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Show HN: Kate's App

katesapp.org

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Re: Show HN: Kate's App

#81

Post by bagels »

bhpreece wrote: post #44
rafram wrote: post #33

Privacy concerns aside, I don't really understand what the point of this is, to be honest. You can already add family/caregivers as authorized users on a MyChart (Epic) profile, which is an actual source of truth, not a separate data store that you need to update manually. This seems like a good experiment in building a CRUD app, but I'd recommend doing that with something with less liability.

I use MyChart. It's a great way for your doctor and clinic to communicate with you. It's not a place where I'm going to store contact information for all my doctors, or appointments for doctors that aren't at that clinic, or all my prescriptions and all the pharmacies. When your daughter is reacting badly to her new chemotherapy, and running fevers and throwing up, and somebody needs to call her palliative care speci…

Does that work if you have multiple caregivers? Even seeing a doctor, and then getting a scan can involve multiple entities.

Re: Show HN: Kate's App

#82

Post by bagels »

roegerle wrote: post #51
otterley wrote: post #28

Earlier quoted context omitted.

The site might be deemed a Business Associate, depending on the specific facts, which we don't fully possess. That's why I recommended the owner seek counsel.

A business associate to who? The user?

A covered entity (eg. doctor, nurse, etc.)

Re: Show HN: Kate's App

#84

Post by bagels »

Confused: Who uses this, the patient or the medical staff (nurses and doctors, etc.)?

"Organize your support team for your health care."

"Kate's App is a tool created to support medical caregivers"

Re: Show HN: Kate's App

#85

Post by [deleted] »

gwbas1c wrote: post #16

I don't want to repeat other comments here; but this app smells of a very dangerous attitude: Built with love by novices with grand intentions, with complete blindness to the real consequences that happen when novices are ignorant in their field. If your goal is to "find a learning project," I suggest finding a very different "learning project." Otherwise, keep "Kate's app" private, word-of-mouth, invite-only for und…

[deleted]

Re: Show HN: Kate's App

#86

Post by WA »

bhpreece wrote: post #36

Thank you everybody for your comments. Comments on legal issues: I absolutely agree and 100% plan to get legal advice. In the meantime, if you have personal experience, I would love to learn from you. Comments on HIPAA: I'm 99% sure this does not apply, since the site is for patients and their families, and no doctors, clinics, hospitals, or insurance companies are involved. All information comes from the family, and…

Since we're talking about regulation here: Your site is accessible from the EU. You do not have a GDPR compliant privacy policy (or one at all). The GDPR does apply to you, if you allow Europeans to sign up.

The primary goal of your site is to store medical data. For this, you'd need a dedicated data protection officer (DPO). Article 37 1c applies to your case: https://gdpr.eu/article-37-designation-of-the-data-protectio...

Re: Show HN: Kate's App

#87

Post by andrewstuart »

>> You data will not be sold, shared, or given away. Your medical data is the most private data you have, and we respect that.

Unfortunately the bad actors have destroyed trust so much that I don't trust anyone no matter the words nor how authentic you sound.

Re: Show HN: Kate's App

#88

Post by lvturner »

rafram wrote: post #70
rat87 wrote: post #69

Earlier quoted context omitted.

I could understand epic since I think that's mainly for doctors but don't most hospital systems use MyChart or similar portals nowadays to let patients access access their appointments/payment/lab results/doctor notes/etc

MyChart is Epic’s patient frontend.

What's Epic?

Re: Show HN: Kate's App

#89

Post by scripturial »

How do you know your app is legal to distribute in each country you are distributing in? Anything with the word “medical” in it can be a potential legal mess due to well intentioned but ultimately difficult to manage issues.

If you can’t answer that question you really need to listen to the people telling you to take it down until you can work it out.

Re: Show HN: Kate's App

#90

Post by netsharc »

diggan wrote: post #37
gwbas1c wrote: post #16

I don't want to repeat other comments here; but this app smells of a very dangerous attitude: Built with love by novices with grand intentions, with complete blindness to the real consequences that happen when novices are ignorant in their field. If your goal is to "find a learning project," I suggest finding a very different "learning project." Otherwise, keep "Kate's app" private, word-of-mouth, invite-only for und…

How do you know that the authors are novices with "complete blindness" to real consequences? Where are you getting the "find a learning project" goal from? It sucks that you've been burnt by that before, but it sounds like your employer was the one who screwed you there, not the author of the application.

I had the strong urge to scroll down that page to see if there's anything more to this site: who made it, legalese, etc, but no. While it claims data safety and privacy...

Yeah, that smells amateurish. Maybe OP can code well, maybe they have domain knowledge in healthcare, but damn, definitely utterly clueless in the legal area.

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