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Alpha-Gal Syndrome

mayoclinic.org

151–155 of 155 posts

Re: Alpha-Gal Syndrome

#151
post #51

Earlier quoted context omitted.

Just wait. Sooner or later you will learn why the basement is horror central. Black mold comes to mind...

Radon gas.

This, Radon tests are cheap. Get one if you have a basement or exposed dirt crawl space under your main living/sleep spaces.

Re: Alpha-Gal Syndrome

#152
post #17

What a coincidence. I was bitten by a lone star tick last week. I didn't notice it until several days later when I found it fully engorged. I did check myself entirely after I was in tall grass, but I think it was stuck to my clothes and bit me later on. I sent it in to the PA tick research lab[0] and it came back negative for the presence of Lyme disease, ehrlichiosis, tularemia and RMSF. It seems as though they can…

Contrary to what the other poster says, I think the right response might actually be to continue eating meat, albeit perhaps in smaller amounts (or with an epi-pen/benadryl nearby) depending on how you feel. Assuming the bite is an initial 'innoculation' to prime the allergic response, you would want to now train your body that alpha-gal is an OK thing (because, see how much of it is in my diet?!). We still have so much to learn about the immune response, but one thing thats becoming apparent is that allergies are caused by not priming our immune system enough (think too sterile home environments, avoidance of peanuts during early childhood). Even with severe peanut allergies they've found that relief can be had by introducing minuscule amounts of peanut to sufferers over a prolonged time period, like allergy shots[0]. Waiting out your antibody readiness might literally take forever (e.g. think measles vaccine)

[0] https://www.mayoclinic.org/diseases-conditions/peanut-allerg...

Re: Alpha-Gal Syndrome

#153
post #53

Why don’t we make ticks extinct?

Or use insect repellent when hiking? We already make enough species extinct unwillingly. I don't think it's a good idea to start extinguishing any species that bothers us. Where do you draw the line?

If you use repellents, the tick keeps climbing and gets behind your ears or in your hair.

Re: Alpha-Gal Syndrome

#154

Earlier quoted context omitted.

I wonder if completely abstaining from any red meat for a year would be enough to reduce whatever antibodies are being created to the point where you could eat red meat again.

Most anecdotes I read said the 8-15 year (I'm year 9) scale for the allergy to fade if at all, I don't recall what they said they had for reactions/accidental allergen dosages during their years though. Accidental allergen exposures happen once in a while, as you get used to the diet and learn hidden sources of allergen, they happen less. There's been no point in time when I thought I had to test if the allergy had g…

More research is needed, my anecdotal experiences is that different people have wide differences in the way that they react to alpha gal.

I know someone who went into full anaphylaxis from inhaling aeroplane food on a flight, requiring both injectors, they were in their late 40s.

I know someone who was able to reintroduce cheese and that worked for them.

The variance and time to affect seems to vary depending on the person.

My ex partner has a reaction petting my dogs who've been running out in the yard rolling in wallaby poop.

It's bloody awful affliction :( It prevents you from being able to enjoy many activities that most people take for granted.

The good thing is bird is pretty versatile! Duck is amazing, where I live you can buy duck chortizo. Groups I've joined on Facebook that are USA based are doing Emu briskets!

My ex goes and gets a test every once in a while that measures some level that they can use to tell if it's getting better or worse.

The crazy thing is that the local schools ban peanut butter but a sausage sizzle as they're called here (cooking like 50 sausages at a time for a fundraisers) are all totally OK, despite the allergy being an ongoing issue for the local area (just like in the USA, it's localised).

Re: Alpha-Gal Syndrome

#155
post #77

My dad got Alpha-Gal a few years back and is now severely allergic to beef; recently he ordered the impossible whopper at Burger King and got the same allergic reaction, suggesting either a mix-up or some serious contamination. He was fine but it's no joke, can cause anaphylaxis, etc. Side note, here's a free idea for a book: ecoterrorists conduct underground gain-of-function research on Alpha-Gal, making it transmit…

Contamination is a huge problem with this allergy, and most kitchens don't understand or don't care. You pretty much learn that eating out is too dangerous.

Those who end up with this allergy pretty much have to not eat out, as the risk is too high. Imagine not being able to eat out?

Imagine not being able to travel! It's the worst!

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