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23andMe changed its terms of service to prevent hacked customers from suing

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Re: 23andMe changed its terms of service to prevent hacked customers from suing

#111
post #27
post #21

I would have presumed that security-minded people, which includes those who work in tech, would not so easily give away their genome, and that most of 23andMe's customers are a slice of the general population. But then I read about things like WorldCoin and that people who go to startup parties jump at the chance to give away scans of their retinas and I'm befuddled. Why would anyone willingly do that?

I am a security engineer. When I signed up for 23andme, I assumed with certainty that it would be hacked and all data leaked at some point. I balanced that with the value of knowing potentially important health/genetic bio markers. In the end, I valued knowing these bio markers above the privacy of my genome. The former is actionable and I can use it to optimize my health and longevity; the latter is of vague value a…

In retrospect, how do you so far value the utility of the data you got? Did you take any actions based on them, do you think you will be doing so in the future?

Re: 23andMe changed its terms of service to prevent hacked customers from suing

#112

Earlier quoted context omitted.

“Not responsible for black eye if something falls from your vehicle and damages my vehicle.”

Except that the truck driver has zero fault for the gravel on the road and the spacing between the tires and the mud guard of the truck his employer maintains. Or did you mean you’d seek out the ceo of the truck company and give them a black eye?

This is usually related to drivers who do not use the cover of their truck they are legally supposed to. So rocks fly out the top.

Re: 23andMe changed its terms of service to prevent hacked customers from suing

#113

Earlier quoted context omitted.

Except that the truck driver has zero fault for the gravel on the road and the spacing between the tires and the mud guard of the truck his employer maintains. Or did you mean you’d seek out the ceo of the truck company and give them a black eye?

This is usually related to drivers who do not use the cover of their truck they are legally supposed to. So rocks fly out the top.

Or dump trucks, which leak out the seams as they go over bumps

Re: 23andMe changed its terms of service to prevent hacked customers from suing

#114

Gladly I never used any of these services, not just knowing my ancestors origins will add zero value to my life, but also I don’t trust any cloud services to store my passwords or notes, let alone a biometric I will never be able to change, alive or not.

The slightly annoying thing with this data, though, is that even if you don't provide your data your privacy can be violated via any relatives' data that did decide to use the service.

Re: 23andMe changed its terms of service to prevent hacked customers from suing

#115
post #78

Earlier quoted context omitted.

So you would be ok if governments around the world have sample of yours and store it in a database?

Yes. What's the problem?

Prove it by copy and pasting your DNA in a reply.

Re: 23andMe changed its terms of service to prevent hacked customers from suing

#116
post #75

Earlier quoted context omitted.

I'd say it's more than suspect, what's the point of agreeing to a terms of service if they can change after you agree to them?

They usually put that exact thing into the ToS. The right to change it at any time.

Ahh ok this sounds like a thing that’s OK in the USA but not EU :-/

Re: 23andMe changed its terms of service to prevent hacked customers from suing

#117
post #21

I would have presumed that security-minded people, which includes those who work in tech, would not so easily give away their genome, and that most of 23andMe's customers are a slice of the general population. But then I read about things like WorldCoin and that people who go to startup parties jump at the chance to give away scans of their retinas and I'm befuddled. Why would anyone willingly do that?

The same people believed crypto-currency, infinite growth, social media and many other things. At least 23andMe provided actual value, to some at least. What I find strange is that 23andMe did not automatically delete data after 30 days, or at the very least took it offline, only to be available on request. Notify people that their results are available and inform them that the data will be available for 30 days afte…

What actual value did 23andMe and similar services offer in the first place?

Quenching someone's curiosity about where their ancestors are from? Do we even know how accurate it is at doing that?

Re: 23andMe changed its terms of service to prevent hacked customers from suing

#118
post #21

I would have presumed that security-minded people, which includes those who work in tech, would not so easily give away their genome, and that most of 23andMe's customers are a slice of the general population. But then I read about things like WorldCoin and that people who go to startup parties jump at the chance to give away scans of their retinas and I'm befuddled. Why would anyone willingly do that?

[deleted]

Re: 23andMe changed its terms of service to prevent hacked customers from suing

#119
post #73

Earlier quoted context omitted.

No, I don't think that that's obvious. At least in the US, there are already protections for genetic information (including but not limited to GINA [1]). In the long run, I think keeping your genetic information private will be untenable- the potential benefits will outweigh the drawbacks. Plus, anyone sufficiently motivated could get your DNA somehow, you shed your DNA everywhere you go, no getting around that. So w…

>Plus, anyone sufficiently motivated could get your DNA somehow, you shed your DNA everywhere you go, no getting around that. But these people need to get close to you. 23andme made it easy for someone who could have been on the other side of the globe.

And do what with it?
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