can potentially unlock new drug targets (23andMe) or provider better support (Google DeepMind Health) is introduced, Such efforts are quickly demonized with spread of Fear, Uncertainty and Doubt. Rather than asking important questions such as at which level the "aggregate" data…

The 23andMe data is amazingly useful for academic research too. I am familiar with a study (but not involved), soon to be published, that used their data to identify genetic variants responsible for a particular problem with pregnancy. The price was phenomenally lower than a more typical genome wide association study (GWAS) of which there are several publicly funded efforts. The results are much cleaner than previous studies simply due to the large number of individuals involved. The privacy controls are very stringent too.
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