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Tinnitus Neuromodulator

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Re: Tinnitus Neuromodulator

#131

Post by wppick »

tombert wrote: post #6

I've had tinnitus in my left ear for about six months now. I was hoping it was the result of an earwax impaction or something, but after having several specialists look at my ears, test my hearing, and getting an MRI to check for tumors, the overwhelming medical consensus of the cause appears to be "I dunno", and at this point I have given up on it being temporary. About 95% of the time, I can fairly easily just tune…

Try experimenting with diet like cutting out/down on sugar or salt and see if it makes any difference. There's no strong evidence that EMF can cause tinnitus but would be interesting to test that out somehow too (camping/cabin trip in a radio free zone?)

Re: Tinnitus Neuromodulator

#132

Post by geophile »

tombert wrote: post #6

I've had tinnitus in my left ear for about six months now. I was hoping it was the result of an earwax impaction or something, but after having several specialists look at my ears, test my hearing, and getting an MRI to check for tumors, the overwhelming medical consensus of the cause appears to be "I dunno", and at this point I have given up on it being temporary. About 95% of the time, I can fairly easily just tune…

I got tinnitus in my late 20s. Forty years later, it's still there. Research into the causes, and treatments, has been disappointingly slow.

I would really like to experience total silence at some point, but that seems very unlikely.

Re: Tinnitus Neuromodulator

#133

Post by Alejandro9R »

glimshe wrote: post #36
guilamu wrote: post #23

Earlier quoted context omitted.

A message of hope. I got mine in my 30's too. The first week I thought I was going crazy, and this was the end of my life. I was shocked, I couldn't go to work for a whole week. I then saw a doctor who said to me: "Man, I've got tinnitus since 20 years and I barely hear it anymore. The more you accept it, the more it'll fade." A decade later, my own experience is exactly this. I accepted it as one of the body malfunc…

It's very much like eye floaters. They are always there, but you can tune them out most of the time.

Completely agree. I've had some light/moderate floaters in my left eye which were very noticeable under a white screen, clean walls, or full bright sky in the evening. It came pretty sure because of a very stressful period at 27.

Here I am, 31. I have to look for them really really hard to see if they are still there. Only when I have a streak of stressful days and bad night sleep, they will be visible again. It comes without saying that I had to change my life in many, many aspects, not only due to these floaters. A much calmer life, better food, gym, financial security, better friends and people around me, and cultivate a spiritual being in some sense. The mind can be shaped in many many ways it's fascinating.

Re: Tinnitus Neuromodulator

#134

Post by exasperaited »

Like others I have tinnitus that only now really rears its head in extremely quiet environments or when I see the word "tinnitus" or someone says it. Then I am reminded I have it.

I think I have always had it; I became more aware it was abnormal and unusual in my twenties when I realised that TV dramas use a similar high pitch sound to indicate someone who has had sudden hearing damage (after an explosion etc.) and then it really bothered me for a while because I was living in a very quiet area.

About six years ago now I was at a gig at a local venue when I experienced hearing loss due to a freakish bit of bass feedback. I was in a particular corner of the room and clearly experienced an overtone that almost nobody else heard at all, and at a volume nobody else experienced; pure bad luck. The sound made me run away automatically. I was thirty yards away before I even really comprehended that I was leaving.

I experienced considerable hearing loss — muffled, incomplete hearing — for several days. Nearly complete for the first day.

But when my tinnitus came back I realised I felt sure I was going to get my hearing back essentially entirely. It was curiously reassuring. I've never really been stressed by it since.

So I have what I expect to be lifelong tinnitus. But also earplugs now.

Re: Tinnitus Neuromodulator

#135

Post by WanderPanda »

tombert wrote: post #6

I've had tinnitus in my left ear for about six months now. I was hoping it was the result of an earwax impaction or something, but after having several specialists look at my ears, test my hearing, and getting an MRI to check for tumors, the overwhelming medical consensus of the cause appears to be "I dunno", and at this point I have given up on it being temporary. About 95% of the time, I can fairly easily just tune…

I have a strong Tinnitus on one ear after an ear surgery for 8 years now. And I usually don‘t notice it for months at a time, even though it is there all the time (thanks for reminding me :p) So it’s not as bad as it might feel in the beginning. I‘m mostly bothered by my hearing being generally impaired by it. It sits at ~9kHz but it somehow still makes it significantly harder to comprehend voices.

