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The bureaucracy blocking the chance at a cure

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Re: The bureaucracy blocking the chance at a cure

#171

Post by rkangel »

joenot443 wrote: post #31

I'm glad this is getting more attention! I posted the original reporting from The Australian yesterday - it's a good primer. https://news.ycombinator.com/item?id=47379740 https://archive.is/pvRaG

I'm amazed no-one has used the term "Regulatory Drawbridge". It's a classic thing that happens in a number of industries - the big players push for more and more regulation. It costs them money and time, but it makes a massive barrier for new incumbents who don't have the cashflow and manpower to work through the regulatory process.

Medicine is the classic example, but it's happening in the tech industry too. The FAANGs of the world took advantage of an unregulated landscape, but now that they're in the castle they're pulling up the drawbridge behind them.

(sidenote - this is why regulation like the Digital Markets Act in the EU should be great. It's only a cost to larger businesses. In practice we're not yet seeing the changes that it should create).

Re: The bureaucracy blocking the chance at a cure

#172

Post by endymion-light »

KaiserPro wrote: post #166
endymion-light wrote: post #14

As someone who has looked at things like Renewable energy deployments within the UK, this is a pattern that seems to be quite pervasive across all industries. The byzantine web of planning approvals, goose counting, public outcry that you have to deal with to deploy essentially a relatively small solar farm is monstrous. What that results with is that the only people capable of creating & managing these processes hav…

UK planning law is not the same as medical research regulations. UK planning law is the physical manifestation of legal tech debt. It will not be tackled until the daily mail and their readers are dead, and not replaced. To make changes it requires lots of will from the government, and the consent of a bunch of people who are unlikely to give it. medical regulation is fucking trivial by comparison. Most of it is arms…

Fully agree - I think there's a core legalism inherent with especially the british political class. The first indication is always to build more guardrails and take fewer risks. It ends up killing innovation

Re: The bureaucracy blocking the chance at a cure

#173

Post by endymion-light »

briffle wrote: post #74
endymion-light wrote: post #14

As someone who has looked at things like Renewable energy deployments within the UK, this is a pattern that seems to be quite pervasive across all industries. The byzantine web of planning approvals, goose counting, public outcry that you have to deal with to deploy essentially a relatively small solar farm is monstrous. What that results with is that the only people capable of creating & managing these processes hav…

Its a double edged sword. yes, it stifles renewable energy innovation, but those rules are usually put in place in a more general sense, and you would really want them in place if next door was suddenly announced to be a landfill, or chemical plant, or a chicken farm, or an xAI datacenter....

I think you've stumbled on the core problem - it's a lot easier if you have the funding to be able to do all of those things.

xAI would have the capital and lawyers necessary to push it through no matter what. You can hire "independent" environmental consultants to allow for these projects to be made with enough capital.

The problem with the UK is that these rules absolutley do not apply to be big players, it's a case of stifling smaller innovators while letting larger ones get off scot free.

Re: The bureaucracy blocking the chance at a cure

#174

Post by aitchnyu »

fc417fc802 wrote: post #141
nxobject wrote: post #119

Earlier quoted context omitted.

Everyone wants the datacenter somewhere in their country for sovereignty... just not next to them. Quelle surprise. At this point you may as well build supermarkets on top of them just to sell 'em to people.

They're so absurdly capital intensive at this point that they probably ought to be buried at least 50 meters down. If any reasonably capable countries ever face off directly they'll probably be one of the first things to go.

US suburban development followed nuclear war threats. Will history repeat itself by unconcentrating servers?

Re: The bureaucracy blocking the chance at a cure

#175

Post by ACCount37 »

c0balt wrote: post #106
ACCount37 wrote: post #92

Earlier quoted context omitted.

It's an animal, and a terminally ill one at that. What's your worst case scenario? Is it that the dog dies faster than it would have? That's not actually an issue. We already have vets who just put terminally ill pets down. So, who does the bureaucracy help? Who's protected by it? Why is it there at all?

