Baffling neurological illness affects growing number of young adults
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Re: Baffling neurological illness affects growing number of young adults
#2>The 3 referring physicians in New Brunswick engaged the Public Health Agency of Canada’s Creutzfeldt-Jakob Disease Surveillance System (CJDSS) to actively investigate the possibility of human prion disease, but to date, all test results have been negative for known forms of human prion disease.
https://www2.gnb.ca/content/gnb/en/departments/ocmoh/cdc/neu...
So it does not seem to be prions, despite the similarities.
Re: Baffling neurological illness affects growing number of young adults
#3>The 3 referring physicians in New Brunswick engaged the Public Health Agency of Canada’s Creutzfeldt-Jakob Disease Surveillance System (CJDSS) to actively investigate the possibility of human prion disease, but to date, all test results have been negative for known forms of human prion disease. https://www2.gnb.ca/content/gnb/en/departments/ocmoh/cdc/neu... So it does not seem to be prions, despite the similarities.
I'm not sure "known" is very comforting when we have no reason to believe that we have a complete inventory of all possible prion diseases in humans.
Re: Baffling neurological illness affects growing number of young adults
#4Seems obviously BMAA but clearly the government don’t want to say so because it will destroy the lobster industry.
We should all be terrified of BMAA and it’s here because of climate change.
https://www.sciencedaily.com/releases/2019/01/190124110834.h...
Climate change is making the oceans and fresh water toxic and very deadly. We’ve seriously fucked the earth.
Have you ever heard weasel words more reminiscent of a cover up:
“ But experts nonetheless warn that testing itself is also more difficult than the public realizes.
While some medical tests can provide quick and definite results other types of investigation require far more work.
“What people are talking about really amounts to a full research investigation, because then we know what we’re looking for precisely,” said the federal scientist who was familiar with both the cluster and the testing process. “Right now we don’t have a way to interpret simple data that you might get when testing a person’s brain tissue for a particular toxin. For example, how much are ‘elevated’ levels of a neurotoxin compared to the rest of the public? And when does that become a cause for concern?”
The scientist said teams are ready to begin the research, but “New Brunswick has specifically told us not to go forward with that work”.”
Re: Baffling neurological illness affects growing number of young adults
#5Previous reporting on the issue; https://www.theguardian.com/world/2021/mar/30/mystery-brain-...
'Forever Chemicals' are known to get concentrated in shellfish - I wonder if that is an issue?
I'd love to see the comparative numbers of similar cases in other environments - this seems very high but I have no idea what the baseline for this sort of thing is.
As someone that grew up with the spector of 'mad cow disease' (bse/cjd) in the UK, it is horrible to think about the affects in these people and their families. The fact that care givers are also falling ill is very interesting and concerning.
Re: Baffling neurological illness affects growing number of young adults
#6Pretty scary, can't wait to read the book on it in 10 years.
Re: Baffling neurological illness affects growing number of young adults
#7This was previously discussed on HN: https://news.ycombinator.com/item?id=28979532
The linked article is about how NB went out of their way to shut out federal investigators. If it’s environmental, it’s possible the NB government is trying to cover it up.
This is also briefly touched on in this article:
> The scientist said teams are ready to begin the research, but “New Brunswick has specifically told us not to go forward with that work”.
Re: Baffling neurological illness affects growing number of young adults
#8Previous reporting on the issue; https://www.theguardian.com/world/2021/mar/30/mystery-brain-... 'Forever Chemicals' are known to get concentrated in shellfish - I wonder if that is an issue? I'd love to see the comparative numbers of similar cases in other environments - this seems very high but I have no idea what the baseline for this sort of thing is. As someone that grew up with the spector of 'mad cow disease'…
You really should never eat shellfish from unknown sources, because these are either from unsustainable farms pumped full with chemicals to keep diseases in check or from the sea. Either way, very dirty food in more than one way. If you really gotta eat shellfish, get it from local closed-cycle industrial farms. That's of course more expensive, because you're paying for what you're getting.
Re: Baffling neurological illness affects growing number of young adults
#9Canadian healthcare is scary, and it's made worse by these politicians that always go to the US for care.
The joke is that it's gotten so progressive that no one gets better, we all have to equally suffer. You can see clearly how this situation was mishandled.
Re: Baffling neurological illness affects growing number of young adults
#10Pretty scary, can't wait to read the book on it in 10 years.
Netflix docudrama.