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The bureaucracy blocking the chance at a cure

writingruxandrabio.com

11–20 of 192 posts

Re: The bureaucracy blocking the chance at a cure

#11

[flagged]

I don't see how you can blame this on feminists when other people should also have been pushing for those same rights?

Why are you putting more of the blame on feminists and women than any other section of society here? It just reads as unhinged misogyny.

Re: The bureaucracy blocking the chance at a cure

#12
post #5

The healthcare industry, especially in the US, isn't interested in finding cures for disease. It's interested in maximizing profits, which is a goal that the bureaucracy serves.

The healthcare industry in the US in made up a huge range of individual and organizations, they don’t all have the same motives. Suggesting otherwise is projecting your own fears not representative of reality.

Then feel free to point out the outliers that aren't interested in maximizing profits.

https://www.somo.nl/big-pharma-raked-in-usd-90-billion-in-pr...

It seems to me that the leading vaccine manufacturers, who spend billions of dollars yearly in order to lobby US lawmakers that establish the bureaucracy the article is complaining about, are interested in just that (maximizing profits).

It doesn't really matter much if there are individuals or other organizations interested in curing disease, when we have a system that allows for legal bribery of lawmakers, and other individuals / organizations with more money that value profits over anything else.

Re: The bureaucracy blocking the chance at a cure

#13
post #11

[flagged]

I don't see how you can blame this on feminists when other people should also have been pushing for those same rights? Why are you putting more of the blame on feminists and women than any other section of society here? It just reads as unhinged misogyny.

Because they were fighting for half the population, and they demonstrably lost. We now have pre-1975 law, including horrific laws like Texas creating task forces hunting out women with miscarriages and abortions in other states.

They could have made the 'umbrella' of what they were fighting for cover 100% of the population. They didn't. We're all worse for it.

Re: The bureaucracy blocking the chance at a cure

#14
As someone who has looked at things like Renewable energy deployments within the UK, this is a pattern that seems to be quite pervasive across all industries. The byzantine web of planning approvals, goose counting, public outcry that you have to deal with to deploy essentially a relatively small solar farm is monstrous.

What that results with is that the only people capable of creating & managing these processes have the legal teams & resources necessary, stifling growth. Even once you get an approval, it may be years in order to get a grid connection.

This risk averse attitude pervades into all walks of life, including medical beurocracy. This essentially locks out a ton of real innovation, as it's too expensive to square up against a mass of beurocracy attempting to stifle you at all turns.

Re: The bureaucracy blocking the chance at a cure

#15
post #5

The healthcare industry, especially in the US, isn't interested in finding cures for disease. It's interested in maximizing profits, which is a goal that the bureaucracy serves.

The healthcare industry in the US in made up a huge range of individual and organizations, they don’t all have the same motives. Suggesting otherwise is projecting your own fears not representative of reality.

[dead]

Re: The bureaucracy blocking the chance at a cure

#16
post #5

The healthcare industry, especially in the US, isn't interested in finding cures for disease. It's interested in maximizing profits, which is a goal that the bureaucracy serves.

The healthcare industry in the US in made up a huge range of individual and organizations, they don’t all have the same motives. Suggesting otherwise is projecting your own fears not representative of reality.

Doesn't matter. Not all have the same level of influence. The ones with the most clearly follow GP's characterization.

Re: The bureaucracy blocking the chance at a cure

#17

The healthcare industry, especially in the US, isn't interested in finding cures for disease. It's interested in maximizing profits, which is a goal that the bureaucracy serves.

Have you ever considered that "finding cures for disease" is really fucking hard to do?

Things that were easy to cure were already cured some time in the past century. What remains is the hard to crack nuts that resist simple scalable methods.

There's money to be had in curing HIV - but good luck pulling that off. Maybe someone will, this century.

Re: The bureaucracy blocking the chance at a cure

#18
post #11

Earlier quoted context omitted.

I don't see how you can blame this on feminists when other people should also have been pushing for those same rights? Why are you putting more of the blame on feminists and women than any other section of society here? It just reads as unhinged misogyny.

Because they were fighting for half the population, and they demonstrably lost. We now have pre-1975 law, including horrific laws like Texas creating task forces hunting out women with miscarriages and abortions in other states. They could have made the 'umbrella' of what they were fighting for cover 100% of the population. They didn't. We're all worse for it.

> They could have made the 'umbrella' of what they were fighting for cover 100% of the population [...] They didn't. We're all worse for it.

Other people could have stood by them and fought for those rights too. You're blaming the wrong people. Regardless of your intentions, you're not coming across well. I'd urge you to try reframing this, as you're not going to win many supporters outside of the alt-right pipeline as you're pitching it at the moment.

I don't want to accuse you of being a misogynist. Nor do I want to accuse you of being alt-right. But that is how you are coming across in your comments. Textual internet discourse always hides nuances. I'd really ask that you reconsider how you frame this, whether internally or externally, because as it stands, I don't think it's great.

Re: The bureaucracy blocking the chance at a cure

#19

As someone who has looked at things like Renewable energy deployments within the UK, this is a pattern that seems to be quite pervasive across all industries. The byzantine web of planning approvals, goose counting, public outcry that you have to deal with to deploy essentially a relatively small solar farm is monstrous. What that results with is that the only people capable of creating & managing these processes hav…

That's what a lot of people seemingly struggle to understand.

Inaction is not a safe action. Inaction has a price. And sometimes a death toll too.

Re: The bureaucracy blocking the chance at a cure

#20
'Bureaucracy' is commonly used as a trigger word. When I see it, I'm alerted to manipulation and, in some contexts, a certain partisan dogma. After all, who likes bureaucracy? By the same token, who like stop lights or authentication or other structures in life? But every large organization functions using bureaucracy - every highly successful one, every median one, every poor one.

> A system originally conceived to safeguard patients has gradually produced a strange and troubling outcome: the mere chance of survival is effectively reserved for the very few who possess the means to assemble an army of experts capable of navigating its labyrinthine procedures.

The survival of who? The three people who are trying to experiment on themselves (with questionable results, especially when their experiment has N=1)? That's a crisis? What about the 99.9..% of sick people?

> I will focus on the former: small, exploratory trials, which will be called early-stage small n trials for the purpose of this essay.

'early-stage' - it's just like a startup! Except the human experimentation part.

> In recent years, China has been advancing rapidly in biotechnology, in part because it is easier to run early-stage clinical studies there.

> “The US can’t afford to lose the biotech race with China.”

With the 'bureaucracy', it's right out of central casting, including the scare tactic: The same arguments have been used for labor standards, property rights, democracy itself.

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