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Having your insulin pump die while you're on vacation

blog.lauramichet.com

151–160 of 203 posts

Re: Having your insulin pump die while you're on vacation

#151

Earlier quoted context omitted.

Oh, and one more thing. I always keep a blood glucose meter in my backpack. You know, that medieval-age stuff with the finger-pricker and test strips. (You can buy one for about €10 in pretty much any pharmacy in Europe, but it’s better to already have one with you.) And pen needles, too.

P.S. As a European, I genuinely struggle to understand how you cope with your healthcare situation. In France, in a small mountain village, I walked into a pharmacy and, through a combination of gestures and sketches, managed to buy a box of rapid-acting insulin at full price (around €30–40). The insulin was clearly available. The issue was purely bureaucratic — technically I needed a prescription from a French docto…

> As a European, I genuinely struggle to understand how you cope with your healthcare situation.

As an American, most Americans don't realize how bad it is because everything seems fine when you are insured and only need basic care. The huge problems aren't immediately apparent until you suddenly get diagnosed with something serious and become a cost center for your private insurer instead of pure profit for them. At that point they realize how fucked they are and how much the insurance company will fight tooth and nail to deny care.

Everyone else tries to ignore how fucked those people are out of superstitious belief that maybe they too will fall into the Unfortunate Situation group if they think about it too much.

Re: Having your insulin pump die while you're on vacation

#152
Ask us about the 27 phone calls and TEN DAY DELAY AS WE REACHED OUT TO FIVE CLINICS to get a mohs surgery scheduled for my son, 23, in the bay area, with diagnosed and biopsied melanoma.

The USA medical system is really fucked up. Finally a Canadian in Vancouver hooked me up with a plastic surgeon while on vacation who agreed to end his vacation early and do the surgery in Campbell, CA ( South San Jose )!

Re: Having your insulin pump die while you're on vacation

#153

Earlier quoted context omitted.

Oh, and one more thing. I always keep a blood glucose meter in my backpack. You know, that medieval-age stuff with the finger-pricker and test strips. (You can buy one for about €10 in pretty much any pharmacy in Europe, but it’s better to already have one with you.) And pen needles, too.

P.S. As a European, I genuinely struggle to understand how you cope with your healthcare situation. In France, in a small mountain village, I walked into a pharmacy and, through a combination of gestures and sketches, managed to buy a box of rapid-acting insulin at full price (around €30–40). The insulin was clearly available. The issue was purely bureaucratic — technically I needed a prescription from a French docto…

[dead]

Re: Having your insulin pump die while you're on vacation

#154

There are several strange things here. > Flagstaff did not have any insulin for me. This seems… impossible. They could be out of a specific SKU of Lantus pen , but that’s an entirely different thing from a pharmacy not having any long- or intermediate-lasting insulin. They probably had Lantus vials, or other glargine biosimilars, or NPH insulin or dozens of other types of insulin. > the Tandem tslim X2 requires the u…

> To tell the truth: I do not even know how to use the pen. I have never needed to do this in my life.

I truly do not understand how one could have T1D for 27 years and still be alive with this attitude. Don't get my wrong, I'm happy she is! And maybe that's just my own limited experience of managing my foster daughter's T1D for the past year talking but... Man, this year has been a rude education in how many ways all of these necessary-for-life pieces of equipment and medications can go wrong and how easy it is to get into a life-threatening situation.

Going more than 30 minutes from home without extras of everything (Dexcom, glucometer, fast-acting, long-acting, glucose tabs, glucagon) is completely unthinkable.

Re: Having your insulin pump die while you're on vacation

#156

Earlier quoted context omitted.

Oh, and one more thing. I always keep a blood glucose meter in my backpack. You know, that medieval-age stuff with the finger-pricker and test strips. (You can buy one for about €10 in pretty much any pharmacy in Europe, but it’s better to already have one with you.) And pen needles, too.

