Amit Gupta hasn't found a marrow transplant match; today's your last chance.
amitguptaneedsyou.com
Amit Gupta hasn't found a marrow transplant match; today's your last chance.
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Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.
#2Brought back to my attention by today's GOOD article "Bone Dry: Amit Gupta and the South Asian Bone Marrow Problem"
http://www.good.is/post/amit-gupta-and-the-south-asian-bone-...
Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.
#3Why doesn't he simply offer money? If I needed to survive, I'd offer something like all my savings, plus 50% of my net salary for 10 years.
Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.
#4Why doesn't he simply offer money? If I needed to survive, I'd offer something like all my savings, plus 50% of my net salary for 10 years.
This would most likely reduce the number of people who would screen themselves. I wouldn't undergo a possibly horrible medical procedure for $100,000, but I might do it to save someone's life and feel like a good person.
For further reading, look into social norms vs. market norms, especially the example of the Israeli day care: http://papers.ssrn.com/sol3/papers.cfm?abstract_id=180117 (paywall)
Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.
#5A good friend of mine, Eric Drew, survived two failed fully oblative bone marrow transplants (partial match) and was out of options, so he "qualified" for an experimental "Cord Blood Transplant" which cured his Acute Lyphoblastic Leukimia. I believe it was done through the University of Wisconsin, but I'm uncertain if the procedure has gotten out of research trials. If Amit runs out of options, he should look into it.
EDIT: I do know the fancy medical terms, but I don't pretend to really understand what they mean. You need a real serious medical education to understand this stuff.
Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.
#6Why doesn't he simply offer money? If I needed to survive, I'd offer something like all my savings, plus 50% of my net salary for 10 years.
I believe $30,000 has been offered by various people, starting with Seth Godin offering $10,000 and a spotlight on his blog to anyone who's a match and goes through with the procedure.
Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.
#7Why doesn't he simply offer money? If I needed to survive, I'd offer something like all my savings, plus 50% of my net salary for 10 years.
Because that is illegal. In the US, there is the National Organ Transplant Act which forbids paying for organs. In this law, bone marrow is considered an organ.
> It shall be unlawful for any person to knowingly acquire, receive, or otherwise transfer any human organ for valuable consideration for use in human transplantation if the transfer affects interstate commerce.
> [...]
> The term ''human organ'' means the human (including fetal) kidney, liver, heart, lung, pancreas, bone marrow, cornea, eye, bone, and skin or any subpart thereof and any other human organ (or any subpart thereof, including that derived from a fetus) specified by the Secretary of Health and Human Services by regulation.
Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.
#8Why doesn't he simply offer money? If I needed to survive, I'd offer something like all my savings, plus 50% of my net salary for 10 years.
This would most likely reduce the number of people who would screen themselves. I wouldn't undergo a possibly horrible medical procedure for $100,000, but I might do it to save someone's life and feel like a good person. For further reading, look into social norms vs. market norms, especially the example of the Israeli day care: http://papers.ssrn.com/sol3/papers.cfm?abstract_id=180117 (paywall)
Would it be possible for someone interested in the money to get tested and ask for money in case of a match? Although I suppose the moral pressure would be quite high if you are already tested.
Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.
#9I am a south asian male living in the US.I tried to sign up as a donor.Here is my experience.
>Your password needs to be between 8 and 15 characters long, must contain at least 1 number and 1 letter and cannot contain spaces.
Seriously WTF....I am sure half of the people who wanted to sign up did not just for this bs!
Okay chill...password abcd......
> In the past 5 years have you taken money or drugs in exchange for sex?.. (Men only) In the past 5 years have you had sex, even once with another male?
Half of the people who passed stage 1 probably said "fuck it" at this stage.I am close but am willing to go through this for amit.
> SSN? Driver License Number ? HomePhone ? Current Mailing Address? Permanent Address ? Employer Information ?
Should I also give you my bank account username/passwords?At this point I am really mad!..Luckily the SSN and DL fields are not mandatory
> First Contact Information ? Spouse Information ? Second Contact Information
Grrr....what the fuck!
> Race Information? Not Hispanic or Latino ? Black ? Asian ?
Wtf...take my DNA and figure it out!
After a cpl other irritating forms I am finally able to get a kit sent to my address.
-My advice to Amit's friends would be to please do something to improve the signup workflow.
-Also I have my genome phenotyped with 23andMe.I am totally willing to share it with Amit's Friends or Amit.I am sure a lot of other south asians on 23andMe would be willing too but there is no way to do this!
Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.
#10Earlier quoted context omitted.
This would most likely reduce the number of people who would screen themselves. I wouldn't undergo a possibly horrible medical procedure for $100,000, but I might do it to save someone's life and feel like a good person. For further reading, look into social norms vs. market norms, especially the example of the Israeli day care: http://papers.ssrn.com/sol3/papers.cfm?abstract_id=180117 (paywall)
Would it be possible for someone interested in the money to get tested and ask for money in case of a match? Although I suppose the moral pressure would be quite high if you are already tested.
I suppose it's possible to ask for every penny someone has if you're a match, since they'll obviously pay you their last dime. It's an asshole move to go after someone at their most vulnerable, though, and if it became public would likely get you justifiably ostracized from any decent community. It's also currently illegal in the US.
Of course, asking your medical costs, recuperating costs, etc. to be covered is totally reasonable.