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The bureaucracy blocking the chance at a cure

writingruxandrabio.com

181–190 of 192 posts

Re: The bureaucracy blocking the chance at a cure

#181
post #115

Earlier quoted context omitted.

Imagine if we let doctors do medicine instead of letting profiteering beancounters optimize for number go up.

I can see why some things landed here. Medicine is expensive. Desperate people are more susceptible to fraud. Yet things are improving: someone like me would be long dead a generation ago. We should look at these challenges holistically and think about better fiscal/social engineering of our marketplaces. Alvin Roth's book, "Who Gets What and Why", is a good introduction to identifying market failures and thinking ab…

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Re: The bureaucracy blocking the chance at a cure

#182

Earlier quoted context omitted.

https://www.bbc.com/news/articles/c5yl7p4l11po > Lucy Connolly, 42, whose husband serves on Northampton Town Council, pleaded guilty in September after posting the expletive-ridden message on X the day three girls were stabbed to death in July 2024. > She was released from HMP Peterborough earlier after she was handed a 31-month prison sentence in October at Birmingham Crown Court. Like this one? I mean this is not s…

Missing a piece of that? >Connolly, from Northampton, called for "mass deportation now" and urged her followers on X to "set fire" to hotels housing asylum seekers. This is probably not considered protected speech in the US either

> This is probably not considered protected speech in the US either

You're absolutely right

https://www.cbsnews.com/news/california-man-charged-threaten...

> An indictment unsealed Tuesday lists out a series of angry Facebook messages that Streavel allegedly penned about Mr. Trump both before and after the election — some of which expressed a desire for him to be assassinated.

https://www.justice.gov/usao-dc/pr/indiana-woman-charged-mak...

> Nathalie Rose Jones, 50, of Lafayette, Indiana, was arrested in the District of Columbia on Saturday, August 16, and charged in connection with making a series of threats on social media in which she threatened to kill President Trump, announced U.S. Attorney Jeanine Ferris Pirro.

Re: The bureaucracy blocking the chance at a cure

#183

Earlier quoted context omitted.

Your comment contains nothing of value. If you have a better way to allocate scarce resources please state it.

These resources are only scarce because of artificial scarcity. This is especially true of patent medicines, where it's government enforced artificial scarcity.

If not for the government enforced artificial scarcity then many of those medicines wouldn't exist in the first place. Bringing a new drug to market costs >$1B now, largely due to clinical trials. No one is going to do that without patent protection.

Re: The bureaucracy blocking the chance at a cure

#184

As someone who has looked at things like Renewable energy deployments within the UK, this is a pattern that seems to be quite pervasive across all industries. The byzantine web of planning approvals, goose counting, public outcry that you have to deal with to deploy essentially a relatively small solar farm is monstrous. What that results with is that the only people capable of creating & managing these processes hav…

UK planning law is not the same as medical research regulations. UK planning law is the physical manifestation of legal tech debt. It will not be tackled until the daily mail and their readers are dead, and not replaced. To make changes it requires lots of will from the government, and the consent of a bunch of people who are unlikely to give it. medical regulation is fucking trivial by comparison. Most of it is arms…

People may not realise how bad uk planning law is unless they are here. Anybody can veto a development for any reason, and there is no disincentive to do so even if it is found to be spurious. They can just do it again. A development isn't just building either, it can be as simple as changing the use of something or making an improvement to it. On top of that are all the actual regulations, newt surveys, listed buildings restrictions, etc, and the many months of associated delays and costs with each one. In London the body set up after Grenfell now has a 10 month backlog and approval rate of 30%, so nothing is built in London except storage centres.

Re: The bureaucracy blocking the chance at a cure

#185
post #183

Earlier quoted context omitted.

These resources are only scarce because of artificial scarcity. This is especially true of patent medicines, where it's government enforced artificial scarcity.

If not for the government enforced artificial scarcity then many of those medicines wouldn't exist in the first place. Bringing a new drug to market costs >$1B now, largely due to clinical trials. No one is going to do that without patent protection.

