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Being deaf

davidpeter.me

151–160 of 161 posts

Re: Being deaf

#151

I appreciate taking the time and effort to put this article out there, and hope that it will help us hearing folk to improve our dealings with deaf people, but I can't help but have the following thoughts: 1) can the poster not lip-read? I realize it's not 100% accurate and you only get the portion of the conversation from the person you're looking at at the moment but from the description it sounds as if the poster…

I'm profoundly deaf, but my parents worked to integrate me into hearing culture. Which means lip reading.

Lip reading is not a panacea. To illustrate, try mouthing the words "I want to vacuum" -- and be careful who you mouth them to!

Re: Being deaf

#152
post #56

Earlier quoted context omitted.

As a person who was raised with two different household languages at different times, I can offer anecdotal evidence that this holds true. My refugee parents decided that their native language (Romanian) would be an obstacle for me in their new country (Thailand) and went for English instead. Then we got asylum in Sweden and I learned Swedish in kindergarten and so on. In Sweden my parents started speaking Romanian a…

So you learned English from TV? I thought I've always heard that didn't work.

It doesn't work well if you just put a TV on around a very young child. But if you're paying attention (and a bit older) it should work OK.

Re: Being deaf

#153
Thank you for sharing that post and having the courage to express your feelings. I could never understand what it must be like to be deaf. But being gay, and a mid-20's software developer, I felt many of the same feelings you described reading your post.

It took me many years after college to finally work for a company where there was another developer who was gay and also happened to be my age. We never worked together on projects, but did talk after-work sometimes, just knowing that I wasn't some sort of anomaly was reassuring in many ways.

Like Deaf pride, I don't identify with Gay pride either. Being a shy person to begin with, I have no desire to call more attention to myself. My friends and family know, but I never worked out how to ever share that with co-workers. Unfortunately as a result people assume I'm straight. In a male-dominated work environment, that can be extremely isolating, even hurtful when the inevitable gay-bashing lunch conversation comes up, those are moments where I would gladly borrow your deafness.

Over the years, it becomes a lot easier as I learned to reconcile my feelings, and I figure it'll get easier when I meet someone special enough to frame in a picture, and put on my desk at work. Just like you will.

Re: Being deaf

#155
I have a family member who is hearing impaired, as well as having worked closely with someone who is hearing impaired ... I have mixed emotions reading this article, and am glad you were able to see a path before starting another new adventure... remember people aren't mind readers, if you don't show them, they will not understand without having traveled your path before... GL

Re: Being deaf

#156
Thanks David.

You are so correct about access services. I am dyslexic/disgraphic to the point that I can't write with a pen and paper. I flet like access services was interseted in helping me pass classes but not excel.

Having issues with reading and writing is nothing like being deaf but many of us who want to achieve despite/with our disabilities struggle with the expectation that we accept merely passing.

When I took organic chemistry I was unable to write out chemical formulas and at the time there was no software to quickly type that information.

My school provided a note taker who was averaging a D in the class when I needed a B or better to graduate and keep my scholarship. In the end another student and I had to birbe a classmate for notes, which was a violation of the honor code.

Being dyslexic is nothing like being deaf

Re: Being deaf

#157
As someone who's been deaf since 18 months of age (Meningitis), I feel your pain David. I'm fairly lucky, as my hearing loss means I'm just within the bracket of being able to use a hearing aid, which are the most powerful ones on the market, but I suspect within a decade or two I'm probably going to need a cochlear implant myself.

The difficulty for me is being between two worlds, I can speak well enough that most people don't realise I'm deaf, which creates its own problems as they won't compensate for speaking to a deaf person, even if they know how. Since I was always able to hear with hearing aids, I never learnt to sign as I and others didn't feel it was needed. Lip-reading and a degree of hearing as enough to get by. So when you can't hear well enough to be completely at ease among normal people, but you can't sign either, so you're barred from the totally deaf community too.

I'm in my 30s now, and I've been through the denial, self-loathing and social ostracisation through my teens at school and 20s in University that made life pretty hard. As you've pointed out in your article, people don't intentionally exclude you if you're deaf - but if you miss every other word in a conversation it gets embarrassing asking people to repeat themselves every few seconds! A work environment isn't too bad in my experience, social environments are a whole 'nother thing though. Pubs? Clubs? Even a quiet cafe usually has too high a level of background noise to understand someone...

That said though, don't be disheartened when it comes to relationships. I've had 3 'proper' relationships over the years, the first wasn't until I was older than you are now. All of them have been positive, and my girlfriend in each case has never had an issue with my hearing. If someone wants to get to know you, they will make small sacrifices, small changes in their behaviour if that's what it takes to get to know you. If they're not prepared to make any changes, well, chances are they're not worth knowing in the first place! Simple things like "face me when you're speaking", "Don't talk with your mouth covered", "Make sure you have my attention before you start speaking" are not that hard to do, and remember: It says a lot about the person in question if they can't even be bothered with such simple things.

