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Don’t Fix Facebook, Replace It

nytimes.com

11–20 of 281 posts

Re: Don’t Fix Facebook, Replace It

#11
post #9

Earlier quoted context omitted.

I think this is exactly how health/medical data should exist. My family should have their own health/medical network node and only my direct healthcare providers should be able to access the data from it and only after I authorize them with a digital signature. Whatever data they generate about my person (or persons in my family) should be owned by me, stored in my family network, and only available to others after I…

Uhmmm...just thinking out loud here. How feasible do you think it would be to use Mastodon for this? If you have a "Medical Node" as you put it (which I find apt btw), you could share it with your doctor(s) and provide access (maybe using Keybase? Auth0?) for them to either add "their own posts" with the analysis results, their findings, etc, or just to read the relevant data (e.g. for a dentist). Again, just thinkin…

Does Mastodon have a fax interface?

https://www.vox.com/health-care/2017/10/30/16228054/american...

Re: Don’t Fix Facebook, Replace It

#12

It's interesting that Tim Wu discussed the cycle of technology starting amongst outsiders and then becoming monopolized in his (phenomenal) book The Master Switch. The cycle always repeats itself by the next new technology coming along, making the prior one less significant. We seem to have accepted that the internet is essentially the final communication tech. Maybe that's true, but it seems improbable. Simply based…

I'm not really sure how blockchain is related to a potential "next" communication technology. Why not AR? Why not lasers n shit?

Re: Don’t Fix Facebook, Replace It

#13
I don't want my stuff in the "cloud", I want it shared from my lawn. My own personal space to where people can access my stuff, that I share, and we can converse over whatever that is ... my own GDPR rules.

Re: Don’t Fix Facebook, Replace It

#14
post #12

It's interesting that Tim Wu discussed the cycle of technology starting amongst outsiders and then becoming monopolized in his (phenomenal) book The Master Switch. The cycle always repeats itself by the next new technology coming along, making the prior one less significant. We seem to have accepted that the internet is essentially the final communication tech. Maybe that's true, but it seems improbable. Simply based…

I'm not really sure how blockchain is related to a potential "next" communication technology. Why not AR? Why not lasers n shit?

Wait for it . . . "Quantum Blockchain" - Boom!

Re: Don’t Fix Facebook, Replace It

#15
post #12

Earlier quoted context omitted.

I'm not really sure how blockchain is related to a potential "next" communication technology. Why not AR? Why not lasers n shit?

Wait for it . . . "Quantum Blockchain" - Boom!

Qubitcoin!

[1]: https://en.m.wikipedia.org/wiki/Qubit

Re: Don’t Fix Facebook, Replace It

#16
post #4

I think in the long run we will use a decentralised/federated system. Privacy concerns aside, it just doesn't make sense to rely on one service or expect one social network to meet everyone's needs/desires.

So, email then? It's decentralized, federated, and only sends data to the people you address it to (gmail excepted, I guess, at least in the free tier).

It's what has always worked for me.

Re: Don’t Fix Facebook, Replace It

#17
post #13

I don't want my stuff in the "cloud", I want it shared from my lawn. My own personal space to where people can access my stuff, that I share, and we can converse over whatever that is ... my own GDPR rules.

Have you seen Beaker [0]? It doesn't require you to setup a complex web server and configure a bunch of stuff, you just run the browser and it'll start sharing your website. It's a move back to a truly decentralized web.

[0] https://beakerbrowser.com/

Re: Don’t Fix Facebook, Replace It

#18
post #4

I think in the long run we will use a decentralised/federated system. Privacy concerns aside, it just doesn't make sense to rely on one service or expect one social network to meet everyone's needs/desires.

I think this is exactly how health/medical data should exist. My family should have their own health/medical network node and only my direct healthcare providers should be able to access the data from it and only after I authorize them with a digital signature. Whatever data they generate about my person (or persons in my family) should be owned by me, stored in my family network, and only available to others after I…

Who would develop and market and support this, and who would pay for it?

Re: Don’t Fix Facebook, Replace It

#19
post #4

I think in the long run we will use a decentralised/federated system. Privacy concerns aside, it just doesn't make sense to rely on one service or expect one social network to meet everyone's needs/desires.

I think this is exactly how health/medical data should exist. My family should have their own health/medical network node and only my direct healthcare providers should be able to access the data from it and only after I authorize them with a digital signature. Whatever data they generate about my person (or persons in my family) should be owned by me, stored in my family network, and only available to others after I…

I love this and I want it to be real but it won’t work. Here’s why...

As an individual, I won’t lose my medical records because I have three backups and offsite and whatever. You probably do too.

But how do you remain really decentralized when the system has to work for a 76-year-old who can’t even remember what Google is, much less his password. Will this work in the golden hour after a stroke, when literally every minute matters?

So we would make a medical record “bank”, which is federated sensibly, and require everyone to use it. And eventually we end up with a similar system that we have now.

Re: Don’t Fix Facebook, Replace It

#20
post #9

Earlier quoted context omitted.

I think this is exactly how health/medical data should exist. My family should have their own health/medical network node and only my direct healthcare providers should be able to access the data from it and only after I authorize them with a digital signature. Whatever data they generate about my person (or persons in my family) should be owned by me, stored in my family network, and only available to others after I…

Uhmmm...just thinking out loud here. How feasible do you think it would be to use Mastodon for this? If you have a "Medical Node" as you put it (which I find apt btw), you could share it with your doctor(s) and provide access (maybe using Keybase? Auth0?) for them to either add "their own posts" with the analysis results, their findings, etc, or just to read the relevant data (e.g. for a dentist). Again, just thinkin…

Doctors make notes by dictation, which is transcribed to patient charts by medical secretaries. So you'd need to authorize those people as well.
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