Medical patents should come with compulsory licensing requirements. Nobody's saying that research houses shouldn't get paid, just that the monopoly needs to end.

Re: The bureaucracy blocking the chance at a cure

#186

Earlier quoted context omitted.

That sounds about right. Lots of abuses have been perpetrated by opportunists, charlatans, fraudsters all for money, as you put it. I just want to make sure we correctly distinguish what is meant by "opportunists, charlatans, fraudsters." In the spirit of full transparency, I've listed some of the most well-known cases. Others, due to the Iron Curtain and similar curtains are hard to document, due to lack of visual i…

Quite remarkable how you are unable to make the link between "unethical medical experiments bad" and "maybe we should have some sort of medical ethics regulating whether people are able to perform a medical experiment"...

Ok, now you are grasping at straws by trying to find faults in my logic. I am able to distinguish just fine. Most people, me included, are just tired of managing their deceases vs having an actual, permanent solution that works. The modern medical establishment's therapeutic approach has evolved to focus on the former and totally ignored the latter. In doing so, it has failed its patients, alienating them in the process, all in the name of greed. Self-interest and greed are universal concepts. Don't worry, once the singularity comes about, things will change, for better or worse, but hopefully for the better ;)

Re: The bureaucracy blocking the chance at a cure

#187

Earlier quoted context omitted.

Have you ever tried writing a long, complicated document with an LLM? The last 20% takes 99% of the work.

> The last 20% takes 99% of the work. Of course it does, since the first 80% take literal minutes! But if you compare to doing it entirely manually, it's still x5 more efficient. Why would you do it all by hand (spending 200hours in the process…) when you're an “AI entrepreneur”… In fairness, it pains me to see people as gullible as you are just because you like the idea of the story being true.

You don't understand how the technology in question works, and you're just making shit up because you don't want to admit to being wrong.

What are you alleging here anyways? That all the scientists quoted and photographed in the article discussing their part in making the vaccine are in on the game? That the Australian made the story up wholesale? Come on.

Re: The bureaucracy blocking the chance at a cure

#188

Earlier quoted context omitted.

I'd say the underlying problem is our capital-first regulatory environments. For the topic of the original article, anyone can see that it would be reasonable for a guy who loves his dog to make what appears to be a prudent medical decision in her interest, trying out an unknown vaccine without any sort of government involvement - and a government that prevents this is unjust . But with the way the system is set up,…

The same government that writes these regulations also has a department that rounds up and kills stray dogs so this regulation is stupid at any scale.

The same government also allows and profiteers from people murdering animals in the thousands every day, to be dismembered and sold

Re: The bureaucracy blocking the chance at a cure

#189
post #74

Earlier quoted context omitted.

Its a double edged sword. yes, it stifles renewable energy innovation, but those rules are usually put in place in a more general sense, and you would really want them in place if next door was suddenly announced to be a landfill, or chemical plant, or a chicken farm, or an xAI datacenter....

I think you've stumbled on the core problem - it's a lot easier if you have the funding to be able to do all of those things. xAI would have the capital and lawyers necessary to push it through no matter what. You can hire "independent" environmental consultants to allow for these projects to be made with enough capital. The problem with the UK is that these rules absolutley do not apply to be big players, it's a cas…

I've personally seen the opposite where a government regulator hired an independent environmental consultant to document the decline of wildlife in a specific area. The problem was their findings were that the wildlife were actually doing exceptionally well in that area. The government promptly ignored the results and then stopped providing any further studies on the wildlife population under the logic they were never required to.

Re: The bureaucracy blocking the chance at a cure

#190

As someone who has looked at things like Renewable energy deployments within the UK, this is a pattern that seems to be quite pervasive across all industries. The byzantine web of planning approvals, goose counting, public outcry that you have to deal with to deploy essentially a relatively small solar farm is monstrous. What that results with is that the only people capable of creating & managing these processes hav…

Speaking as someone from the US, this is by design. If there was a single track for approval, it'd be really easy for a motivated group to get stuff done. By requiring multiple overlapping layers of approvals (often in direct contradiction to one another) it ensures each layer of government can get their hands in the very much real cookie jar.
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