Live data from Hacker News

I was recently diagnosed with anti-NMDA receptor encephalitis

burntsushi.net

1–10 of 271 posts

Re: I was recently diagnosed with anti-NMDA receptor encephalitis

#3

Best of luck mate. Most of us take our health for granted.

Thank you. It's been a trip. The worst thing that has happened, but also the best. It has definitely given me a new perspective on life, that's for sure.

My favorite side effect is that I now love all foods. Prior to this, I was a rather picky eater. Now I love everything!

Re: I was recently diagnosed with anti-NMDA receptor encephalitis

#4
This sounds horrifying. It’s one of those stories that makes me think in just how many ways our bodies or minds can break or malfunction in terrifying ways. Any one of us could, right now, carry a lethal tumor that hasn’t been discovered.

Best of luck to you, and get well. I’m glad it didn’t get even worse before it was treated.

Re: I was recently diagnosed with anti-NMDA receptor encephalitis

#6
I can't begin to imagine the pain and stress caused by those symptoms, but I am so very happy to hear the prognosis is quite good. A linked scientific article makes the case that this is a very new diagnosis, and increased awareness might help a lot of people, so if you are reading this burntsushi, thanks for being open about something deeply personal, I hope I would have had the courage to do so myself.

Re: I was recently diagnosed with anti-NMDA receptor encephalitis

#8

I can't begin to imagine the pain and stress caused by those symptoms, but I am so very happy to hear the prognosis is quite good. A linked scientific article makes the case that this is a very new diagnosis, and increased awareness might help a lot of people, so if you are reading this burntsushi, thanks for being open about something deeply personal, I hope I would have had the courage to do so myself.

Thank you. There were lots of reasons that went into me posting this.

First and foremost is that this is a disease of chaos that is prone to misdiagnosis. I want to shout this from the roof tops to spread awareness. I don't have a ton of reach, but I have some, and I want to use it to amplify things like this.

Second is that I'm somewhat naturally open about these sorts of things.

Third is I feel a responsibility to my projects and users.

Fourthly is that it's just practically useful to have a link to send to someone when I reference this time period in my life. :-)

> very new diagnosis

Yes! Discovered in 2007. Wild.

> so if you are reading this burntsushi, thanks for being open about something deeply personal, I hope I would have had the courage to do so myself.

<3 <3 <3

Re: I was recently diagnosed with anti-NMDA receptor encephalitis

#9

Best of luck mate. Most of us take our health for granted.

Thank you. It's been a trip. The worst thing that has happened, but also the best. It has definitely given me a new perspective on life, that's for sure. My favorite side effect is that I now love all foods. Prior to this, I was a rather picky eater. Now I love everything!

> My favorite side effect is that I now love all foods. Prior to this, I was a rather picky eater. Now I love everything!

I feel like there's a burntsushi joke hiding in there somewhere.

All the best Andrew.

Post reply on HN