Live data from Hacker News

Narcolepsy is weird but I didn't notice

fortressofdoors.com

101–109 of 109 posts

Re: Narcolepsy is weird but I didn't notice

#101
post #4

It's not normal to start dreaming as you fall asleep ? I thought that's how you know you're falling asleep? That you're starting to see the dreams?

Yeah this is me too. I've always thought this is normal. I don't experience any primary symptoms (e.g. sudden bouts of sleep or cataplexy), so it's probably no real cause for concern.

Re: Narcolepsy is weird but I didn't notice

#102
post #87

Earlier quoted context omitted.

I just read through the study. I corroborate your summary. > The tryptophan found in hydrolyzed whey binds to a different receptor than normal dietary tryptophan, thereby allowing your body to reuptake it and produce serotonin as usual. (This is all in the study.) Took me a bit to find the quote. > If tryptophan uptake was abrogated by poly(I:C) treatment, tryptophan supplementation should elevate serotonin levels ev…

If its dipeptide transporter, seems like any dipeptide would do. Adding bromelain to mix might help.

Yeah, thinking about this a bit more, shouldn't stomach proteases break the protein sources into dipeptides? I found a few comments online arguing that hydrolyzing doesn't matter and may cost more. If that's true, then we should only care about the protein types of whey, especially the alpha-lactalbumin content (higher tryptophan). I think bromelain would only help people with reduced protease production, and it likely won't break apart hydrolyzed protein any further. Of course, theory requires a test, but I won't add bromelain to my hydrolyzed whey test.

Re: Narcolepsy is weird but I didn't notice

#103

Earlier quoted context omitted.

If its dipeptide transporter, seems like any dipeptide would do. Adding bromelain to mix might help.

Yeah, thinking about this a bit more, shouldn't stomach proteases break the protein sources into dipeptides? I found a few comments online arguing that hydrolyzing doesn't matter and may cost more. If that's true, then we should only care about the protein types of whey, especially the alpha-lactalbumin content (higher tryptophan). I think bromelain would only help people with reduced protease production, and it like…

Thats correct.

Bromelain cant harm though, is cheap, hydrolization is certainly not perfect, and it has other positive effects on body such as anti inflammatory, pain reduction etc.

Re: Narcolepsy is weird but I didn't notice

#104

Earlier quoted context omitted.

Yeah, thinking about this a bit more, shouldn't stomach proteases break the protein sources into dipeptides? I found a few comments online arguing that hydrolyzing doesn't matter and may cost more. If that's true, then we should only care about the protein types of whey, especially the alpha-lactalbumin content (higher tryptophan). I think bromelain would only help people with reduced protease production, and it like…

Thats correct. Bromelain cant harm though, is cheap, hydrolization is certainly not perfect, and it has other positive effects on body such as anti inflammatory, pain reduction etc.

Can you share a few studies, please? I'd like a good theory for the effectiveness of bromelain, first.

Re: Narcolepsy is weird but I didn't notice

#105

Earlier quoted context omitted.

Thats correct. Bromelain cant harm though, is cheap, hydrolization is certainly not perfect, and it has other positive effects on body such as anti inflammatory, pain reduction etc.

Can you share a few studies, please? I'd like a good theory for the effectiveness of bromelain, first.

Its potency is measured in Gelatin Digesting Units (GDU), I think thats telling enough.

Re: Narcolepsy is weird but I didn't notice

#106
post #47

Earlier quoted context omitted.

It sounds different from what I’ve been dealing with, but I got diagnosed with sleep apnea in 2023 and getting on a cpap has made a world of difference to my health and energy levels, including making my chronic migraines go away basically completely since starting cpap therapy. I am simply writing this in the hopes that possibly exploring this diagnosis might help you. I used to often wake up exhausted and feeling l…

I appreciate the suggestion. They tested me twice for sleep apnea. The first time it was borderline so we decided that was unlikely to be the cause. That was also just a few months after COVID when my symptoms were extreme and persistent and I was also experiencing major insomnia. The second time was a year later when I was supposed to be getting the multiple sleep latency test for narcolepsy. I had an awful time get…

Yeah, I really had a hard time getting the hang of the mask and pressure and didn’t think it would work out either, but I was eventually able to figure out settings and accessories that made it work well for me. I dunno, maybe worth it to pursue, maybe not.

Re: Narcolepsy is weird but I didn't notice

#107
post #74
post #72

Earlier quoted context omitted.

yeah I do squeeze my hands when I wake up with sleep paralysis too. It doesn't take long to gradually gain full control.

Are you fully aware of your surrounding when that happens? That trick I mentioned works best for me when this annoying meta-dream of being sleeping/paralyzed in my dream (i.e. dreaming of being somewhere sleeping, usually around people and not being able to wake up to engage with them). I've often wondered if this is a sort of sleep paralysis or not because it doesn't quite fit neither what I read about sleep paralys…

I'm not fully awake initially but not fully asleep either. It's an in-between state.

Re: Narcolepsy is weird but I didn't notice

#108
post #57

sometimes when sleeping or falling asleep i "wake up" or so. Basically im awake but i start having hallucinations about my surroundings, kind of like the description of sleep paralysis but i can move. I only have experienced sleep paralysis twice in my life so i wouldn't really know. But hallucinations while semi sleep are wild, idk if it is normal, i haven't really considered before

The waking up part is called hypnopompia and the falling asleep part is called hypnagogia. Hallucinations are known to occur during these phases between wakefulneas and sleep (e.g "I have hypnagogic/hypnopompic hallucinations") ) https://en.wikipedia.org/wiki/Hypnopompia https://en.wikipedia.org/wiki/Hypnagogia

Omg that's so interesting. Thank you

Re: Narcolepsy is weird but I didn't notice

#109
post #76

I've wondered if I've had some mild form of narcolepsy for a while now because I often get hit with a strong and sudden urge to sleep and will fall into a deep sleep rapidly if I'm sitting down. I don't remember this happening when I was younger, but it started happening more and more often in my 20s to the point I'd normally have at least one 20-30 min nap a day. The author also describes dreaming while awake, and s…

Yes, what you describe, the hypnogogic state, is something that almost everyone experiences to varying degrees and frequencies:

> "Although experiencing a hallucination might prompt confusion or fear, hypnagogic hallucinations are relatively common. Hypnagogic hallucinations are a common symptom of narcolepsy, but can also occur in people who do not have narcolepsy. In fact, one study found that 37% of people report experiencing hallucinations as they fall asleep."

Source: https://www.sleepfoundation.org/how-sleep-works/hypnagogic-h...

Their association with narcolepsy is one of several features, and it occurs more frequently and often during daytime naps in patients with narcolepsy:

> Hypnagogic states are not only an associated feature of narcolepsy, but they also are favourable for a diagnosis. Accordingly, the prevalence of hypnagogic states was higher in patients with narcolepsy than controls (Bosch et al., 2012; Fortuyn et al., 2009). Moreover, patients with narcolepsy are also more prone to experience daytime hypnagogia (Fortuyn et al., 2009), most likely due to excessive daytime sleepiness.

Source: https://pmc.ncbi.nlm.nih.gov/articles/PMC10078162/

Post reply on HN