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Rose Marie Bentley lived for 99 years with organs in all the wrong places

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Re: Rose Marie Bentley lived for 99 years with organs in all the wrong places

#11

Post by LilBytes »

haditab wrote: post #9
LilBytes wrote: post #7

This is fascinating! I was diagnosed with dextrocardia w/ situs inversus at 19. I didn't make it to 99 years old to find out I had it, but several physicians and doctors in my childhood missed the diagnosis too. Story time! This is written on mobile so I apologise for grammar and spelling errors. I had awful asthma as a child and would frequently visit hospital till my teenage years because of asthma attacks and simi…

This is awesome! For some reason I got really nervous reading about your accident. I was sure they opened you up and did some damage! I hope you keep going strong with the condition. I wonder how many people have lived full lives and never had it be detected.

They'd be dozens of us! Dozens! Haha.

Ah, I was very lucky in the accident. The driver was on his phone and distracted and hit me at 60 kmh. I was very, very lucky.

Re: Rose Marie Bentley lived for 99 years with organs in all the wrong places

#12

Post by BurningFrog »

LilBytes wrote: post #7

This is fascinating! I was diagnosed with dextrocardia w/ situs inversus at 19. I didn't make it to 99 years old to find out I had it, but several physicians and doctors in my childhood missed the diagnosis too. Story time! This is written on mobile so I apologise for grammar and spelling errors. I had awful asthma as a child and would frequently visit hospital till my teenage years because of asthma attacks and simi…

You know, this sounds like the kind of thing you get a tattoo for!

Re: Rose Marie Bentley lived for 99 years with organs in all the wrong places

#14

Post by LilBytes »

BurningFrog wrote: post #12
LilBytes wrote: post #7

This is fascinating! I was diagnosed with dextrocardia w/ situs inversus at 19. I didn't make it to 99 years old to find out I had it, but several physicians and doctors in my childhood missed the diagnosis too. Story time! This is written on mobile so I apologise for grammar and spelling errors. I had awful asthma as a child and would frequently visit hospital till my teenage years because of asthma attacks and simi…

You know, this sounds like the kind of thing you get a tattoo for!

It's on my list! I should probably prioritise it a little higher...

Re: Rose Marie Bentley lived for 99 years with organs in all the wrong places

#16

Post by furyofantares »

haditab wrote: post #9
LilBytes wrote: post #7

This is fascinating! I was diagnosed with dextrocardia w/ situs inversus at 19. I didn't make it to 99 years old to find out I had it, but several physicians and doctors in my childhood missed the diagnosis too. Story time! This is written on mobile so I apologise for grammar and spelling errors. I had awful asthma as a child and would frequently visit hospital till my teenage years because of asthma attacks and simi…

This is awesome! For some reason I got really nervous reading about your accident. I was sure they opened you up and did some damage! I hope you keep going strong with the condition. I wonder how many people have lived full lives and never had it be detected.

Yes there is something very disturbing about the thought of doctors potentially opening up your body and shuffling your perfectly functional organs around because they think they’re supposed to be somewhere else.

Re: Rose Marie Bentley lived for 99 years with organs in all the wrong places

#17

Post by Simon_says »

LilBytes wrote: post #11
haditab wrote: post #9

Earlier quoted context omitted.

This is awesome! For some reason I got really nervous reading about your accident. I was sure they opened you up and did some damage! I hope you keep going strong with the condition. I wonder how many people have lived full lives and never had it be detected.

They'd be dozens of us! Dozens! Haha. Ah, I was very lucky in the accident. The driver was on his phone and distracted and hit me at 60 kmh. I was very, very lucky.

Wouldn't lucky be not having the accident?

Re: Rose Marie Bentley lived for 99 years with organs in all the wrong places

#19

Post by shages »

LilBytes wrote: post #7

This is fascinating! I was diagnosed with dextrocardia w/ situs inversus at 19. I didn't make it to 99 years old to find out I had it, but several physicians and doctors in my childhood missed the diagnosis too. Story time! This is written on mobile so I apologise for grammar and spelling errors. I had awful asthma as a child and would frequently visit hospital till my teenage years because of asthma attacks and simi…

I also have Situs Inversus Totalis. Thankfully I haven't had any major health incidents to date, and my experiences with doctors and nurses has been similar. EKGs in particular can be quite interesting. :)

I'm also diagnosed with Primary Ciliary Dyskinesia, and your mention of asthma issues as a child had me wondering if it's something you're aware of? About 50% of people with PCD also have Situs Inversus Totalis. The primary symptoms are a chronic cough and congestion.

https://en.wikipedia.org/wiki/Primary_ciliary_dyskinesia

Re: Rose Marie Bentley lived for 99 years with organs in all the wrong places

#20

Post by sara7262 »

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