Companies are going to grow around this data. An entire
industry might grow around this data, and it will be an industry that I support every time I pay an insanely high insurance premium or medical bill.
15% of our workers are in the medical system [0], and this doesn't even include the surrounding insurance industries or pharma industries (I think). Someone has to pay all these people, and that someone is me when I pay high insurance premiums and high medical bills.
I'm picturing a satirical 40s style poster that shows the doctor putting a bandaid on Timmy's knee, and then mom doing her patriotic duty and writing out a $1000 check. The poster then shows that the $1000 supports medical coders who know all the codes for duck attacks, and the pharma advertisers who one-up even Broadway and Hollywood with their 90-second advertisements, and the people who reassemble the poorly organized data this article talks about, and--oh yeah, there's a few bucks left for the doctor too.
I used to work at a company that does background checks on doctors. We'd gather data from all 50 states, all of it in different formats, all of it a pain to work with. Hundreds of people were involved in this process, all of us ultimately paid through high hospital bills (hospitals were our customers). With the right regulation, we all could have been replaced with a 50 line Python script.
Ultimately, if we're going to build a medical system that takes 15% to 20% of our workers to run, then we're going to have to pay for that. The problem is that "let's make the industry more efficient and put a lot of people out of work" is not politically popular.
[0]: https://www.census.gov/library/stories/2021/04/who-are-our-h...