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Starting Hospice

jakeseliger.com

131–140 of 162 posts

Re: Starting Hospice

#131
post #109
post #88

Earlier quoted context omitted.

[flagged]

Because of valunords comment, I did a review of the literature in Google Scholar, and found there are quite a few small trials of ketogenic diets and fasting on different cancers. It is an active area of research, but the results so far are not amazing looking, mortality rates are about the same. At best, it seems like it might slightly increase the effectiveness of specific existing treatments for a small handful of…

Valunord, I am replying to myself because your reply is flagged as dead. I am an academic that researches metabolism, and personally very experienced with ketogenic dieting, and also know about the warburg effect and agree with the metabolic theory of cancer… and I am still certain you are wrong. Those studies do consider adherence and still find high mortality in patients with good adherence. I am concerned that your are a zealot, and spreading false medical information. Indeed all cancer involves a certain metabolic defect, and cancers consume sugar through glycolysis. However when you stop eating carbs your blood sugar levels actually increase- and your body will break down protein and lean tissue to keep them high, to preserve glucose for the brain and heart, which unfortunately continues to provide glucose for the cancer as well. Even fat contains a glycerol backbone which provides sugar for glycolytic cancer cells.

Re: Starting Hospice

#132
post #2

Hacker News, thank you for all the links and all the great reading. Now I have to say goodbye. I’m with my wife Bess ( https://bessstillman.substack.com/ ) and my brother Sam, and crying, but it is okay. At the end of Lord of the Rings Gandalf says to the hobbits, "Go in peace! I will not say: do not weep; for not all tears are an evil.” And that is how I feel now. Ending prematurely hurts, but all things must end, a…

Thank you, Jake! ---and your wife --- for your links and great reading that highlight the importance of clinical trials for mRNA tumor vaccines! Will keep posting to HN her articles when they come out.

https://archive.ph/bessstillman.substack.com

(Archive listing jseliger's wife Bess Stillman on clinical trials (including how to navigate them as patients) as well as comments)

UPDATE:

other concretes that have been mentioned, that are worth highlighting:

0) Promoting (& improving) Right to Try

https://www.fda.gov/media/133864/download#:~:text=Right%20to....

1) donating to (or even joining!) Arc Institute (mRNA research)

2) suing the FDA for clinical trials, in general.

Here's one case https://www.theatlantic.com/health/archive/2023/10/xocova-en...

Re: Starting Hospice

#133
post #6
post #2

Hacker News, thank you for all the links and all the great reading. Now I have to say goodbye. I’m with my wife Bess ( https://bessstillman.substack.com/ ) and my brother Sam, and crying, but it is okay. At the end of Lord of the Rings Gandalf says to the hobbits, "Go in peace! I will not say: do not weep; for not all tears are an evil.” And that is how I feel now. Ending prematurely hurts, but all things must end, a…

Jake, I am so, so sorry for everything you’ve gone through and wish peace for you and the best for your loved ones. I’ve followed your story here and always been touched by your candor. Thank you for all your contributions. I was rooting for a better outcome and am sorry that it hasn’t arrived. Goodbye.

Thank you, Jake! ---and your wife --- for your links and great reading that highlight the importance of clinical trials for mRNA tumor vaccines! Will keep posting to HN her articles when they come out. https://archive.ph/bessstillman.substack.com

(Archive listing jseliger's wife Bess Stillman on clinical trials (including how to navigate them as patients) as well as comments)

UPDATE:

other concretes that have been mentioned, that are worth highlighting:

0) assume good faith & promote (& improve) Right-to-Try

https://www.fda.gov/media/133864/download#:~:text=Right%20to....

1) donate to (or even joining!) HN-adjacent Arc Institute (mRNA research)

2) sue the FDA for clinical trials, in general.

Here's one case https://www.theatlantic.com/health/archive/2023/10/xocova-en...

Re: Starting Hospice

#134

Hi Jake, I lost my father to cancer this year, he was 59. I hope you know your memory lives with the people that are with you, now and in the future. I understand what your family is going through even though I can't understand your pain, thanks for putting your writings out there, take care.

