Earlier quoted context omitted.
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Because of valunords comment, I did a review of the literature in Google Scholar, and found there are quite a few small trials of ketogenic diets and fasting on different cancers. It is an active area of research, but the results so far are not amazing looking, mortality rates are about the same. At best, it seems like it might slightly increase the effectiveness of specific existing treatments for a small handful of…
Starting Hospice
131–140 of 162 posts
Re: Starting Hospice
#132Hacker News, thank you for all the links and all the great reading. Now I have to say goodbye. I’m with my wife Bess ( https://bessstillman.substack.com/ ) and my brother Sam, and crying, but it is okay. At the end of Lord of the Rings Gandalf says to the hobbits, "Go in peace! I will not say: do not weep; for not all tears are an evil.” And that is how I feel now. Ending prematurely hurts, but all things must end, a…
https://archive.ph/bessstillman.substack.com
(Archive listing jseliger's wife Bess Stillman on clinical trials (including how to navigate them as patients) as well as comments)
UPDATE:
other concretes that have been mentioned, that are worth highlighting:
0) Promoting (& improving) Right to Try
https://www.fda.gov/media/133864/download#:~:text=Right%20to....
1) donating to (or even joining!) Arc Institute (mRNA research)
2) suing the FDA for clinical trials, in general.
Here's one case https://www.theatlantic.com/health/archive/2023/10/xocova-en...
Re: Starting Hospice
#133Hacker News, thank you for all the links and all the great reading. Now I have to say goodbye. I’m with my wife Bess ( https://bessstillman.substack.com/ ) and my brother Sam, and crying, but it is okay. At the end of Lord of the Rings Gandalf says to the hobbits, "Go in peace! I will not say: do not weep; for not all tears are an evil.” And that is how I feel now. Ending prematurely hurts, but all things must end, a…
Jake, I am so, so sorry for everything you’ve gone through and wish peace for you and the best for your loved ones. I’ve followed your story here and always been touched by your candor. Thank you for all your contributions. I was rooting for a better outcome and am sorry that it hasn’t arrived. Goodbye.
(Archive listing jseliger's wife Bess Stillman on clinical trials (including how to navigate them as patients) as well as comments)
UPDATE:
other concretes that have been mentioned, that are worth highlighting:
0) assume good faith & promote (& improve) Right-to-Try
https://www.fda.gov/media/133864/download#:~:text=Right%20to....
1) donate to (or even joining!) HN-adjacent Arc Institute (mRNA research)
2) sue the FDA for clinical trials, in general.
Here's one case https://www.theatlantic.com/health/archive/2023/10/xocova-en...
Re: Starting Hospice
#134Hi Jake, I lost my father to cancer this year, he was 59. I hope you know your memory lives with the people that are with you, now and in the future. I understand what your family is going through even though I can't understand your pain, thanks for putting your writings out there, take care.
There’s so many places I could go with that as a springboard, but, honestly, I’m kind of just airing my dirty laundry out right now. Losing loved ones sucks, and I wish Jake’s family all the best through the troubling times that are yet to come.
Re: Starting Hospice
#135Jake, you don't know me but I want to thank you and Bess for sharing what you've been going through with us on here. It would have been easier not to fight this hard, and not to write all of this, and I appreciate that you did. If you can, and I know maybe you can't, you should write a personal letter to your daughter, to read when she is old enough to understand how much you love her, even though you never met her.…
Re: Starting Hospice
#136My partner died of an internal SCC in their early 40s during the COVID-19 pandemic lockdowns, over a course of 9 months. After the tumor board of the only cancer treatment center both covered by our insurance and willing to take us on refused to pursue anything but standard ovarian chemotherapy (which didn't work at all on ovarian SCC, which we already knew). Because of travel restrictions and the total lack of vacci…
Re: Starting Hospice
#137I hope this is an appropriate place to ask. Say I am eating well, exercising consistently, getting enough sleep. For a male in his 40s, what are the best bang-for-the-buck ways to detect cancer before it becomes life-threatening?
Re: Starting Hospice
#138Lost my wife about 1.5 years ago. It was expected and unexpected at the same time. Long metastatic cancer treatment that ended all of the sudden, in a few weeks of unconsciousness ("coma") with an auto immune brain disease, likely caused by chemo. As the partner left behind, I nothing but empathy to Bess. As an avid, ultra pragmatic, HN reader though, I've gathered resources so I'll list them here: Forums / chats: ht…
Re: Starting Hospice
#139Re: Starting Hospice
#140Hi Jake, I lost my father to cancer this year, he was 59. I hope you know your memory lives with the people that are with you, now and in the future. I understand what your family is going through even though I can't understand your pain, thanks for putting your writings out there, take care.
I lost my dad last year, Saturday was officially the anniversary of his passing actually, from small cell lung cancer. Three weeks from diagnosis to his death, and I’m re-living it all in my head reading this. There’s so many places I could go with that as a springboard, but, honestly, I’m kind of just airing my dirty laundry out right now. Losing loved ones sucks, and I wish Jake’s family all the best through the tr…
Sadly, I'm already the 4th person in my friend group to lose their dad even though we're less than 30 years old. It also means I had other people that understood and that I could talk to. I hope you're talking to friends or professionals.
I know it'll get better.