It is there to ensure an animal is not experimented on unnecessarily or with excessive pain. Discussing a process like this might require you to slightly look further than one mostly clear cut case. Part of his filings will be actually stating the "terminally ill" part and having this approved by an ethics committee. Making a moral judgment here is the committee's actual role as not all cases are so "simple".

That entire 3 months process?

It could have been a single informal paper that says "the animal is terminally ill, my judgement call is that this is unlikely to cause excessive suffering and might help instead, even if the chances are low, and if my judgement is proven wrong and this appears to cause excessive suffering the animal will be put down humanely". Signed by the veterinarian and the owner.

Because the system is high speed low drag, and trusts the veterinarian and the owner to make reasonably good calls about pet health and suffering - unless proven otherwise by overwhelming evidence. The system trusts people by default, and that 3 months long process and an ethics board come into play when there's a suspicion that this trust may have been abused.

Of course, that's not the world we live in. Which is why we're having this conversation.

Re: The bureaucracy blocking the chance at a cure

#177

Post by fc417fc802 »

aitchnyu wrote: post #174
fc417fc802 wrote: post #141

Earlier quoted context omitted.

They're so absurdly capital intensive at this point that they probably ought to be buried at least 50 meters down. If any reasonably capable countries ever face off directly they'll probably be one of the first things to go.

US suburban development followed nuclear war threats. Will history repeat itself by unconcentrating servers?

Given the rapidly increasing power densities I expect it would be far more straightforward to bury them. I believe a single 42u rack of last gen nvidia hardware is already more energy intensive than the HVAC for a mcmansion.

However it occurs to me that the electrical grid becomes a high priority military target in this scenario. Maybe datacenters should go all in on building their own power plants.

Re: The bureaucracy blocking the chance at a cure

#178

Post by BigTTYGothGF »

terminalshort wrote: post #113
BigTTYGothGF wrote: post #85

Earlier quoted context omitted.

The context is medical regulations.

What blood is the regulation that doctors can't see patients in other states written in?

That's not a regulation, it's a consequence of a bunch of individual regulations.

What's the alternative? Federal licensing would be good but poking around wiki it looks like the basis of medical licensing in the first place is "states' rights" so good luck with that. Reciprocity would also be good and hey! it turns out it's being worked on : https://www.ama-assn.org/system/files/fsmb-interstate-medica... https://imlcc.com

Re: The bureaucracy blocking the chance at a cure

#179

Post by BigTTYGothGF »

Aurornis wrote: post #124
observationist wrote: post #109

Earlier quoted context omitted.

Imagine if we let doctors do medicine instead of letting profiteering beancounters optimize for number go up.

Step therapy is required in countries with universal healthcare, too. It can actually be harder to get access to new therapies in countries with universal healthcare because they’re more uniform and strict in what they allow. For a relatable example: The UK just raised the age of eligibility for COVID vaccines all the way up to 75 years old: https://www.mirror.co.uk/news/health/covid-russian-roulette-... Contrast thi…

> the US where COVID vaccine coverage is a basic expectation of health insurance for all ages

That wasn't a sure thing this past year and there's always a risk it won't be next year. (https://www.pbs.org/newshour/health/fact-checking-rfk-jr-s-c...)

Re: The bureaucracy blocking the chance at a cure

#180

Post by iso1631 »

bpodgursky wrote: post #137
duskdozer wrote: post #132

Earlier quoted context omitted.

Missing a piece of that? >Connolly, from Northampton, called for "mass deportation now" and urged her followers on X to "set fire" to hotels housing asylum seekers. This is probably not considered protected speech in the US either

Lol there would be 40 million Americans in jail if this wasn't protected speech. Either way, doesn't matter I made this claim two ways: > the UK will put you in jail for tweets > people in the UK in jail for tweets deemed to be incitement to violence and there is no question whatsoever that what I said was true. Like it or hate it, I don't care, these are true statements.

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