UK Biobank leak: Health details of 500k people offered for sale on Alibaba
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Re: UK Biobank leak: Health details of 500k people offered for sale on Alibaba
#2Related: https://news.ycombinator.com/item?id=47875843 “UK Biobank health data keeps ending up on GitHub”
Re: UK Biobank leak: Health details of 500k people offered for sale on Alibaba
#3Related: https://news.ycombinator.com/item?id=47875843 “UK Biobank health data keeps ending up on GitHub”
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Re: UK Biobank leak: Health details of 500k people offered for sale on Alibaba
#4I want to get my DNA digitized so I can do all sorts of health stuff for myself, but finding a place that won't leak my data is troublesome. 23andme is right out.
Re: UK Biobank leak: Health details of 500k people offered for sale on Alibaba
#5There isn't much difference between giving this data to 20,000 researchers all over the world and simply publishing the data on the web.
I personally would like data like this to simply be published, together with a law that says using the data to make personalized decisions affecting those individuals is punishable with life in prison.
Basically, this data is 'opensource', but not for use to decide insurance premiums, job offers, or the contents of news articles.
Re: UK Biobank leak: Health details of 500k people offered for sale on Alibaba
#6Gonna wager the US government is the first to purchase
Re: UK Biobank leak: Health details of 500k people offered for sale on Alibaba
#7I want to get my DNA digitized so I can do all sorts of health stuff for myself, but finding a place that won't leak my data is troublesome. 23andme is right out.
Buy a desktop sequencer?
Re: UK Biobank leak: Health details of 500k people offered for sale on Alibaba
#8Gonna wager the US government is the first to purchase
I thought we pay them to have it via Palantir contracts or something?
Re: UK Biobank leak: Health details of 500k people offered for sale on Alibaba
#9"Access this article for 1 day for: £50 / $60/ €56 (excludes VAT)"
Man, the scientific publishing cartel is something else. Note that author will generally get exactly £0 / $0 / €0 for his text.
Re: UK Biobank leak: Health details of 500k people offered for sale on Alibaba
#10There isn't much difference between giving this data to 20,000 researchers all over the world and simply publishing the data on the web. I personally would like data like this to simply be published, together with a law that says using the data to make personalized decisions affecting those individuals is punishable with life in prison. Basically, this data is 'opensource', but not for use to decide insurance premium…
I can't wait for this to be used for assassination by peanut.