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Bedridden for 11 years, he discovered a surgery for his adrenal condition

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11–20 of 147 posts

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#11

So, is it related to adrenal fatigue which is not yet fully recognized AFAIK ? Would it help ?

No it's not, adrenal fatigue is when you cant produce enough hormones primarily cortisol

What he has is "bilateral adrenal medullary hyperplasia. In layman's terms, it means the medullas, or inner regions, of his adrenal glands were enlarged and acting like tumors. His adrenal glands were producing way too much adrenaline."

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#12

This is an incredible story. His mom had the same undiagnosed, unfixable problem. The gist is, > If he could cut out the medullas of his adrenal glands -- sort of like slicing into a hard-boiled egg and removing the yolk -- his health would improve. > Eventually he recruited a surgeon from the University of Alabama-Birmingham. In September 2010 Lindsday went to the university hospital, where the doctor successfully e…

I understand the urge to summarize, but maybe interested HN users can be expected to read the article before coming to the comments? This seriously degrades the quality of discussion.

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#13

This is an incredible story. His mom had the same undiagnosed, unfixable problem. The gist is, > If he could cut out the medullas of his adrenal glands -- sort of like slicing into a hard-boiled egg and removing the yolk -- his health would improve. > Eventually he recruited a surgeon from the University of Alabama-Birmingham. In September 2010 Lindsday went to the university hospital, where the doctor successfully e…

I understand the urge to summarize, but maybe interested HN users can be expected to read the article before coming to the comments? This seriously degrades the quality of discussion.

There is a popular trend where people will read the comments first and depending on the discussion they move to read the article

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#14

So, is it related to adrenal fatigue which is not yet fully recognized AFAIK ? Would it help ?

In some cases this could be a diagnosable and treatable cause of the kind of illness that often gets described as "adrenal fatigue".

I have some experience with this topic, having spent at least 13 years in that category of people who is ill in a way that mainstream medicine can't really diagnose or treat - and in a way that has parallels with the symptoms described in this article (though not nearly as severe or debilitating).

The idea of "adrenal fatigue" and "adrenal insufficiency" has come up a lot in the self-directed research I've done, but only among complementary/alternative practitioners like naturopaths and chiropractors.

It's not really a medical way of thinking about things - i.e., "your adrenal glands must be tired because you've been too busy/stressed". It's not something you can test for or address with medical treatment - which is why people who go down that path end up undertaking 'holistic' treatment approaches like diet, supplements, exercise, emotion-based therapies, etc, with varying degrees of success.

But there are plenty of people I've come across, particularly in communities of people who diagnosed with, or presumed as having "Chronic Fatigue Syndrome", who suffer without any improvement for many years despite trying every conceivable remedy, whose condition may well be explained by what is described in this article, or by something comparably obscure, relating to the adrenals or other parts of the autonomic nervous system.

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#15

This is an incredible story. His mom had the same undiagnosed, unfixable problem. The gist is, > If he could cut out the medullas of his adrenal glands -- sort of like slicing into a hard-boiled egg and removing the yolk -- his health would improve. > Eventually he recruited a surgeon from the University of Alabama-Birmingham. In September 2010 Lindsday went to the university hospital, where the doctor successfully e…

I understand the urge to summarize, but maybe interested HN users can be expected to read the article before coming to the comments? This seriously degrades the quality of discussion.

I am often more interested in the comments here than the content of the article so I am happy with the summary.

I can often understand what the article is about and go to the comment section for pros and cons

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#16

Remarkable story. It's amazing how closed-minded "experts" can be. I suspect there are many conditions that will eventually be understood thanks to the hard work of people who approach these illnesses with the curiosity of a scientist instead of the hubris of an "expert."

it’s an inspiring story for sure, and a good reminder to experts to curb their arrogance and keep an open mind. It’s also worth noting that by about midway through the process he was largely an expert in the field, and who cares if he was self taught. The professors and surgeons who listened to him obviously thought he was competent enough to listen to his ideas and act with him.

The last thing the world needs, however, is more armchair experts declaring that their opinion is greater than someone else’s knowledge. That, after all, is how we’ve ended up with anti vaxxers, a resurgence in largely cured infectious diseases, and many other medical and social ailments of our modern age (politics anyone?)

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#17

So, is it related to adrenal fatigue which is not yet fully recognized AFAIK ? Would it help ?

No it's not, adrenal fatigue is when you cant produce enough hormones primarily cortisol What he has is "bilateral adrenal medullary hyperplasia. In layman's terms, it means the medullas, or inner regions, of his adrenal glands were enlarged and acting like tumors. His adrenal glands were producing way too much adrenaline."

But why couldn't the endocrinologist check via a blood test that he was producing too much adrenaline?

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#18

Remarkable story. It's amazing how closed-minded "experts" can be. I suspect there are many conditions that will eventually be understood thanks to the hard work of people who approach these illnesses with the curiosity of a scientist instead of the hubris of an "expert."

This guy spent 11 years becoming an expert. He talked to experts. He learned from and worked with experts. All those doctors and professors in the article who helped him are experts. He found his answer in a medical textbook.

If your take is "experts are rubbish" then you have fundamentally missed the point.

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#19
post #2

Wow, that's a particularly nasty clickbaity headline. He only dropped out because of the disease that caused him to be bedridden for those 11 years. Maybe "Student was bedridden for 11 years..." would be more accurate.

Piggybacking off of your comment, regarding click bait. In the news where I'm at, if a 19 year old does something good, they refer to him/her as a "Teenager." If this same 19 year old does something bad, "MAN ARRESTED FOR..." Never understood it.

It isn't always good, though.

"Teenage Pregnancy", for example. Most folks picture someone young. 15-16, perhaps. Most folks don't stop to consider that a very sizable portion of "teenage pregnancy" happens to 18 and 19 year olds, which while young isn't that uncommon either.

Re: Bedridden for 11 years, he discovered a surgery for his adrenal condition

#20

This is an incredible story. His mom had the same undiagnosed, unfixable problem. The gist is, > If he could cut out the medullas of his adrenal glands -- sort of like slicing into a hard-boiled egg and removing the yolk -- his health would improve. > Eventually he recruited a surgeon from the University of Alabama-Birmingham. In September 2010 Lindsday went to the university hospital, where the doctor successfully e…

I understand the urge to summarize, but maybe interested HN users can be expected to read the article before coming to the comments? This seriously degrades the quality of discussion.

It's fine to bemoan people commenting who haven't read the article, but reading the comments first to gauge if the article is clickbait/whatever is a perfectly valid use-case.

I also cherish summaries like these - if I read the whole article I won't remember more than 2 sentences of it tomorrow. That distillation process is inevitable and good. It's a service to do it well for those who are time/memory-limited.

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