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Having your insulin pump die while you're on vacation

blog.lauramichet.com

141–150 of 203 posts

Re: Having your insulin pump die while you're on vacation

#141
post #134
post #90

I have a fear that my CPAP machine will die one day while I'm away from home, such as vacation overseas or during a business trip. I literally no longer can sleep without it, I have anatomical sleep apnea (perfectly fit), but it's quite severe (79 AHI). I once forgot it on a trip to a different state, and tried to sleep in the hotel but basically just had insomnia, as I could no longer pass out when I woke up from th…

I found it weird to realise CPAP machines requires prescriptions some places. In the UK you can just order one next delivery from Amazon.

The US (as well as other countries) has weird hangups because there's not a lot of granularity in prescription rules and insurance won't cover things unless they require a prescription.

So patients and doctors fight to have things continue to be restricted so that their workplace insurance will pay for it.

Re: Having your insulin pump die while you're on vacation

#142

Earlier quoted context omitted.

I always carry ice packs and a yeti cooler. I have some other carry rigs, but 99/100 times if you see me out and about, that's me: cowboy hat, wayfarers, and yeti cooler. So I just keep sour patch kids all the time in my pack. But I'm always up for something else, especially when the SPKs are in an "ick" season. I appreciate the recommendation. SPKs have an absurdly high glycemic index though and seem pretty predicta…

The best high-GI food I have found is Welch's fruit snacks. They are superior to glucose tablets: (1) Can be swallowed whole quickly and easily, or dissolved by saliva. (2) More concentrated, so you can pocket or pack more glucose in less space. (3) Can be compressed in a pocket or backpack without turning to powder that leaks everywhere. A packet of fruit snacks is 17 g of carbohydrate, which is small enough to catc…

I don’t have diabetes, but I’ve heard from people with T1 that Welch’s work well for the reasons you mentioned.

When I browse the candy aisle at the store, I often wonder if certain treats tend to be better than others for administering glucose. In your experience, are there ever certain properties of candies that are more useful than others?

Re: Having your insulin pump die while you're on vacation

#143

Friend, you’re diabetic. Your survival is ultimately your own responsibility. Prepare yourself for a few hard truths. No one — including nurses and doctors who are not specifically trained in diabetes management — truly knows your situation. I had a TIA. I was barely functioning, hospitalized, semi-conscious. Not a single person in the ER, nor during the entire week I was admitted, stopped to think that maybe I wasn’…

[deleted]

Re: Having your insulin pump die while you're on vacation

#145

Earlier quoted context omitted.

The best high-GI food I have found is Welch's fruit snacks. They are superior to glucose tablets: (1) Can be swallowed whole quickly and easily, or dissolved by saliva. (2) More concentrated, so you can pocket or pack more glucose in less space. (3) Can be compressed in a pocket or backpack without turning to powder that leaks everywhere. A packet of fruit snacks is 17 g of carbohydrate, which is small enough to catc…

I don’t have diabetes, but I’ve heard from people with T1 that Welch’s work well for the reasons you mentioned. When I browse the candy aisle at the store, I often wonder if certain treats tend to be better than others for administering glucose. In your experience, are there ever certain properties of candies that are more useful than others?

Ideally, you're looking for something that spikes blood sugar fast (i.e. high glycemic index). This is why e.g. Skittles/Sour Patch Kids/fruit snacks (mainly the kind that don't... actually have any fruit, lol) are a go-to for type 1s.

You're basically looking for something that's analogous: as crack is to cocaine, is to sugar. Hits fast and doesn't last as long.

Re: Having your insulin pump die while you're on vacation

#146

Earlier quoted context omitted.

