Gene therapy restored hearing in deaf patients
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Re: Gene therapy restored hearing in deaf patients
#12Re: Gene therapy restored hearing in deaf patients
#13This is great news. Hopefully this will be expanded to other forms deafness like those caused by ototoxic medication, ear infections, and general sensorineural hearing loss.
This particular study looks like it's dealing with a pretty narrow condition and solution (protein missing - add gene for protein). I don't think this particular research can be extended the way you hope.
Re: Gene therapy restored hearing in deaf patients
#14[flagged]
Re: Gene therapy restored hearing in deaf patients
#15[flagged]
Re: Gene therapy restored hearing in deaf patients
#16Anyone from the deaf community that can tell us how these kind of news are received? I wonder how this compares to animosity towards coclear implants by a subsection of the community
Many deaf/Deaf parents want children who hear. And I think absent the cultural consideration, almost all would want children who hear.
But you can't ignore the cultural consideration. If you are deaf, and have a deaf child, curing that child's deafness means they will move away from you later in life. It's a kind of alienation even when the child remains bicultural, they usually end up almost entirely in the hearing world.
That said, most deaf people who have children have hearing children anyway. Hereditary deafness like that is relatively rare like that.
But for people from such families, and who live in a culturally deaf world -- they are not disabled. The cultural environment they live in is ... one in which deafness is not disabling. And it's going to be a very high hill to climb to convince them that they are missing something. They certainly don't feel it. This is particularly true in the United States which has such a proud tradition of deaf culture and education -- you can go all the way to doctorate level studies in ASL, work in ASL, the hearing world being a strange foreign culture you only rarely wade into -- only rarely need to.
I'd cure it for myself, and my child if I had one. No question. But I'm not culturally deaf. I feel isolated by it in the same way most hearing people anticipate deafness to be as an experience. But again -- people who live in the deaf cultural world -- they do not feel that, and they don't feel disabled because, in their context, they aren't. It's hard to communicate this to most hearing people. The usual response is dismissive, and unfortunately I think a lot of that ultimately goes back to very old metaphysical attitudes towards language and intelligence. A lot of hearing people still don't believe, deep down, that sign languages are equivalent to spoken languages, in particular. It's just gesture. You're lacking something essential to the human condition without spoken language. Etc. But for the culturally deaf, nothing is missing from their lives, except the perception of sound.
Re: Gene therapy restored hearing in deaf patients
#17Is there a specific field in genetics pushing this?
I used to hear buzz about CRISPER/CAS9 is it what is underlying most of these advancements?
How come alot of gene editing stocks have taken a serious beating if the tech is so good.
Many, many gene editing stocks have lost more than 90% of thier value since IPO.
Re: Gene therapy restored hearing in deaf patients
#18Anyone from the deaf community that can tell us how these kind of news are received? I wonder how this compares to animosity towards coclear implants by a subsection of the community
Controversial in the same way cochlear implants are. Many deaf/Deaf parents want children who hear. And I think absent the cultural consideration, almost all would want children who hear. But you can't ignore the cultural consideration. If you are deaf, and have a deaf child, curing that child's deafness means they will move away from you later in life. It's a kind of alienation even when the child remains bicultural…
If a person wishes to not get a certain treatment - fine, that's their right. But when one starts trying to keep others down, that's not ok.
Re: Gene therapy restored hearing in deaf patients
#19Earlier quoted context omitted.
Controversial in the same way cochlear implants are. Many deaf/Deaf parents want children who hear. And I think absent the cultural consideration, almost all would want children who hear. But you can't ignore the cultural consideration. If you are deaf, and have a deaf child, curing that child's deafness means they will move away from you later in life. It's a kind of alienation even when the child remains bicultural…
There are few things that make me angrier than trying to hold back cures for deafness because of "cultural erasure" or whatever the phrasing is. It is utterly reprehensible. To try to keep someone disabled (yes - disabled, not "differently abled", they are objectively lacking a capability that a healthy human has) just so that there are more people in your community is objectively evil in my book. It is directly doin…
Those two things mean different things to me. Obviously deaf people cannot hear. Not able. Dis-able. Deafness is a disability.
But not all disabilities are generally disabling of individuals. The only disability that deafness causes is a lack of perception of sound.
Hearing people have a panoply of inferences about what that means -- about how it disables and how broadly it disables. And most of them are faulty. It doesn't result in isolation, in particular, in a deaf cultural context. In fact in the deaf cultural context about the only thing missing is some auditory alerts that would be nice as a visual complement, and some aspects of music and the like. Yes. Birds chirping is beautiful. I miss it deeply. It'd be nice to have a world where every kid gets to experience that.
But all of the social and emotional and cognitive consequences imagined of deafness, are not innate to the lack of hearing.
Re: Gene therapy restored hearing in deaf patients
#20Earlier quoted context omitted.
Controversial in the same way cochlear implants are. Many deaf/Deaf parents want children who hear. And I think absent the cultural consideration, almost all would want children who hear. But you can't ignore the cultural consideration. If you are deaf, and have a deaf child, curing that child's deafness means they will move away from you later in life. It's a kind of alienation even when the child remains bicultural…
There are few things that make me angrier than trying to hold back cures for deafness because of "cultural erasure" or whatever the phrasing is. It is utterly reprehensible. To try to keep someone disabled (yes - disabled, not "differently abled", they are objectively lacking a capability that a healthy human has) just so that there are more people in your community is objectively evil in my book. It is directly doin…
Many people here self-diagnose as Asperger's. Can you not see why they would not want a "cure"?
Being an extrovert objectively gives you great advantages in (most) societies. As an introverted parent, I would definitely fight any "cure" for my introverted children.
Furthermore, if both parents are deaf and the kid is not deaf, there's a good chance that in the first so many years of life, the kid will have poorer mental development than the deaf kid. Not quite the same, but an example: Deaf kids born to deaf parents hit the same language milestones as hearing kids born to hearing parents. But deaf kids born to hearing parents do worse, because the parents don't know the appropriate way of thinking/communicating.
Related: Deaf kids who were given cochlear implants, but no sign language training fared a lot worse than both hearing kids and deaf kids who learned sign language.