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Bedridden for 11 years, he discovered a surgery for his adrenal condition

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Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#131

Post by wavepruner »

cpncrunch wrote: post #110
wavepruner wrote: post #107

Earlier quoted context omitted.

But yes, pain is how your brain protects your body. Pain means you need to rest before your tissues literally rip to pieces from a structural failure.

No, pain isnt always due to structural or physical damage. That is what functional pain is. In many ways it is much worse than physical pain.

I do not think this hypothesis is correct. What evolutionary purpose would functional pain serve?

To me, it seems it's a theory to compensate for medical imaging technology that has far too low resolution. Doctors hate admitting that they don't know what's wrong, so instead they claim that the patient is crazy in politically correct terminology with an excessive number of syllables.

Structural tissue damage starts at a molecular level that cannot be seen by medical imaging technology. The fascia alone is too thin to be imaged at all, and so is completely ignored.

Biochemists have delineated in explicit detail how tissue breaks down at the molecular level. And they can reverse it. We need to start listening to them more.

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#132

Post by vimy »

sjg007 wrote: post #113
vimy wrote: post #104

Earlier quoted context omitted.

The National Guideline Clearinghouse (NGC) is a federal agency of the United States Department of Health and Human Services responsible for providing the most up-to-date clinical guidelines to physicians. The NGC also removes clinical guidelines that are no longer relevant, that do not meet the Institute of Medicine’s standards for clinical practice guidelines, including a systematic review of the evidence, or that h…

You should probably cite articles that you copy from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4938692/ Also, the reason the guidelines were removed from the NGC is that they hadn't been revised in 5 years. https://lymediseaseassociation.org/news/official-word-on-ids... And the new draft guidelines from the Infectious Diseases Society of America doesn't appear to agree with your position either. https://www.idsoc…

The question is why has the CDC been pushing outdated guidelines? Why are they pushing guidelines that ignore a boatload of research? The answer is: Conflict of interest and dogma. See my third link in my earlier reply.

Regarding the new guidelines, there are significant admissions:

-The limitations of antibody testing (page 10, line 234), and that a patient can be seronegative

-Lyme arthritis only occurs in a minority of 30% (49:1147)

-Patients should be retreated if 28 days of doxy does not resolve arthritis (55:1280), ultimately with up to 1 month of Rocephin/ceftriaxone

-Animal studies may demonstrate persistence in avascular areas (56:1311)

-They infer that evidence of a persistent infection or treatment failure can be concluded through objective signs of arthritis, meningitis, or neuropathy (62:1429)

-Studies of the chronic Lyme population are recommended, and they claim (without citation) that these patients often have no clinical or lab evidence of infection (64:1493)

-Babesia coinfects 2-40% of patients in endemic areas (67:1551)

When viable spirochetes were found after antibiotic treatment, one of the leading IDSA researchers response was "So what? You'd have to prove they are causing disease". Apparently germ theory is now in question when it comes to Lyme disease, and only Lyme disease. For every other infection, if the pathogen is found, you have the disease. Not with Lyme though. It's pure dogma at this point.

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#133

Post by joycian »

DangitBobby wrote: post #83
joshgel wrote: post #59

> Lindsay suspected his body was producing too much adrenaline. He knew of a drug called Levophed, which is approved by the US Food and Drug Administration to raise blood pressure in some critically ill patients. Levophed is basically an injection of noradrenaline, which counters the symptoms created by excess adrenaline. This is incorrect. norADRENALINE is a more specific version of ADRENALINE made in different part…

From a patient perspective, it's pretty believable. They don't know what's wrong after the typical battery of tests, so it's incurable or you're making it up. I've also had an experience where I basically told the doctor >I am tired all the time, I sleep 12-16 hours a day and still wake up feeling completely unrested, and it seriously affects my ability to do my school work and live my life and his response was (to p…

Isn't sleep apnea more common in overweight people?

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#134

Post by cpncrunch »

wavepruner wrote: post #129
cpncrunch wrote: post #109

Earlier quoted context omitted.

Yes I have had it, and am fully recovered now thanks.

Then perhaps we are talking about two separate illnesses.

Definitely not. You are just being closed minded, incredibly rude, and dont understand how the brain actually works.

