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Bedridden for 11 years, he discovered a surgery for his adrenal condition

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Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#121

Post by jagannathtech »

disabled wrote: post #116
dpeterson wrote: post #115

Earlier quoted context omitted.

Sorry to hear that. I was hoping for you that the new therapy you were receiving gave your pancreas time to heal too.

Thank you. It's OK. I have lived a good life with T1D and it's been the only life I've really known (diagnosed at age 5). There are people who do well with it, long term. I just am just trying to roll with all of this and not look back :-).

appreciate your positive outlook and best wishes.

From someone rolling with a crippling disability.

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#122

Post by tropdrop »

uberduber wrote: post #89
TheOtherHobbes wrote: post #85

Earlier quoted context omitted.

Some doctors are idiots. Some doctors are only in it for the money. Only a small proportion of the people who qualify have any genuine deep-seated urge to help fix human suffering. When doctors get it wrong, people die. Anyone who genuinely does care about human suffering is going to find that difficult. But a lot of patients are idiots too. For every educated more-or-less self-aware middle class professional a docto…

This. Essentially doctors go through 12+ years to work retail. Many people get an education just so they don't have to work with retail customers. Also, it has gotten worse. Before the ACA there used to be a barrier where to see a doctor you essentially either had a job or money which would weed out a lot of the nuts.

And if you don't have a job or money (a "nut", as you say), you deserve to... die?

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#123

Post by disabled »

PierredeFermat wrote: post #119
disabled wrote: post #92

Wow. I actually have a lot in common with this dude. I have a very rare disease that causes autoimmune autonomic failure, which was initially blamed as "diabetes complications", due to type 1 diabetes. I was always suspicious it was something else, as it started when I was diagnosed with type 1 diabetes at age 5. I was constantly scavenging the medical literature when I was in college. At age 22, it got out of contro…

That's quite inspiring. Do you mind connecting via email? (Not a media request; just to learn and exchange some ideas)

Sure. Since I cannot PM you, I will use a more private address: secretsquirrel89@protonmail.com

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#124

Post by disabled »

jagannathtech wrote: post #121
disabled wrote: post #116

Earlier quoted context omitted.

Thank you. It's OK. I have lived a good life with T1D and it's been the only life I've really known (diagnosed at age 5). There are people who do well with it, long term. I just am just trying to roll with all of this and not look back :-).

appreciate your positive outlook and best wishes. From someone rolling with a crippling disability.

Thank you so much! Same to you, my friend! :-)

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#125

Post by throw97 »

uberduber wrote: post #91
rubyfan wrote: post #32

Earlier quoted context omitted.

I’m curious what sort of stresses are thought to cause adrenal issues. Can they be environmental/situational vs. chronic hereditary? About 5 years ago I was fairly healthy, eating great and CrossFit 6 days a week. Then my body started to become tired all the time. I had pretty high work stress at the time along with what might be considered frequent physically stressful workouts. I suddenly found myself sleeping most…

I'm chronically ill and had bad fatigue. I am a small, skinny woman with no muscle. So, first time a doctor asked me if I did CrossFit, I thought it was a bit odd but didn't think too much about it. The third time a doctor asked "Do you do CrossFit?" I replied "Does it look like I do CrossFit?!" and she was like "Yeah, it does." Apparently it's not uncommon where I live that there is some sort of vegan CrossFit disea…

Vitamin B12 deficiency?

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#127

Post by redis_mlc »

magic_beans wrote: post #39
rubyfan wrote: post #32

Earlier quoted context omitted.

I’m curious what sort of stresses are thought to cause adrenal issues. Can they be environmental/situational vs. chronic hereditary? About 5 years ago I was fairly healthy, eating great and CrossFit 6 days a week. Then my body started to become tired all the time. I had pretty high work stress at the time along with what might be considered frequent physically stressful workouts. I suddenly found myself sleeping most…

A year ago I was doing CrossFit 6 days a week. Then I started getting more and more tired. I developed ulcerative colitis and now I alternate between insomnia and sleeping 12 hours a day. I think years of physical stress from crossfit triggered latent disease. I'm still trying to get my body working normally again. Yoga and CBD are helping.

> I was doing CrossFit 6 days a week.

Your muscles (and blood) rebuild on rest days.

So vigorous daily Crossfit would kill you. (see rhabdo)

Nobody, for example, runs a daily marathon, or even half-marathon.

Also, if you're OC enough to do that, you prolly have other issues too.

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#128

Post by unityByFreedom »

alexandercrohde wrote: post #20
ricardobeat wrote: post #12

Earlier quoted context omitted.

I understand the urge to summarize, but maybe interested HN users can be expected to read the article before coming to the comments? This seriously degrades the quality of discussion.

It's fine to bemoan people commenting who haven't read the article, but reading the comments first to gauge if the article is clickbait/whatever is a perfectly valid use-case. I also cherish summaries like these - if I read the whole article I won't remember more than 2 sentences of it tomorrow. That distillation process is inevitable and good. It's a service to do it well for those who are time/memory-limited.

Thanks! At the time I wrote this, the majority of comments were focused on criticizing the headline [1], and there was little discussion of the article itself.

Now I see there are many comments about the content of the article. I don't know if the summary caused more people to read it or not. I wanted to encourage more readership and on-topic discussion.

[1] https://news.ycombinator.com/item?id=20541644

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#129

Post by wavepruner »

cpncrunch wrote: post #109
wavepruner wrote: post #105

Earlier quoted context omitted.

I won't. You don't know what you're talking about unless you have this illness and have a minimum of PhD level of understanding of biochemistry and enzymology. I've cured myself. Who have you cured? No one I'm sure.

Yes I have had it, and am fully recovered now thanks.

Then perhaps we are talking about two separate illnesses.

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#130

Post by chillwaves »

uberduber wrote: post #89
TheOtherHobbes wrote: post #85

Earlier quoted context omitted.

Some doctors are idiots. Some doctors are only in it for the money. Only a small proportion of the people who qualify have any genuine deep-seated urge to help fix human suffering. When doctors get it wrong, people die. Anyone who genuinely does care about human suffering is going to find that difficult. But a lot of patients are idiots too. For every educated more-or-less self-aware middle class professional a docto…

This. Essentially doctors go through 12+ years to work retail. Many people get an education just so they don't have to work with retail customers. Also, it has gotten worse. Before the ACA there used to be a barrier where to see a doctor you essentially either had a job or money which would weed out a lot of the nuts.

Incredibly offensive and shameful comment. Tell me more about the barriers you want to erect between people and health care.
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