Sadly, you may find that your deafness will shape what kind of job you ultimately feel most comfortable in. It'd be nice to think that in this day and age, any job should be open to someone with a disability, but that's certainly not going to be the case. Personally, I'm self-employed with my own company after dabbling in the Biotech industry after leaving Uni.

The key thing is, there are awesome people out there who will be good friends. It's just harder to find them for you than it is for normal people. I'm lucky in that the friends I made in High School are still, 15 years later, the best friends I have ever made. Even if it sucks to go into social situations because being the guy "sitting quietly in the corner" gets old very fast, know that every so often you will hit it off with someone and it'll make up for all the crappy times!

Re: Being deaf

#158
I know this is probably a few days late but just came across this article. Now this is an interesting perspective, I am deaf as well - and I have a bilateral cochlear implant. Now I have been working in the IT industry for over 16 years as a developer, infrastructure support guy and more. I have worked for companies such as IBM, Shell Oil Company which of course required alot of interaction. One thing though we the deaf individual have to be proactive and we can't be reactive. Most of the time the hearing counterparts really do not know what we can or can't do. Unless we become a bit more assertive. Now but one thing I am a bit puzzled, you indicate you don't want to be a part of the deaf community - but what about organizations and individuals who are part of HLAA? Hearing Loss Association which is really more geared to "oral" deaf individuals but not necessarily in an ASL format. I am not really understanding this part. I am very involved in the deaf community, as well interact with people from HLAA and as well part of the hearing community. But I have to be proactive to make things happen. And don't look as one or two people from the deaf community and think they ALL are like that because they aren't. It would be like everyone reading your article right now and thinking all of us are like you - but we aren't. I chose NOT to think in a negative light and think positively. It is a tiring job but it is the only way we can educate our peers otherwise we get lost in the limelight. And honestly society nowadays are much more sensitive and understanding about people with disabilities than in the past. I admire your passion to really get out there - and admire the fact that you wrote an article on this. But the same time - think positively life is too short! :) And also - the talk about getting with a deaf or hard of hearing girl and having deaf/hoh babies is unrealistic. It has to come from the genes (like mine - my parents are deaf) but if you because deaf because of sickness or something else and if you hook up with a deaf/hoh lady who also became deaf because they were sick or non-genetic reasons your chances of having deaf babies are VERY VERY slim. I have seen so many CODA (Children of Deaf Adults) who have succeeded well in life - my kids who are CODA - all three of them are in Honors Program (and they all three are hearing) and their first language was ASL. Again as I said, think positive you will go far!

Re: Being deaf

#159
Thanks for sharing, David. I have the same experience as you even though I am not deaf. The things about me is that I am a Hmong refugee from Thailand, uneducated, and had no background knowledge of American. At the ages of 13, I came to the United States not knowing a word in English. I started learning English alphabet and words when I arrived here. After a year of trying to learn English, I went straight to high school. That's when I realized how hard it was to live in a world where you don't understand what people are saying, but the situation force you to live with it. I have been in the same situation as you, which to live among others who could easily communicated to one another. I went to high school without friends and without talking to anyone for 2 years. after 2 years in high school, I was able to understand some simple conversations use in every day life and able to ask some questions. I was and still am the quietest guy in class. I am in college now and want to express myself more but couldn't do it because of the limited English I have. tchang

Re: Being deaf

#160
Being hard of hearing (severe to profound), I can relate to much of the OP's post. I use hearing aids, but communication is still challenging. I also rely on watching who is speaking for lip-reading, facial language, and body language; putting those together with what I hear creates a "complete" input for me. For TV, I rely on captioning, and on subtitles for DVDs. I don't listen to the radio, or much music.

The web is great for communicating and learning because it's very visual, but podcasts and screencasts, despite possibly being of interest, aren't much good to me.

I prefer to do most conversing in person; over the phone it's far too easy to miss something, or confuse one sound or word for another (letters: b, c, d, g, e; numbers: 15, 50 (pronunciation)). Heavy accents are quite challenging to handle over the phone. I've had to have another person help me with telephone calls for official things such as banking, gov't matters, etc.

I'm a university student. In small classes hearing isn't too bad, but larger classes in lecture halls are much harder to follow. It's easier when the teacher is doing most of the talking, and harder when it's a more interactive class, with students contributing.

In a working context, clear communication is important. Even in person it's easy to miss a key word or phrase, or confuse one for another. Not only that, but I once interviewed for a web developer position, and was openly discriminated against when my hearing difficulty was revealed. The interview didn't go past this point; I could have done the job with my skill set, but the boss made an issue out of my hearing.

I'm a very visual person: I like to see, to read, to write, and to draw. Being an avid reader, I enjoy novels and other reading materials, including the web. I'm mostly self-taught in web development by reading tutorials and books and reviewing code by other people.

In closing, loss of hearing, whether partial or complete, raises barriers to work, education, socializing, etc. They can be worked around to some extent, but they are still they, and as I found out can actively harm you.

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