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Ask HN: Can you share your experience with sleep apnea?

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Ask HN: Can you share your experience with sleep apnea?

#1
Ever since I was a teenager I have always felt sleepy, tired and unable to concentrate. Later I was diagnosed with mild sleep apnea and upper airway resistance syndrome. Since then I have tried cpap, nasal surgery, mouth appliance etc but none of it helped. My quality of life is significantly lowered because of it.

Does anyone here also have sleep apnea or uars? How are you treating it? I would love to hear your story

Re: Ask HN: Can you share your experience with sleep apnea?

#2
Yes. To make a long story short, it was a lifestyle change that solved it for me. Basically my sleep apnea was due to irritation in my airways due to stomach acid leaking towards the throat at night, while laying down. That stomach acid was going up because of high levels of work stress and late evening meals, as well as unhealthy snacking (though I am a healthy and active individual, the effect was there). I now never eat heavy before bedtime, and try not to eat at all for a few hours. I do drink more water, and keep my stress levels at bay. The road to understanding my apneas causes wasn't a straight one - doctors didn't raise these causes as options from the start, nor did the internet. Anyhow, happy, back to life without surgeries, and wishing you the same!

Re: Ask HN: Can you share your experience with sleep apnea?

#3
I wish I had good news, but...

I was diagnosed with sleep apnea, not because of any obvious problem, but because my psych wanted to put me on drugs that might make me drowsy, so he wanted to make sure I was OK in that regard. A sleep study showed that I had mild to moderate sleep apnea.

I spent the following two years trying various things: turbinate reduction surgery, and 6-9 months adjusting my CPAP to no avail. No matter what we did, my AHI never went below 20. In fact, all of that actually caused severe insomnia that took me another 3 or 4 months to finally resolve.

I continue to look for ideas and new technology, but I'm not willing to do anything surgical. These days I just deal with it by getting at least 9 hours of time in bed (not 9 hours of sleep, because the result is more like 6 hours of actual sleep). I still wake up 3-4 times per night, but it's just enough—along with coffee—to continue to function.

Re: Ask HN: Can you share your experience with sleep apnea?

#4
I have it too, and it leads me to irregular heartbeat, anxiety and stress disorders. Tried CPAP and I can't just sleep with mask on, gave up after 2 weeks. What helping me now is melatonin and if I wake up sleep deprived, I do meditation at least one hr as soon as I can't sleep back. It helps me alot

Re: Ask HN: Can you share your experience with sleep apnea?

#5

Yes. To make a long story short, it was a lifestyle change that solved it for me. Basically my sleep apnea was due to irritation in my airways due to stomach acid leaking towards the throat at night, while laying down. That stomach acid was going up because of high levels of work stress and late evening meals, as well as unhealthy snacking (though I am a healthy and active individual, the effect was there). I now nev…

Do you drink while or after eating?

Re: Ask HN: Can you share your experience with sleep apnea?

#7
Been a CPAP user for 20 years (am 55 now). Can't sleep without it. It actually fixed my acid reflux symptoms; by not gasping and choking so much to breathe air in, I seemed to stop having reflux.

Mine is nonpositional. CPAP pressure is 16 and allows me to sleep on my back, but I'm ususlly a side sleeper. I use nasal pillows after an over-the-nose mask for the first 6 or 7 years. If I lost weight it'd probably help but I also have a deviated septum and an elongated soft palate / large tongue for my mouth size. So a perfect storm for apnea. Fortunately CPAP works well for me and I've never had an issue with mask fit or any other interference with sleep, aside from the air noises my new machine makes. I sleep with earplugs or earbuds with rain sounds (also have mild misophonia so the sound of the machine rising/falling as I breathe in and out, vs my original actual constant pressure machine, drives me bonkers) and/or a fan in my room to cover up the breathing sounds :)

Sorry to hear that your options have not worked -- it sounds like you've tried a lot of things. Is it worth getting another sleep study to see if there are any other changes that might explain the issues? I know my first doctor/study was nowhere near as complete as my 2nd one. It was the 2nd one that raised my pressure from 11 to 16 and that made a huge difference.

Good luck!

Re: Ask HN: Can you share your experience with sleep apnea?

#9
A few further options you might try:

1. Inspire is an implant that electrically activates the muscles in your airway. You program it with a Bluetooth remote. It require that you have tried CPAP without success, but it works very well for some people. https://www.inspiresleep.com/

2. Apnimed is developing pharmaceutical interventions for sleep apnea. They’re conducting clinical trials; you could try to get involved in one of those to see if your apnea is improved by one of those drug candidates. https://apnimed.com/pipeline/

Re: Ask HN: Can you share your experience with sleep apnea?

#10

Yes. To make a long story short, it was a lifestyle change that solved it for me. Basically my sleep apnea was due to irritation in my airways due to stomach acid leaking towards the throat at night, while laying down. That stomach acid was going up because of high levels of work stress and late evening meals, as well as unhealthy snacking (though I am a healthy and active individual, the effect was there). I now nev…

Thanks for sharing your story. Did you try taking meds (like PPI) for acid reflux?
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