P.S. As a European, I genuinely struggle to understand how you cope with your healthcare situation. In France, in a small mountain village, I walked into a pharmacy and, through a combination of gestures and sketches, managed to buy a box of rapid-acting insulin at full price (around €30–40). The insulin was clearly available. The issue was purely bureaucratic — technically I needed a prescription from a French docto…

In the US every CVS had rapid acting insulin for $35 for one month supply. This is not special to europe.

Re: Having your insulin pump die while you're on vacation

#157

Friend, you’re diabetic. Your survival is ultimately your own responsibility. Prepare yourself for a few hard truths. No one — including nurses and doctors who are not specifically trained in diabetes management — truly knows your situation. I had a TIA. I was barely functioning, hospitalized, semi-conscious. Not a single person in the ER, nor during the entire week I was admitted, stopped to think that maybe I wasn’…

You didn't bring glucose tabs or glucagon with you or get more when you ran out? Was it an overconfidence in your ability to feel low?

Exactly my question. Something is missing in this story. We carry a bag of sugar, juice mix, biscuits and candy

Re: Having your insulin pump die while you're on vacation

#158
It's only tenuously related to TFA but recently I've been trying to move almost all of my recreational internet browsing to the indie web. I've been populating freshrss with the ultimate aim being that I can mostly read everything on airplane mode.

Anyway I was reading through the newly published articles on Bear's discover tab and found this article on there with no upvotes. It's the first time I've seen something go from obscure to frontpage HN

Re: Having your insulin pump die while you're on vacation

#159

Friend, you’re diabetic. Your survival is ultimately your own responsibility. Prepare yourself for a few hard truths. No one — including nurses and doctors who are not specifically trained in diabetes management — truly knows your situation. I had a TIA. I was barely functioning, hospitalized, semi-conscious. Not a single person in the ER, nor during the entire week I was admitted, stopped to think that maybe I wasn’…

You didn't bring glucose tabs or glucagon with you or get more when you ran out? Was it an overconfidence in your ability to feel low?

As a type-1 diabetic, in my experience it is perfectly possible to end up in a situation like this even if you are responsible. Remember, type-1 diabetes is a condition that requires your attention tens if not a hundred times per day. This is not just on good days, but also on your very worst days when you are juggling everything else that life throws at you and you may not have slept properly for days. So, maybe you had noticed that your emergency glucose was low, but in this instance out of a hundred you forgot to replace it when you came home because you were exhausted and then overslept and had to rush out in the morning. What makes type-1 diabetes challenging is not that you can not technically manage every single one of the decisions and actions that it demands out of you, it is that you must carry them out under all conditions and largely without fail for every day in your life or you will suffer both short-term and long-term consequences. Everyone I know has had a nightmare episode.

Just a final recent anecdote to illustrate some of the complexity. It may look like maths on the surface, but even something like "carbohydrate ratio" is a fluid concept. Yesterday for example I was out and about in the sun and had the very same bottle of sweet tea that I have had for months. Given that I knew I was physically active and it was hot, I reduced the usual dosage for this specific drink by 80% to be on the safe side. To my surprise, on this particular day for whatever reason this was still far too much and I pushed myself into hypoglycemia in little over an hour. We humans are highly dynamic and complex systems and this is me failing with the very best technology we have available: Insulin pump and continuous glucose monitor.

Re: Having your insulin pump die while you're on vacation

#160
post #156

Earlier quoted context omitted.

P.S. As a European, I genuinely struggle to understand how you cope with your healthcare situation. In France, in a small mountain village, I walked into a pharmacy and, through a combination of gestures and sketches, managed to buy a box of rapid-acting insulin at full price (around €30–40). The insulin was clearly available. The issue was purely bureaucratic — technically I needed a prescription from a French docto…

In the US every CVS had rapid acting insulin for $35 for one month supply. This is not special to europe.

Are you talking about the Lilly Insulin Value Program? If you're uninsured, you do need to get the savings card but it's mostly a matter of filling out the form. And that's only since they started the program in 2020.
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