Re: Tinnitus Neuromodulator

#136

Post by throwaway233927 »

There is a company called Auricle that is working on releasing their tinnitus treatment device. To my knowledge, they are the only tinnitus treatment device company with a properly blinded study showing efficacy. They have started taking outside (accredited) investors for those interested:

https://www.auricleinc.com/joinourmission

Re: Tinnitus Neuromodulator

#137

Post by semitones »

tombert wrote: post #6

I've had tinnitus in my left ear for about six months now. I was hoping it was the result of an earwax impaction or something, but after having several specialists look at my ears, test my hearing, and getting an MRI to check for tumors, the overwhelming medical consensus of the cause appears to be "I dunno", and at this point I have given up on it being temporary. About 95% of the time, I can fairly easily just tune…

Remarkably, our experiences are _incredibly_ similar. Left ear, about a year, got all those tests done, specialists don't know other than "that's tinnitus for you - if I had a cure I'd be rich", 98% of the time I tune it out, I live in NYC, early thirties.

If you ever find something that works for you, please reply here @tombert, I'll do the same :)

Re: Tinnitus Neuromodulator

#138

Post by meindnoch »

bsimpson wrote: post #80
guilamu wrote: post #23

Earlier quoted context omitted.

A message of hope. I got mine in my 30's too. The first week I thought I was going crazy, and this was the end of my life. I was shocked, I couldn't go to work for a whole week. I then saw a doctor who said to me: "Man, I've got tinnitus since 20 years and I barely hear it anymore. The more you accept it, the more it'll fade." A decade later, my own experience is exactly this. I accepted it as one of the body malfunc…

I've always been someone who hears high pitched noises that "normal" people don't. I'm also in my 30s, and I'm sure those "teenage alarms" in Japan would work on me. I was the one who would walk up to a CRT and turn it off when everyone else thought it already was. What helped me accept (and ignore) tinnitus was realizing that I had already grown accustomed to tolerating that sound indoors. When's it's something you…

By the way, that CRT squeel is the sound of the flyback transformer, which operates at 15.625 kHz for PAL and 15.734 kHz for NTSC sets.

Re: Tinnitus Neuromodulator

#139

Post by lexx »

Have tinnitus 20 years now. Very loud. Can hear it in cinema while watching action movies. First year was depressing. I couldn't believe I will never enjoy silence again. Now I don't care. It's my little friend. Really. Life can be amazing even with extreme tinnitus

Re: Tinnitus Neuromodulator

#140

Post by mrblah »

OutOfHere wrote: post #101
mrblah wrote: post #76

Earlier quoted context omitted.

this is anecdotal and not medical advice, but i reduced my tinnitus symptoms by ~90% by taking therapeutic doses (1200-1800mg/day) of benfotiamine (fat soluble form of vitamin b1) over the course of a month and a half. i was taking it for unrelated nerve pain and was very surprised that my sense of smell and hearing also remarkably improved, to the point where i needed to reduce the long standing 'known' audio levels…

Even 80 mg of benfotiamine a day is too potent for me, giving me anxiety. 40 mg is more tolerable. I do take plenty of magnesium, zinc, and P5P. Be careful taking the basic non-P5P form of B6 because it risks causing serious neuropathy in the long term. Benfotiamine is more for managing damage from high glucose. I acknowledge your experience, but if your nerve damage is not from metabolic concerns, I am skeptical. Wh…

the older i get, and more in tune with my body i become, the more i'm thinking everything is connected to metabolism... it is, after all, the primary thing life does as it relates to energy. the b vitamins, and specifically b1 is a precursor/cofactor in almost every metabolic pathway. i only high dosed it for a couple months, just taking 150mg with ala daily now, but my tinnitus that i've had for 20 years is gone unless it gets triggered by movie or video game sound design during explosion or gun fight scenes (ugh)
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