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Amit Gupta hasn't found a marrow transplant match; today's your last chance.

amitguptaneedsyou.com

121–130 of 247 posts

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#121
post #88

Earlier quoted context omitted.

Some progress has been made, in the UK now the (blood) ban only effects men who've had sex with men in the past 12 months, which is better.

How do they enforce this?

At least in the blood ban in the US, the only enforcement is the honesty policy.

The irony with this is that the men who are honest about having sex with men are also more likely to be aware of their HIV status than men who lie at the blood bank.

I feel the same as nostromo every time I am asked to give blood. I know I'm HIV-negative. I'm not South Asian, so I couldn't help Amit anyway.

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#122

Since I'm still gay, I'm not allowed to help, no matter how many times you ask. I get why they do this and I shouldn't let it bother me, but emotionally it feels the same as if they just said, "Please become a donor, nohomo." edit: Of course I still wish the very best for Amit.

You could just check "no" on the box if you did really want to donate.

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#123

Since I'm still gay, I'm not allowed to help, no matter how many times you ask. I get why they do this and I shouldn't let it bother me, but emotionally it feels the same as if they just said, "Please become a donor, nohomo." edit: Of course I still wish the very best for Amit.

Its all about you, after all.

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#124
post #122

Since I'm still gay, I'm not allowed to help, no matter how many times you ask. I get why they do this and I shouldn't let it bother me, but emotionally it feels the same as if they just said, "Please become a donor, nohomo." edit: Of course I still wish the very best for Amit.

You could just check "no" on the box if you did really want to donate.

Kevin,

How do you feel about lying?

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#125
post #40

Earlier quoted context omitted.

But Amit could pay some criminal organization for that service right now ; the abduction itself is illegal either way. Allowing for cash incentives would serve to reduce the quantity of unfulfilled demand from which black markets -- and the criminal organizations which supply them -- emerge. At the very least, such incentives would mean far more people listed in donor registries, the dearth of which is the very probl…

Markets only exist when some regulator sets them up and enforces the terms. Right now it would be very hard to pay for an unwilling donor and there is a high risk for everyone involved. If this were made legal, the assumption would become that every donor was willing and that they got fairly compensated for fulfilling their end of the deal. Criminals and other shady types would find this less risky and more profitabl…

The current assumption is that every donor is willing. It's not clear to me how receiving payment changes anything. Your scenario would only be prevented if organ donation were banned altogether.

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#126
post #89

Earlier quoted context omitted.

>If he could, why hasn't he then? I would suspect that he has some moral compunction against kidnapping people and killing them for their body parts. Regardless, you now seem to be implying the opposite claim from earlier. Is it that no longer prohibiting voluntary sales of organs (e.g., bone marrow) would result in an increase in such abductions/killings, or is it that such killings don't seem to happen despite the…

Tobu's response to you pretty much sums up my opinion: http://news.ycombinator.com/item?id=3297411 Your reply to him would help me see your side better, I think.

Done, though I would appreciate a response to my earlier questions.

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#128
post #113

Since I'm still gay, I'm not allowed to help, no matter how many times you ask. I get why they do this and I shouldn't let it bother me, but emotionally it feels the same as if they just said, "Please become a donor, nohomo." edit: Of course I still wish the very best for Amit.

I'm not sure why they wouldn't allow some form of in-person registration accompanied by an STD screen at a clinic for people who they are eliminating now for being too "high-risk"? The marrow guys could even cover the cost of the STD screen for people who register for the program. Seems to me this would be an even safer way of ensuring potential donors don't have HIV than just asking them about their sex lives...

At least in the case of blood, all donations are already screened anyway. In US, the American Red Cross has actively fought the blood ban claiming it is "medically and scientifically unwarranted." John Kerry has also led opposition to it in the Senate (unsuccessfully).

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#129
post #127

How difficult is it to find matches for patients? Anybody know what the odds are for the average patient in need? I ask because I registered a couple years ago but haven't ever heard anything since.

My mom is about to do stem cell transplant - her siblings are something like 1 in 20, and my brother and I are something like 1 in 100.

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#130
In 2005, my friend Rich went to the hospital because of headaches that had been lasting for months. He was diagnosed with acute myelogenous leukemia, went through treatment, and went into remission in January of 2006. Later that year he went on to start a foundation to raise awareness about the disease and make it his mission to educate people about the urgent need for donating blood, and even more so, bone marrow.

I joined the bone marrow database and encourage everyone I know to do the same. The donor card comes with me everywhere I go. Whenever I hear about someone like Mr. Gupta, I try and think of every person possible that might not know one of two very important things:

1. Becoming a donor is not as painful as you grew up beleiving it was. 2. A single day of your discomfort could give someone the rest of their life.

Over the course of the next several years, Rich pretty much kept his immediate condition to himself except with his family and few very close friends. This did prove difficult for him since he was someone who was "notable" (a term those of us on HN would understand), but upon publication he would always see the silver lining since it helped promote his foundation.

On September eighth, 2010, Rich was only 36 years old when he passed away after suffering a stroke secondary to leukemia.

Please, do what you can. Every day, do what you can.

http://marrow.org/

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