England’s NHS plans to share patient records with third parties
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Re: England’s NHS plans to share patient records with third parties
#2Although the FT is paywalled, from a web search the same topic is covered at https://digitpatrox.com/englands-nhs-plans-to-share-patient-... (I have no idea how reputable that site is though).
Quoting the start of it:
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England’s NHS is making ready to scrape the medical histories of 55m sufferers, together with delicate info relating to psychological and sexual well being, prison information and the abuse of adults and youngsters, right into a database it is going to share with third events.
The info assortment venture, which is the primary of its form, has triggered an uproar amongst privateness campaigners, who say it’s “legally problematic”, particularly as sufferers solely have a couple of weeks to decide out of the plan.
NHS Digital, which runs the well being service’s IT techniques, confirmed the plan to pool collectively medical information from each affected person in England who’s registered with a GP clinic right into a single lake that can be obtainable to educational and business third events for analysis and planning functions.
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This link is also relevant for people registered with the NHS: https://www.nhs.uk/your-nhs-data-matters/manage-your-choice/
Re: England’s NHS plans to share patient records with third parties
#3People should note that this data cannot really be anonymised. This is because you only need a post code, date of birth and sex to determine who the majority of people are.
"A 2000 study found that 87 percent of the U.S. population can be identified using a combination of their gender, birthdate and zip code."
https://en.wikipedia.org/wiki/Data_re-identification
UK postcodes are more specific I believe.
Re: England’s NHS plans to share patient records with third parties
#4This already routinely done all over the world.
Re: England’s NHS plans to share patient records with third parties
#5This already routinely done all over the world.
Because most countries don't run a national healthcare system; this is data collection by the state (not a private company) and should be treated accordingly.
Re: England’s NHS plans to share patient records with third parties
#6Although the FT is paywalled, from a web search the same topic is covered at https://digitpatrox.com/englands-nhs-plans-to-share-patient- ... (I have no idea how reputable that site is though). Quoting the start of it: “”” England’s NHS is making ready to scrape the medical histories of 55m sufferers, together with delicate info relating to psychological and sexual well being, prison information and the abuse of adul…
Its since sometime ago that GPs advertise and use non-NHS online services to force their patients to order their repeated prescriptions or book appointments, they get their f commission and share the data, screw them all.
Re: England’s NHS plans to share patient records with third parties
#7This already routinely done all over the world.
Because most countries don't run a national healthcare system; this is data collection by the state (not a private company) and should be treated accordingly.
But then again, the State is part of the Five Eyes, so there’s not much to expect in terms of privacy anyway.
Re: England’s NHS plans to share patient records with third parties
#8Under article 6 of the GDPR this is allowed since "processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller;", thus informed consent isn't necessary and opt-out is legal.
Whilst legally permissible, being opt-out with highly sensitive information is detestable and shows the GDPR doesn't go far enough.
Re: England’s NHS plans to share patient records with third parties
#9In Europe Google is offering large sums for clinical data that is stored within the records of their Electronic Medical Records. If you start selling data, capital will lead to a consolidation of data. Creating Information asymmetries in healthcare might be the stupidest thing the NHS can do, our future generations will be fighting the monopolies that could have been voided if we treat data and its derivates as a common good.
Re: England’s NHS plans to share patient records with third parties
#10This already routinely done all over the world.
Two things:
Citation needed (sorry).
It should be noted that the NHS is one of the largest, longest, most standardised medical record sets in the world. This is because it's for the whole (67m person) country, and because the NHS is so old records are old and centralised to a degree you don't see in private-healthcare, federal or smaller countries. That makes this of interest imho.
The NHS DBs have been used for really good medical research in the past (exactly because of the reasons above). That's fine. Buts it's different to just sharing the data with anyone...