I lost my dad last year, Saturday was officially the anniversary of his passing actually, from small cell lung cancer. Three weeks from diagnosis to his death, and I’m re-living it all in my head reading this.

There’s so many places I could go with that as a springboard, but, honestly, I’m kind of just airing my dirty laundry out right now. Losing loved ones sucks, and I wish Jake’s family all the best through the troubling times that are yet to come.

Re: Starting Hospice

#135
post #124

Jake, you don't know me but I want to thank you and Bess for sharing what you've been going through with us on here. It would have been easier not to fight this hard, and not to write all of this, and I appreciate that you did. If you can, and I know maybe you can't, you should write a personal letter to your daughter, to read when she is old enough to understand how much you love her, even though you never met her.…

Congratulations on your wedding, UniverseHacker and I'm deeply touched to be part of your wedding vows. Jake and I have spent this last year trying to leave nothing go unsaid between us and I wish a lifetime of the same for you and your spouse. It's transformative to lay it all on the table, and to learn that the best opinions of yourself lie in the person you love. A good partnership changes everything. I hope you have a wonderful marriage and feel free to reach out at any time. (drbstillman@gmail.com)

Re: Starting Hospice

#136

My partner died of an internal SCC in their early 40s during the COVID-19 pandemic lockdowns, over a course of 9 months. After the tumor board of the only cancer treatment center both covered by our insurance and willing to take us on refused to pursue anything but standard ovarian chemotherapy (which didn't work at all on ovarian SCC, which we already knew). Because of travel restrictions and the total lack of vacci…

Jake's wife here - I'm so sorry for the loss of your partner and the incredible frustrations of dealing with a system that requires so much self-advocacy, and even then, falls so short. I plan to continue advocating for patients as much as possible so that they don't suffer the way your partner and Jake have had to while trying to stay alive, as if it isn't already stressful enough. If you'd like to reach out, I'll eventually be trying to present patient stories and push for change directly at ASCO and other oncology conferences and I'd love to include your story in that push. Feel free to reach out anytime (DrBStillman@gmail.com)

Re: Starting Hospice

#137

I hope this is an appropriate place to ask. Say I am eating well, exercising consistently, getting enough sleep. For a male in his 40s, what are the best bang-for-the-buck ways to detect cancer before it becomes life-threatening?

Don't ignore weird lumps and bumps, but the #1 bang for your buck is getting a colonoscopy

Re: Starting Hospice

#138

Lost my wife about 1.5 years ago. It was expected and unexpected at the same time. Long metastatic cancer treatment that ended all of the sudden, in a few weeks of unconsciousness ("coma") with an auto immune brain disease, likely caused by chemo. As the partner left behind, I nothing but empathy to Bess. As an avid, ultra pragmatic, HN reader though, I've gathered resources so I'll list them here: Forums / chats: ht…

Thanks for sharing, bironran, I ordered the irreverant guidebook, and appreciate the suggestion. I'm avoiding all medications because I'm 7 months pregnant, but have Tetris available to try and prevent PTSD https://www.ox.ac.uk/news/2017-03-28-tetris-used-prevent-pos...

Re: Starting Hospice

#140

Hi Jake, I lost my father to cancer this year, he was 59. I hope you know your memory lives with the people that are with you, now and in the future. I understand what your family is going through even though I can't understand your pain, thanks for putting your writings out there, take care.

I lost my dad last year, Saturday was officially the anniversary of his passing actually, from small cell lung cancer. Three weeks from diagnosis to his death, and I’m re-living it all in my head reading this. There’s so many places I could go with that as a springboard, but, honestly, I’m kind of just airing my dirty laundry out right now. Losing loved ones sucks, and I wish Jake’s family all the best through the tr…

My dad was also lung cancer, we got some more time (almost a year between diagnosis and his death).

Sadly, I'm already the 4th person in my friend group to lose their dad even though we're less than 30 years old. It also means I had other people that understood and that I could talk to. I hope you're talking to friends or professionals.

I know it'll get better.

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