I'm trying to convince myself. But then it's just one more thing that the medical community is gatekeeping (you didn't book your followup appointment in time, so you're treated as if you're no longer in life-threatening danger of hyperglycemia is a reality for me, because I have a hard time with medical appts). We really need some version of "permanent prescriptions" for insulin. Not OTC, because then insurance doesn…

Yes, I used to carry scripts for insulin and needles in my wallet just in case. NY implemented all bbut mandatoery eprescribe so I feel I have to use a national chain so my script can be seen if I'm traveling. And yes the notion a script for Insulin can be stale is truly insane. Of course regular checkups are best especially with being insulin dependent, but with 2 million T1D just in the USA this is just bad for eve…

I think I'm actually going to go talk to my congressperson/senator/anybody who will listen. It's such an insult, that I have to go to an endo, who in my case probably knows some technical ephemera better than I do, but has done absolutely nothing to help keep me alive besides write prescriptions.

Like didn't even warn me of the dangers of hypoglycemia. After I nearly went comatose one time, "oh yeah, we have glucagon you can get if you'd like a prescription". Which is cool after you've been passed out in front of a restaurant, with people looking at you like they're going to hit you with narcan.

One of my secret terrors is getting narcaned by a cop.

Re: Having your insulin pump die while you're on vacation

#147
post #90

I have a fear that my CPAP machine will die one day while I'm away from home, such as vacation overseas or during a business trip. I literally no longer can sleep without it, I have anatomical sleep apnea (perfectly fit), but it's quite severe (79 AHI). I once forgot it on a trip to a different state, and tried to sleep in the hotel but basically just had insomnia, as I could no longer pass out when I woke up from th…

If it's that crucial, then you need redundancy. A backup travel CPAP might be worth investing in.

Re: Having your insulin pump die while you're on vacation

#148
There are several strange things here.

> Flagstaff did not have any insulin for me.

This seems… impossible. They could be out of a specific SKU of Lantus pen, but that’s an entirely different thing from a pharmacy not having any long- or intermediate-lasting insulin. They probably had Lantus vials, or other glargine biosimilars, or NPH insulin or dozens of other types of insulin.

> the Tandem tslim X2 requires the user to "prime" the pump tubing with 10 units of insulin every time the pump shuts down or the cartridge is replaced.

This happens with every pump in one way or another to avoid getting air instead of insulin. There is no pump on the market that doesn’t involve wasting insulin somehow (though getting leftover insulin out of Minimed pumps is much easier)

> To tell the truth: I do not even know how to use the pen. I have never needed to do this in my life.

> I've lived with diabetes for 27 years and I've been on pumps for 25.

The pens are just a vial and a syringe combined. If you’ve given yourself injections, using the pen is straightforward.

> Foolishly, I did not bring the backup-of-the-backup. I never have!

For anyone not familiar with diabetes management, these two sentences are the failure that happened here.

Insulin pump failures are very rare, but the only way they can be dangerous is if you choose not to bring your medicine with you. Lantus (the thing OP is prescribed but does not treat as necessary medication) is given to diabetics for this exact situation. The pen is a bit bigger than a Sharpie. One of them can keep you alive for a week or more. There is no valid reason not to keep it with your other insulin.

The lesson here has nothing whatsoever to do with insulin pump brands. OP will never get a pump that can’t fail but thankfully “what to do when a pump fails” has been an elegantly solved problem for many, many years.

Re: Having your insulin pump die while you're on vacation

#149

Friend, you’re diabetic. Your survival is ultimately your own responsibility. Prepare yourself for a few hard truths. No one — including nurses and doctors who are not specifically trained in diabetes management — truly knows your situation. I had a TIA. I was barely functioning, hospitalized, semi-conscious. Not a single person in the ER, nor during the entire week I was admitted, stopped to think that maybe I wasn’…

You didn't bring glucose tabs or glucagon with you or get more when you ran out? Was it an overconfidence in your ability to feel low?

Re: Having your insulin pump die while you're on vacation

#150

> I know that going to an emergency room would have cost me an insane amount of money I just don’t understand how Americans put up with this shit. I live in a country that only has private healthcare, and the idea that you can be insured and also that an emergency room visit can be expensive rather than specifically what the insurance is meant to cover is nuts.

If vulnerable individuals don't "...put up with this shit," they get sick and die. To understand this, you have to understand that there isn't usually an alternative.

Vulnerable individuals are often the ones covered by Medicare/Medicaid. It’s the middle-class this seems to affect.
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