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British man with type 1 diabetes to receive tests after coming off insulin

diabetes.co.uk

11–20 of 45 posts

Re: British man with type 1 diabetes to receive tests after coming off insulin

#12
post #10
post #6

Earlier quoted context omitted.

That's a really interesting story and congratulations on beating a pretty nasty disease. That must feel like a true accomplishment. It appears, based on this, that carbohydrates drove your diabetes? I wonder if the problem is with refined carbohydrates or with gluten specifically? Do you eat sugar, chocolate, etc?

I think you misunderstand.... Certainly congrats to bluemax for successfully managing concurrent celiac and T1D but nothing has been "beaten" here. T1D is an autoimmune disease which destroys the pancreas' ability to produce insulin. Your body needs insulin to process sugar in the blood into energy, a large part of that sugar comes from carbs. Celiac is an autoimmune disease which is a reaction in the gut to gluten.…

Interesting. Thank you for taking the time to fill a large hole in my understanding :)

Sorry to hear about your daughter's health issues too. It must be very difficult to have that anxiety on top of the usual anxieties that come with parenthood. I have 2 young girls and I can only imagine what it would be like if either of them had a lifelong health problem, never mind 2.

Re: British man with type 1 diabetes to receive tests after coming off insulin

#13
post #4

4 years ago I got diagnosed with type 1 diabetes in my early forties. The hospital staff showed me how to manage my glucose with long acting and fast acting insuline. As a programmer I'm good with numbers so everything was pretty much under control but I started noticing that I needed less and less insuline up to the point that I needed no insuline at all. This was about a year ago. At that same time I had some new p…

You sure it was Type 1? Generally people are diagnosed with Type 1 at a very young age, since it is caused by your own immune system destroying beta cells in the pancreas, which if untreated results in eventual death. Type 2 is more often associated with age and diet. It is the most common type in particular at later ages, but some people get it younger due to genetic predisposition.

Type 1.5 is adult onset autoimmune diabetes

Re: British man with type 1 diabetes to receive tests after coming off insulin

#14
I'm a programmer and I've had a type 1 diabetes for the last 21 years. It is one of the most complex things in my life to take care of when all of the insulin therapies don't really work that well and I don't wake up to the nightly hypos. Luckily I'm in the German insurance system and getting an insulin pump first and later a CGM. Already I'm using an NFC chip in my arm giving results to my phone and from there to InfluxDB and Grafana. Later with a proper CGM I also get automatic alarms which wake me and my partner if the sugar gets to low.

There are great open source systems for us technical people, but the tech is very expensive without an insurance and requires you to solder an extra device to get the values to your phone. At least with an NFC device you can wrap a smartwatch over it to get the readings automatically to your phone, rooted of course.

Re: British man with type 1 diabetes to receive tests after coming off insulin

#15
post #4

4 years ago I got diagnosed with type 1 diabetes in my early forties. The hospital staff showed me how to manage my glucose with long acting and fast acting insuline. As a programmer I'm good with numbers so everything was pretty much under control but I started noticing that I needed less and less insuline up to the point that I needed no insuline at all. This was about a year ago. At that same time I had some new p…

You sure it was Type 1? Generally people are diagnosed with Type 1 at a very young age, since it is caused by your own immune system destroying beta cells in the pancreas, which if untreated results in eventual death. Type 2 is more often associated with age and diet. It is the most common type in particular at later ages, but some people get it younger due to genetic predisposition.

This is really not the kind of thing that people with a diagnosis tend to be confused about.

There is early and late-onset T1D. About 25% of T1D is diagnosed as an adult [1]

[1] - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2925303/

Re: British man with type 1 diabetes to receive tests after coming off insulin

#16
post #13

Earlier quoted context omitted.

You sure it was Type 1? Generally people are diagnosed with Type 1 at a very young age, since it is caused by your own immune system destroying beta cells in the pancreas, which if untreated results in eventual death. Type 2 is more often associated with age and diet. It is the most common type in particular at later ages, but some people get it younger due to genetic predisposition.

Type 1.5 is adult onset autoimmune diabetes

That's a bit of an oversimplification. T1 is auto-immune -- the body loses the ability to produce insulin, and you can detect autoantibodies in the blood. T2 is insulin resistance, and generally has no autoimmune component and no autoantibodies present.

Typically T1D comes on all at once; the autoantibodies destroy the insulin producing beta cells and the patient needs exogenous insulin starting immediately. A subset of adult onset T1D displays a much slower progression of the destruction of beta cells. This is called LADA (latent autoimmune diabetes of adults”) or slow-progressing T1D and more recently T1.5D.

Similarly, some T2D patients also show evidence of autoantibodies however their beta cells are still largely functioning.

So now we further split into groups; Type 1–LADA, Type 1.5 or “double” diabetes, and Type 2 diabetes with autoantibodies.

This is a good overview: https://www.diabetesselfmanagement.com/diabetes-resources/de...

Re: British man with type 1 diabetes to receive tests after coming off insulin

#18
post #10
post #6

Earlier quoted context omitted.

That's a really interesting story and congratulations on beating a pretty nasty disease. That must feel like a true accomplishment. It appears, based on this, that carbohydrates drove your diabetes? I wonder if the problem is with refined carbohydrates or with gluten specifically? Do you eat sugar, chocolate, etc?

I think you misunderstand.... Certainly congrats to bluemax for successfully managing concurrent celiac and T1D but nothing has been "beaten" here. T1D is an autoimmune disease which destroys the pancreas' ability to produce insulin. Your body needs insulin to process sugar in the blood into energy, a large part of that sugar comes from carbs. Celiac is an autoimmune disease which is a reaction in the gut to gluten.…

Exactly that.

Re: British man with type 1 diabetes to receive tests after coming off insulin

#19
post #4

4 years ago I got diagnosed with type 1 diabetes in my early forties. The hospital staff showed me how to manage my glucose with long acting and fast acting insuline. As a programmer I'm good with numbers so everything was pretty much under control but I started noticing that I needed less and less insuline up to the point that I needed no insuline at all. This was about a year ago. At that same time I had some new p…

You sure it was Type 1? Generally people are diagnosed with Type 1 at a very young age, since it is caused by your own immune system destroying beta cells in the pancreas, which if untreated results in eventual death. Type 2 is more often associated with age and diet. It is the most common type in particular at later ages, but some people get it younger due to genetic predisposition.

The folks at the hospital were not sure at first. I'm neither young, nor old and overweight so there were different opinions before some specific blood test was done.

Re: British man with type 1 diabetes to receive tests after coming off insulin

#20
post #14

I'm a programmer and I've had a type 1 diabetes for the last 21 years. It is one of the most complex things in my life to take care of when all of the insulin therapies don't really work that well and I don't wake up to the nightly hypos. Luckily I'm in the German insurance system and getting an insulin pump first and later a CGM. Already I'm using an NFC chip in my arm giving results to my phone and from there to In…

Interested in hearing more about that - How does the NFC chip get results?
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