Earlier quoted context omitted.
I commend you for speaking openly about Peyronie's, I imagine that isn't always an easy thing to do (or to deal with). Best of luck, and I hope you manage to make progress with it. Effective treatment wouldn't get as much airtime as effectice cancer treatments, but it would certainly have a positive effect on the lives of millions of men.
You are right on the mark. What triggered me was the slide in Sid's presentation: "Assessing Fibroblast Content of Tumor". Peyronie's is all about Fibroblasts. I actually typed my reply quite a few times, deleting mention of Peyronies and retyping it. It's a shameful condition for me, and I realize that I have to get over this. Peyronie's affects 1% to 20% of men, primarily because it's (if you're anything like me) -…
Founder of GitLab battles cancer by founding companies
151–160 of 285 posts
Re: Founder of GitLab battles cancer by founding companies
#152Earlier quoted context omitted.
How are you now?
Doing well. We've not seen the cancer for 10 months (not for lack of trying) and I'm enjoying an international trip for pleasure!
Re: Founder of GitLab battles cancer by founding companies
#153so many of these now. it is so sad and scary. been thinking about prenuvo all the time now but not sure if thats going to help or make me more paranoid.
But a friend of mine went through a different diagnostic procedure and found things of equal clinical significance and went through a large number of interventions which he didn’t really need it now turns out. And then I understood why people provide this warning.
So the first question to ask yourself is which kind of person you are.
Re: Founder of GitLab battles cancer by founding companies
#154Sounds like some lame ass tech founder bullshit if I’ll be honest. If I had cancer the last think I’d be thinking would be to make a slide deck about it. Can these robot people come back down to earth and have a genuine human experience for a chance? Not everything has to be framed in the view of a startup company or a data analysis exercise. Maybe focus on spending time with your family and friends? If they still li…
Who hurt you?
Re: Founder of GitLab battles cancer by founding companies
#155Sounds like some lame ass tech founder bullshit if I’ll be honest. If I had cancer the last think I’d be thinking would be to make a slide deck about it. Can these robot people come back down to earth and have a genuine human experience for a chance? Not everything has to be framed in the view of a startup company or a data analysis exercise. Maybe focus on spending time with your family and friends? If they still li…
He’s been public that he’s ten months clear now. Some prefer to accept undesirable circumstances. Others prefer to oppose them. He’s one of the latter. A little paraphrase of Dylan Thomas’ work here is something I’m fond of: Do not go gentle into that good night Rage, rage against the dying of the light And if he’s successful, which hopefully now he has a much better chance of, there are all these new medical results…
Re: Founder of GitLab battles cancer by founding companies
#156"Bureaucracy" isn't blocking new and better treatments, privatized healthcare and research is.
Re: Founder of GitLab battles cancer by founding companies
#157This is the most supremely motivating post I've seen in a long time. I know what it is to be diagnosed with cancer, being rushed to surgery - it's amazing how quickly the medical-industrial complex can move once you've got a diagnosis (at least in Australia). I had a short period of contemplating terminally, because cancer claimed the life of most of my family. Thankfully, after surgery it was gone. To see Sid use hi…
Given your personal experience, I expect you know significantly more than I do, but I just wanted to note: about 20 years ago, I was part of a small company that filmed and edited educational, medical videos for various clients. One of the main things we filmed for a while were Peyronies repair surgeries. They were using a product called Surgisis from Cook Medical as a tissue scaffold to straighten things out. It loo…
Re: Founder of GitLab battles cancer by founding companies
#158Thanks for posting this. Happy to answer questions!
Ps. I work for BillionToOne oncology and we build some of the most sensitive liquid biopsy tests (https://www.northstaronc.com/). Feel free to reach out if it pique your interest!
Re: Founder of GitLab battles cancer by founding companies
#159Earlier quoted context omitted.
Given your personal experience, I expect you know significantly more than I do, but I just wanted to note: about 20 years ago, I was part of a small company that filmed and edited educational, medical videos for various clients. One of the main things we filmed for a while were Peyronies repair surgeries. They were using a product called Surgisis from Cook Medical as a tissue scaffold to straighten things out. It loo…
Thanks for your thoughtful comment! You're right - Biodesign can be used in Plaque Incision and Grafting (PIG) for Peyronies. Unfortunately PIG IMHO has (in some studies I have read) a 50/50 chance of erectile dysfunction, nerve injury, instability and so on. In essence, PIG might be rolling the dice to make a bad situation completely untenable. But again, I do thank you for your comment!
Re: Founder of GitLab battles cancer by founding companies
#160Earlier quoted context omitted.
Thanks for your thoughtful comment! You're right - Biodesign can be used in Plaque Incision and Grafting (PIG) for Peyronies. Unfortunately PIG IMHO has (in some studies I have read) a 50/50 chance of erectile dysfunction, nerve injury, instability and so on. In essence, PIG might be rolling the dice to make a bad situation completely untenable. But again, I do thank you for your comment!
Thanks for the kind response, and for teaching me more about the possible risks and downsides. I was just involved in the editing of the surgical footage, so I never got the "here's the potential drawbacks" speech. I wish you all the best in finding improvement for your situation!