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New studies offer insight into Lyme disease’s treatment, lingering symptoms

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Re: New studies offer insight into Lyme disease’s treatment, lingering symptoms

#101

Post by netaustin »

hentrep wrote: post #23
netaustin wrote: post #21

I contracted Lyme disease while on vacation in Cape Cod last year. The first symptom was left-side facial paralysis, which my physician diagnosed as Bell's Palsy, so I spent two weeks on steroids before we figured out the real issue. Three weeks of doxycycline cured the Lyme but left feeling pretty wrecked for more than a month afterwards! I seem to have avoided the chronic symptoms some people experience, but a low-…

Disclaimer: Not a doctor. I think you’re alluding to this in your last statement, but standard treatment for Lyme can absolutely wreck your natural gut microbiome. This could explain some of the lingering chronic effects post-treatment. Did you try supplementing with fermented foods or probiotics after completing dox?

Oh yeah, it just took time. Pill-based probiotics didn’t seem to work, but food (or time) did after a couple months.

Re: New studies offer insight into Lyme disease’s treatment, lingering symptoms

#102

Post by fdudjnr »

I had a tick bite years about with bullseye and didn’t get treated. I’ve had Lyme disease-related symptoms ever since, but and assume from what I’ve read it’s too late to do anything about it. Would this treatment still help or am I still fucked?

Re: New studies offer insight into Lyme disease’s treatment, lingering symptoms

#104

Post by voidmain0001 »

ToDougie wrote: post #76
voidmain0001 wrote: post #35

Earlier quoted context omitted.

I'm on a second round of Doxy. The first was 21 days and now I have a 60 day prescription. It doesn't knock me out. I take the first dose early in the morning with a lot of water. I don't eat until noon, but not before first taking a capsule of probiotics to replenish gut bacteria. I take the second Doxy in the evening with a meal. Then 3 hours later I take another probiotic capsule to restore gut bacteria overnight.…

Which probiotic?

Option+ 30B CFU. It was on sale at a pharmacy that was in a convenient area. I bought based on it being discounted and having average CFU.

Re: New studies offer insight into Lyme disease’s treatment, lingering symptoms

#105

Post by [deleted] »

y-c-o-m-b wrote: post #55
netaustin wrote: post #21

I contracted Lyme disease while on vacation in Cape Cod last year. The first symptom was left-side facial paralysis, which my physician diagnosed as Bell's Palsy, so I spent two weeks on steroids before we figured out the real issue. Three weeks of doxycycline cured the Lyme but left feeling pretty wrecked for more than a month afterwards! I seem to have avoided the chronic symptoms some people experience, but a low-…

Doxycycline is my favorite antibiotic and the most effective against chronic sinusitis and chronic prostatitis for me. I only take it maybe once a year, but it does wonders for a good long time. It also cured my nearly lifelong IBS-D about a decade ago. I had a small re-occurrence of IBS-D last year after so many years without it. I was able to convince the doc that it fixed it for me in the past, so he prescribed me…

[deleted]

Re: New studies offer insight into Lyme disease’s treatment, lingering symptoms

#106

Post by speed_spread »

Klonoar wrote: post #88
y-c-o-m-b wrote: post #55

Earlier quoted context omitted.

Doxycycline is my favorite antibiotic and the most effective against chronic sinusitis and chronic prostatitis for me. I only take it maybe once a year, but it does wonders for a good long time. It also cured my nearly lifelong IBS-D about a decade ago. I had a small re-occurrence of IBS-D last year after so many years without it. I was able to convince the doc that it fixed it for me in the past, so he prescribed me…

That’s wild that it had that effect for you with any form of IBS. I know two people with Crohns where it set off and irritated their systemd for months.

> irritated their systemd

Ouch

Re: New studies offer insight into Lyme disease’s treatment, lingering symptoms

#107

Post by adventured »

newyankee wrote: post #92
BiteCode_dev wrote: post #71

Earlier quoted context omitted.

Doctors are trained to be arrogant, dismissive of unknown unknowns, and with a terrible understanding of statistics. Add to that: - They have a lot of patients and not enough sleep. - They need to pay back a huge student loan. - They hold terrible responsibilities and risk being sued. - They don't have much time for themselves, let alone update their knowledge. - Most patients are overreacting idiots, so it's a winni…

Makes you question, how bad could an all encompassing AI be at diagnosing given enough multimodal data

One can debate its merit right now, the upside / downside equation. In 10-20 years? Game over. Doctors will largely be the physical space touch point. AI will in effect use meatbags to interact with the patients.

Re: New studies offer insight into Lyme disease’s treatment, lingering symptoms

#108

Post by Retric »

newyankee wrote: post #92
BiteCode_dev wrote: post #71

Earlier quoted context omitted.

Doctors are trained to be arrogant, dismissive of unknown unknowns, and with a terrible understanding of statistics. Add to that: - They have a lot of patients and not enough sleep. - They need to pay back a huge student loan. - They hold terrible responsibilities and risk being sued. - They don't have much time for themselves, let alone update their knowledge. - Most patients are overreacting idiots, so it's a winni…

Makes you question, how bad could an all encompassing AI be at diagnosing given enough multimodal data

I suspect AI chosen by an organization trying to maximize profits could be really bad.

This is an industry that places people’s lives as vastly less important than minor scheduling issues as someone working 12+ hours is seen as perfectly normal.

Re: New studies offer insight into Lyme disease’s treatment, lingering symptoms

#109

Post by dev1ycan »

BiteCode_dev wrote: post #71
The5thElephant wrote: post #62

Earlier quoted context omitted.

Why have I heard so many stories of doctors not wanting to diagnose something as Lyme disease?

Doctors are trained to be arrogant, dismissive of unknown unknowns, and with a terrible understanding of statistics. Add to that: - They have a lot of patients and not enough sleep. - They need to pay back a huge student loan. - They hold terrible responsibilities and risk being sued. - They don't have much time for themselves, let alone update their knowledge. - Most patients are overreacting idiots, so it's a winni…

"Doctors are trained to be arrogant"

Says the programmer who is giving an opinion on a field that is not his...

Re: New studies offer insight into Lyme disease’s treatment, lingering symptoms

#110

Post by VoidWhisperer »

BiteCode_dev wrote: post #71
The5thElephant wrote: post #62

Earlier quoted context omitted.

Why have I heard so many stories of doctors not wanting to diagnose something as Lyme disease?

Doctors are trained to be arrogant, dismissive of unknown unknowns, and with a terrible understanding of statistics. Add to that: - They have a lot of patients and not enough sleep. - They need to pay back a huge student loan. - They hold terrible responsibilities and risk being sued. - They don't have much time for themselves, let alone update their knowledge. - Most patients are overreacting idiots, so it's a winni…

> At some point, your doctor WILL fail you, so you have to take responsibility, usually when you're weak and at a low point in your life.

The two times I've been hospitalized in my adult life, I've been incredibly thankful for my parents stepping in to act as my patient advocates, including pushing back on doctors when necessary. (The first hospitalization was guilliane-barre and the other a rare hemotological condition, so i wasn't in a great place in either scenario to advocate for myself).

A pediatrician in my family has said that patients get significantly better outcomes when they have a patient advocate, because even if they are directly related to you (i.e. parents or sibling), they are going to be far better at being objective on the situation than you, the person being affected by it, is

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