Live data from Hacker News

Starting Hospice

jakeseliger.com

141–150 of 162 posts

Re: Starting Hospice

#141
post #2

Hacker News, thank you for all the links and all the great reading. Now I have to say goodbye. I’m with my wife Bess ( https://bessstillman.substack.com/ ) and my brother Sam, and crying, but it is okay. At the end of Lord of the Rings Gandalf says to the hobbits, "Go in peace! I will not say: do not weep; for not all tears are an evil.” And that is how I feel now. Ending prematurely hurts, but all things must end, a…

Bon voyage, Jake. I follow in your steps from the same diagnosis. Thank you for bravely sharing your experience and helping others in similar predicaments <3

Re: Starting Hospice

#142

Lost my wife about 1.5 years ago. It was expected and unexpected at the same time. Long metastatic cancer treatment that ended all of the sudden, in a few weeks of unconsciousness ("coma") with an auto immune brain disease, likely caused by chemo. As the partner left behind, I nothing but empathy to Bess. As an avid, ultra pragmatic, HN reader though, I've gathered resources so I'll list them here: Forums / chats: ht…

Forgot to add: Journaling helped me a lot. I favored writing this as "letters" / "texts" to my wife. As if she's here, just telling her about my day, feelings, emotions, what our kid did, what happened around us, family and friends. Venting, crying, blaming, being frustrated, being happy, being proud. All goes in there.

I think I will be forwarding funny animal videos to Jake on instagram for all time but the idea of them being delivered to no one is this weird minor detail that is just so hard.

Re: Starting Hospice

#143
post #37

Earlier quoted context omitted.

These are very interesting. I used to be convinced that NDEs were either made up, or the brain rebooting or something like that. I'm not so sure about it anymore. I'm not religious (not anti-religious either), but there are a lot of options between nothingness and a religious expectation of an afterlife. Maybe these NDEs are indicators of something else. I was surprised to see that almost 20% of people that "die" rep…

> options between nothingness and a religious expectation of an afterlife. May I ask what you consider some of those are? Honestly curious.-

This is all speculation based on things I've heard, so take it with a big grain of salt.

I used to be on a forum with somebody who posted about having an excellent relationship with his dead wife. He said they interact regularly. He was not religious. Normally I would think he's a crackpot or somebody trying to sell something, but he was not either of those things. He came across as very honest and intelligent and sincere. The forum had nothing to do with life after death, but it came up occasionally. His other comments were always very rational.

There are others, e.g. Bernardo Kastrup, who think that there is a single consciousness, and that life as a human (if I understand correctly, any physical life) is like when somebody has multiple personalities. When we die (according to Kastrup) we "remember" that we are part of that consciousness.

I think panpsychism in general is a non-religious basis for at least the possibility that consciousness doesn't have to be physical. Consciousness could be fundamental.

To be clear, I don't believe any of those things, but I don't rule them out either.

The same goes for religious belief. My reasons for not believing might be due to perspective. I doubt that my dogs had any clue as to why I put them on a leash. I (and humans in general) could be in a similar situation, and that would change a lot. I suspect we are in a similar situation as far as making assumptions that work for us, but are not necessarily grounded in reality. I think it's very likely that there are things that we don't and maybe can't understand.

Re: Starting Hospice

#144
post #2

Hacker News, thank you for all the links and all the great reading. Now I have to say goodbye. I’m with my wife Bess ( https://bessstillman.substack.com/ ) and my brother Sam, and crying, but it is okay. At the end of Lord of the Rings Gandalf says to the hobbits, "Go in peace! I will not say: do not weep; for not all tears are an evil.” And that is how I feel now. Ending prematurely hurts, but all things must end, a…

Is there no way for you to do the Dallas trial?:(

Re: Starting Hospice

#145
It's just ridiculous how the FDA works. They have no issue fast forwarding the process when it comes to approving an experimental mRNA vaccine to force upon billions of healthy people, but try to get them to approve an mRNA medicine for people who are literally on their death bed and suddenly, it's not safe enough. What a joke.

Re: Starting Hospice

#148
I used to think that people who were sick and stubbornly refused to go to the doctor were silly, but now, after reading enough cancer stories, I fully understand them and would do the same.

If I got a cancer that required chemo, I wouldn't want to know. Even if the survival rate was 90% with treatment, the mental turmoil would not be worth it for me. I'd rather have the 5% survival rate without treatment and without awareness of the problem.

Anyway I'm 35 now and I already feel like I've lived a full life. I feel like I've already seen and done everything I wanted to do 100 times over. Nowadays, every experience I have is derivative of some other past experience. My enjoyment of life is greedy and repetitive almost to the point of vulgarity.

When I hear about billionaires who are approaching 100 and undertaking radical treatments to live forever, I just don't get it. They've probably experienced way more things than I have, 100 times better than I have, yet they want more... Makes me wonder if they're fully feeling their lives. They must have a dull senses or poor emotional memory.

Re: Starting Hospice

#149
My father-in-law died of cancer late last year. He commented that cancer was a kind disease because it allowed him the luxury of planning his last days, making peace, and saying goodbye.

I wish you happiness, love, and comfort right up to the end.

Re: Starting Hospice

#150
post #2

Hacker News, thank you for all the links and all the great reading. Now I have to say goodbye. I’m with my wife Bess ( https://bessstillman.substack.com/ ) and my brother Sam, and crying, but it is okay. At the end of Lord of the Rings Gandalf says to the hobbits, "Go in peace! I will not say: do not weep; for not all tears are an evil.” And that is how I feel now. Ending prematurely hurts, but all things must end, a…

Thank you for documenting your journey, and sharing something so difficult and intimate with us. It is really eye opening. I wish your family all the best and hope you find peace.

Will your blog remain available to share with others?

Post reply on HN