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#135

Post by vladus2000 »

azinman2 wrote: post #81
vladus2000 wrote: post #69

I went through an annoyance with my vision. I ended up having two separate conditions (well a total of 5 things were wrong with my eyes, but two acive major ones and two that will eventually cause more surgery later but aren't a big deal yet and one that was minor), but because the first one seemed like it was causing the problems, it took me almost a year to find and get real treatment for my issues so I could be ab…

If it’s rare then most doctors probably ignored it for that very reason. The intern, not “knowing better,” likely thought about it as they recently learned about it. Why distrust doctors when it was a doctor (in training) that discovered it, and it took other doctors to treat it? Uncommon things are a blind spot for most medicine, just like they are in other fields as well. For example, in CS rarely do we ever expect…

If one or two doctors missed it, I would be ok, but basically everyone I saw ignored it. My neurologist thought something else might be causing it and sent me somewhere else to get it looked at. That was about half way through the process, so the doctors were being told that someone thought something else was going on and they still missed something rather easy to see.

I have had other issues where doctors thought I was lying to them, although no others that ended up with any serious consequences, just having to go see someone else.

I also had a doctor recommend dangerous surgery for a condition I ended up not having. Which, yes, getting a second opinion is good, but had I not done that, I would have had major surgery on my head that has a roughly 10% chance to deafen you for life.

I have the misfortune of having multiple rare issues (on more than just my eyes) and as a result, dealing with western medicine sucks.

My father has similar issues, so I have seen it with him too. For example, doctors let his appendix explode inside of him after he went into ER twice complaining of extreme pain in his abdomen. It exploded a few hours into the second visit and he almost died.

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#136

Post by wavepruner »

cpncrunch wrote: post #134
wavepruner wrote: post #129

Earlier quoted context omitted.

Then perhaps we are talking about two separate illnesses.

Definitely not. You are just being closed minded, incredibly rude, and dont understand how the brain actually works.

Because I don't take kindly to people telling me that the excruciating pain, bone fractures from gentle use, and fascia disintegration I had was really just my brain amplifying pain signals for no reason.

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#137

Post by cpncrunch »

wavepruner wrote: post #136
cpncrunch wrote: post #134

Earlier quoted context omitted.

Definitely not. You are just being closed minded, incredibly rude, and dont understand how the brain actually works.

Because I don't take kindly to people telling me that the excruciating pain, bone fractures from gentle use, and fascia disintegration I had was really just my brain amplifying pain signals for no reason.

I guess in your misplaced anger you completely missed my initial comment of "I'm not making any comment on your own situation". And nowhere did I comment on "bone fractures from gentle use", which has not been mentioned until now and is clearly not a functional symptom.

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#138

Post by cpncrunch »

wavepruner wrote: post #131
cpncrunch wrote: post #110

Earlier quoted context omitted.

No, pain isnt always due to structural or physical damage. That is what functional pain is. In many ways it is much worse than physical pain.

I do not think this hypothesis is correct. What evolutionary purpose would functional pain serve? To me, it seems it's a theory to compensate for medical imaging technology that has far too low resolution. Doctors hate admitting that they don't know what's wrong, so instead they claim that the patient is crazy in politically correct terminology with an excessive number of syllables. Structural tissue damage starts at…

There is pretty clear evidence from neuroscience that pain has a significant emotional component. The evolutionary benefit is to having an emotional component is that it makes it less likely that the animal will try to override the pain.

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#139

Post by wavepruner »

cpncrunch wrote: post #137
wavepruner wrote: post #136

Earlier quoted context omitted.

Because I don't take kindly to people telling me that the excruciating pain, bone fractures from gentle use, and fascia disintegration I had was really just my brain amplifying pain signals for no reason.

I guess in your misplaced anger you completely missed my initial comment of "I'm not making any comment on your own situation". And nowhere did I comment on "bone fractures from gentle use", which has not been mentioned until now and is clearly not a functional symptom.

I apologize for an excessive amount of anger. But you were commenting on my situation. Saying you weren't does't change that.

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#140

Post by wavepruner »

cpncrunch wrote: post #138
wavepruner wrote: post #131

Earlier quoted context omitted.

I do not think this hypothesis is correct. What evolutionary purpose would functional pain serve? To me, it seems it's a theory to compensate for medical imaging technology that has far too low resolution. Doctors hate admitting that they don't know what's wrong, so instead they claim that the patient is crazy in politically correct terminology with an excessive number of syllables. Structural tissue damage starts at…

There is pretty clear evidence from neuroscience that pain has a significant emotional component. The evolutionary benefit is to having an emotional component is that it makes it less likely that the animal will try to override the pain.

Yes I agree with that theory, but I don't see how that proves that pain is completely decoupled from physical damage, and just randomly happens to some people solely because they are upset or "disturbed".
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